A diagnosis of kidney cancer can be overwhelming, and finding information to get started is difficult at first. We have put together resources to help you form a plan for a newly-diagnosed renal mass.

YOUR DIAGNOSIS

Start here for information about kidney cancer diagnosis and testing, including types of kidney cancer and terms to know.

Building Your Care Team

Next, you’ll want to assemble a team to support your care. Learn about various kidney and cancer specialists.

TREATMENTS & TRIAL OPTIONS

Learn about how you could take part in kidney cancer treatments and trials.

LIVING WELL WITH KIDNEY CANCER

This will look different for everyone, but learn how to manage these changes and live life to the full.

Take a breath. Don’t go to the internet and read outdated statistics. Medicines and treatments are changing daily, weekly. Find a care team that you can trust.

I recommend SmartPatients.com for everybody; there’s a place for you on Smart Patients. You’ll hear from other patients, you’ll hear from professionals.

– Gary C.,
advice to a new kidney cancer patient

Connect with Our Communities

There are multiple support groups serving the kidney cancer community.  SmartPatients.com is a patient forum and a KidneyCAN partner. We recommend this as a private, moderated  place to talk with other patients.  Your cancer center may also have their own support groups.

PATIENT News

Dr. Brandon Manley: Physician, Scientist, Advocate

Dr. Brandon Manley: Physician, Scientist, Advocate

Brandon Manley, M.D., is a urologic oncologist who specializes in genitourinary oncology, with a focus on patients with kidney cancer. He currently practices at Moffitt Cancer Center in Tampa, Florida, where he lives with his wife Aimee, and his two daughters Sadie...

read more
Remembering Ralph: Time Well Spent

Remembering Ralph: Time Well Spent

Ralph Knapp was diagnosed in 2014 with stage IV kidney cancer and used the opportunity to increase research funding and bring hope to patients everywhere. With heavy hearts and profound sadness, we announce the passing of Ralph Knapp, a founder of KidneyCAN and leader...

read more
IKCC Report: Retention in Clinical Trials

IKCC Report: Retention in Clinical Trials

The International Kidney Cancer Coalition launched a pilot program to understand the barriers and other considerations that drive the decision to leave a clinical trial and uncover ways to better support patients currently in or considering joining clinical trials....

read more

Join Our Grassroots Army

We know that awareness of kidney cancer and its impact on many lives leads to a sense of urgency, a desire for solutions. Awareness leads to advocacy, and advocacy — joining to speak as one voice — leads to funding and research. That’s how we get to cures.

So much progress in #kidneycancer research in the last five years! We have YOU, our community of advocates, to thank. 
But the work is unfinished. Join us on #DistrictDays to tell #Congress to fund #RCC research!
Register: https://kidneycan.org/2022-district-days/

So much progress in #kidneycancer research in the last five years! We have YOU, our community of advocates, to thank.

But the work is unfinished. Join us on #DistrictDays to tell #Congress to fund #RCC research!

Register: https://kidneycan.org/2022-district-days/
...

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Join us to learn the basics of the clinical trial process and why trial participation can make sense anywhere along your treatment journey.
Register now to get your questions included in the program! 
https://kidneycan.org/clinical-trials-for-kidney-cancer/

Join us to learn the basics of the clinical trial process and why trial participation can make sense anywhere along your treatment journey.

Register now to get your questions included in the program!
https://kidneycan.org/clinical-trials-for-kidney-cancer/
...

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Managing medication dose vs. side effects is a common stressor for #kidneycancer patients. Dr. Hans Hammers of @utswcancer breaks down dosing for patients and gives tips for patients when communicating with their docs.
WATCH: https://youtu.be/frjlpzQmFxg
#KidneyCANDID #acceleratingcures #livingwithcancer #cancerlife

Managing medication dose vs. side effects is a common stressor for #kidneycancer patients. Dr. Hans Hammers of @utswcancer breaks down dosing for patients and gives tips for patients when communicating with their docs.

WATCH: https://youtu.be/frjlpzQmFxg

#KidneyCANDID #acceleratingcures #livingwithcancer #cancerlife
...

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It's not too late to join @TriageCancer for an empowering webinar for patients and caregivers. 
Learn how YOU can make a difference for those living with #cancer. 
“Engaging in Policy & Legislative Advocacy”
⁩TODAY! June 21, 2022
10am PT | 12pm CT | 1pm ET
Register: https://triagecancer.org/webinarreg-advocacy

It's not too late to join @TriageCancer for an empowering webinar for patients and caregivers.

Learn how YOU can make a difference for those living with #cancer.

“Engaging in Policy & Legislative Advocacy”
⁩TODAY! June 21, 2022
10am PT | 12pm CT | 1pm ET
Register: https://triagecancer.org/webinarreg-advocacy
...

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We are winding down #WorldKidneyCancerDay in the United States, but you still have more opportunities to learn about #clinicaltrials as a treatment option for #kidneycancer. 
Plan to join us on July 19th for this free webinar featuring two leading #kidneycancer researchers. We will discuss the basics of the clinical trial process and why trial participation can make sense anywhere along your treatment journey.
Register at www.kidneycan.org!

We are winding down #WorldKidneyCancerDay in the United States, but you still have more opportunities to learn about #clinicaltrials as a treatment option for #kidneycancer.

Plan to join us on July 19th for this free webinar featuring two leading #kidneycancer researchers. We will discuss the basics of the clinical trial process and why trial participation can make sense anywhere along your treatment journey.

Register at www.kidneycan.org!
...

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Many patients are surprised to be offered a #clinicaltrial as an option for their first treatment for #kidneycancer. At large cancer centers, you may be offered a trial for any needed treatment change. Your oncologist may even suggest travel so you can access a new therapy years before it is FDA-approved.
Clinical trials are how we make progress in our mission to #acceleratecures for kidney cancer. It is a myth that trials are only for patients seeking a last resort. 
We hope you have found our #WorldKidneyCancerDay resources helpful, and we really hope you'll use them to have a conversation with your care team about your treatment options. 
#WKCD #livingwithcancer

Many patients are surprised to be offered a #clinicaltrial as an option for their first treatment for #kidneycancer. At large cancer centers, you may be offered a trial for any needed treatment change. Your oncologist may even suggest travel so you can access a new therapy years before it is FDA-approved.

Clinical trials are how we make progress in our mission to #acceleratecures for kidney cancer. It is a myth that trials are only for patients seeking a last resort.

We hope you have found our #WorldKidneyCancerDay resources helpful, and we really hope you'll use them to have a conversation with your care team about your treatment options.

#WKCD #livingwithcancer
...

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Depending on your #kidneycancer type, its stage, and your quality of life priorities, a range of treatment options may be available to you. Studies show the best outcomes are when patients and doctors make treatment decisions together. But currently, not enough conversations are happening.
That's why the theme for this year's #WorldKidneyCancerDay is "We need to talk about treatment options."
Learn more at https://www.worldkidneycancerday.org/

Depending on your #kidneycancer type, its stage, and your quality of life priorities, a range of treatment options may be available to you. Studies show the best outcomes are when patients and doctors make treatment decisions together. But currently, not enough conversations are happening.

That's why the theme for this year's #WorldKidneyCancerDay is "We need to talk about treatment options."

Learn more at https://www.worldkidneycancerday.org/
...

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Studies show patients and their doctors don't talk nearly enough about treatment options -- including access to clinical trials -- and that better conversations and shared decision-making lead to better treatment options with fewer side effects.
On #WorldKidneyCancerDay, we want to share resources to help you learn about clinical trials and treatment options for #kidneycancer. 
Visit the IKCC's InfoHub to learn more about clinical trials. https://ikcc.org/infohubpost/clinical-trials/

Studies show patients and their doctors don't talk nearly enough about treatment options -- including access to clinical trials -- and that better conversations and shared decision-making lead to better treatment options with fewer side effects.

On #WorldKidneyCancerDay, we want to share resources to help you learn about clinical trials and treatment options for #kidneycancer.

Visit the IKCC's InfoHub to learn more about clinical trials. https://ikcc.org/infohubpost/clinical-trials/
...

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On #WorldKidneyCancerDay, KidneyCAN wants you to know how important it is to discuss your treatment options with your doctor. On July 19th, we're hosting a Town Hall event for patients and caregivers to learn about clinical trials as a treatment option at any point in your care for cancer.  Join us to learn the basics of the clinical trial process and why trial participation can make sense anywhere along your treatment journey. Consents, endpoints, patient rights, and how trial participation affects your clinical care are all part of this discussion with two leading clinical investigators. 
Register for this free webinar at https://kidneycan.org/clinical-trials-for-kidney-cancer/
#WKCD #acceleratingcures

On #WorldKidneyCancerDay, KidneyCAN wants you to know how important it is to discuss your treatment options with your doctor. On July 19th, we're hosting a Town Hall event for patients and caregivers to learn about clinical trials as a treatment option at any point in your care for cancer. Join us to learn the basics of the clinical trial process and why trial participation can make sense anywhere along your treatment journey. Consents, endpoints, patient rights, and how trial participation affects your clinical care are all part of this discussion with two leading clinical investigators.

Register for this free webinar at https://kidneycan.org/clinical-trials-for-kidney-cancer/

#WKCD #acceleratingcures
...

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Studies show kidney cancer patients and their doctors aren't currently having the conversations they should be about kidney cancer treatment options, including access to clinical trials. And treatment outcomes are sometimes compromised as a result.
Sometimes its because patients don't feel they can question their doctors. Other times its because doctors don't want to overwhelm their patients, or their appointments are too short.
That's why the theme for World Kidney Cancer Day 2022 is "We need to talk about treatment options." The International Kidney Cancer Coalition (IKCC) has created a downloadable PDF of the six questions every kidney cancer patient should feel able to ask their cancer care team. 
Find it here: https://www.worldkidneycancerday.org/

Studies show kidney cancer patients and their doctors aren't currently having the conversations they should be about kidney cancer treatment options, including access to clinical trials. And treatment outcomes are sometimes compromised as a result.

Sometimes its because patients don't feel they can question their doctors. Other times its because doctors don't want to overwhelm their patients, or their appointments are too short.

That's why the theme for World Kidney Cancer Day 2022 is "We need to talk about treatment options." The International Kidney Cancer Coalition (IKCC) has created a downloadable PDF of the six questions every kidney cancer patient should feel able to ask their cancer care team.

Find it here: https://www.worldkidneycancerday.org/
...

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Latest News

Dr. Brandon Manley: Physician, Scientist, Advocate

Dr. Brandon Manley: Physician, Scientist, Advocate

Brandon Manley, M.D., is a urologic oncologist who specializes in genitourinary oncology, with a focus on patients with kidney cancer. He currently practices at Moffitt Cancer Center in Tampa, Florida, where he lives with his wife Aimee, and his two daughters Sadie and Brooklyn. The family enjoys...

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Latest News

Dr. Brandon Manley: Physician, Scientist, Advocate

Dr. Brandon Manley: Physician, Scientist, Advocate

Brandon Manley, M.D., is a urologic oncologist who specializes in genitourinary oncology, with a focus on patients with kidney cancer. He currently practices at Moffitt Cancer Center in Tampa, Florida, where he lives with his wife Aimee, and his two daughters Sadie and Brooklyn. The family enjoys...

Patient Resource Center

UNDERSTANDING YOUR KIDNEY CANCER DIAGNOSIS

BUILDING YOUR CARE TEAM

TREATMENT & TRIAL OPTIONS
LIVING WELL WITH KIDNEY CANCER

CLINICAL TRIALS →

IMMUNOTHERAPY →

KCRS: KIDNEY CANCER RESEARCH SUMMIT →

RESEARCH OPPORTUNITIES →

NEWS →

Latest News

Dr. Brandon Manley: Physician, Scientist, Advocate

Dr. Brandon Manley: Physician, Scientist, Advocate

Brandon Manley, M.D., is a urologic oncologist who specializes in genitourinary oncology, with a focus on patients with kidney cancer. He currently practices at Moffitt Cancer Center in Tampa, Florida, where he lives with his wife Aimee, and his two daughters Sadie and Brooklyn. The family enjoys...

SUPPORT OUR WORK →

FUNDRAISE FOR KIDNEYCAN →

DONATE →

CONTACT →

Latest News

Remembering Ralph: Time Well Spent

Remembering Ralph: Time Well Spent

Ralph Knapp was diagnosed in 2014 with stage IV kidney cancer and used the opportunity to increase research funding and bring hope to patients everywhere. With heavy hearts and profound sadness, we announce the passing of Ralph Knapp, a founder of KidneyCAN and leader of our mission to accelerate...