A diagnosis of kidney cancer can be overwhelming, and finding information to get started is difficult at first. We have put together resources to help you form a plan for a newly-diagnosed renal mass.
YOUR DIAGNOSIS
Start here for information about kidney cancer diagnosis and testing, including types of kidney cancer and terms to know.
Building Your Care Team
TREATMENTS & TRIAL OPTIONS
Learn about how you could take part in kidney cancer treatments and trials.
LIVING WELL WITH KIDNEY CANCER
This will look different for everyone, but learn how to manage these changes and live life to the full.
Take a breath. Don’t go to the internet and read outdated statistics. Medicines and treatments are changing daily, weekly. Find a care team that you can trust.
I recommend SmartPatients.com for everybody; there’s a place for you on Smart Patients. You’ll hear from other patients, you’ll hear from professionals.
– Gary C.,
advice to a new kidney cancer patient
Connect with Our Communities
There are multiple support groups serving the kidney cancer community. SmartPatients.com is a patient forum and a KidneyCAN partner. We recommend this as a private, moderated place to talk with other patients. Your cancer center may also have their own support groups.
PATIENT News
Chuck Stravin: “With Time Comes Hope”
Chuck Stravin is married to his high school sweetheart, Liz, and lives in Quincy, Massachusetts, just south of Boston. Diagnosed with advanced renal cancer in 2015, Chuck is beating the odds and has become a passionate advocate for kidney cancer research funding. ...
Lenny and Phyllis: “We Need to Keep Up the Fight”
Phyllis was diagnosed with kidney cancer in 2012. Tumors were found on both kidneys and treated with surgery. Her cancer progessed to stage IV in 2014, but Phyllis says, "Here I am, ten years later! Life has changed, but it is good!" For this month's Community...
Rock the Run for Kidney Cancer Research Funding
KidneyCAN had the first ever Rock the Run 5k fundraiser in October 2022. This is part of the group of KCRS22 attendees who walked and ran with us at dawn before the second conference day began. KidneyCAN is proud to share the results of the first annual Rock the Run...
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Clinical trials for #kidneycancer can offer patients access to innovative treatments that may not yet be available elsewhere.
Learn more about the benefits of participating in a trial at the KidneyCAN Patient Resource Center: https://bit.ly/RCCTrials
#KidneyCancerAwareness #KidneyCancerSurvivor #KidneyCancerSupport #RenalCellCarcinoma #KidneyHealth #FightKidneyCancer #CancerCaregiver #CancerAwareness #CancerSurvivor #CancerCommunity #EndCancer
Mar 23
Clinical trials for #kidneycancer can offer patients access to innovative treatments that may not yet be available elsewhere.
Learn more about the benefits of participating in a trial at the KidneyCAN Patient Resource Center: https://bit.ly/RCCTrials
#KidneyCancerAwareness #KidneyCancerSurvivor #KidneyCancerSupport #RenalCellCarcinoma #KidneyHealth #FightKidneyCancer #CancerCaregiver #CancerAwareness #CancerSurvivor #CancerCommunity #EndCancer
Let`s talk about treatment options for #kidneycancer. Many patients undergo surgery as part of their treatment. In this video, leading kidney cancer experts from the top US cancer centers delve into the important role of surgery in treating renal cell carcinoma. They discuss the key factors that determine whether or not surgery is the right option for you, as well as the different types of surgical procedures and adjuvant therapies that may be recommended.
Whether you or a loved one has been diagnosed with kidney cancer, this video provides valuable insights and information to help you make informed decisions about your treatment options.
WATCH FULL VIDEO: https://youtu.be/q9xtPYOXMyw
VISIT PATIENT RESOURCE CENTER: www.kidneycan.org
#KidneyCancer #KidneyCancerAwareness #KidneyCancerSurvivor #KidneyCancerSupport #RenalCellCarcinoma #KidneyHealth #FightKidneyCancer #CancerCaregiver #CancerAwareness #CancerSurvivor #CancerCommunity #EndCancer
Mar 21
Let`s talk about treatment options for #kidneycancer. Many patients undergo surgery as part of their treatment. In this video, leading kidney cancer experts from the top US cancer centers delve into the important role of surgery in treating renal cell carcinoma. They discuss the key factors that determine whether or not surgery is the right option for you, as well as the different types of surgical procedures and adjuvant therapies that may be recommended.
Whether you or a loved one has been diagnosed with kidney cancer, this video provides valuable insights and information to help you make informed decisions about your treatment options.
WATCH FULL VIDEO: https://youtu.be/q9xtPYOXMyw
VISIT PATIENT RESOURCE CENTER: www.kidneycan.org
#KidneyCancer #KidneyCancerAwareness #KidneyCancerSurvivor #KidneyCancerSupport #RenalCellCarcinoma #KidneyHealth #FightKidneyCancer #CancerCaregiver #CancerAwareness #CancerSurvivor #CancerCommunity #EndCancer
Patients! Don`t miss this valuable webinar from our partners @TriageCancer!
🗓️ March 22
⏰ 8:30am PT/10:30am CT/11:30am ET
💻 FREE 90-minute webinar
Sign up at: https://triagecancer.org/webinars/medical-bills-2023
Mar 21
Patients! Don`t miss this valuable webinar from our partners @TriageCancer!
🗓️ March 22
⏰ 8:30am PT/10:30am CT/11:30am ET
💻 FREE 90-minute webinar
Sign up at: https://triagecancer.org/webinars/medical-bills-2023
During #KidneyCancerAwareness month, we want to highlight the importance of patient advocacy and access to the best care for #kidneycancer patients. Tracy`s wife, Julie, was diagnosed with stage three clear cell renal cell carcinoma in 2014.
Tracy shares their experiences from a caregiver perspective and emphasizes the importance of having a second set of ears and caregiver mental health. After Julie`s surgery, Tracy and Julie decided to move to Ohio, where they could access world-class hospital systems for Julie`s care.
READ: https://kidneycan.org/tracys-story-a-caregivers-perspective/
Join us this month in raising awareness and supporting those affected by kidney cancer! 🧡💚💪✨
Mar 20
During #KidneyCancerAwareness month, we want to highlight the importance of patient advocacy and access to the best care for #kidneycancer patients. Tracy`s wife, Julie, was diagnosed with stage three clear cell renal cell carcinoma in 2014.
Tracy shares their experiences from a caregiver perspective and emphasizes the importance of having a second set of ears and caregiver mental health. After Julie`s surgery, Tracy and Julie decided to move to Ohio, where they could access world-class hospital systems for Julie`s care.
READ: https://kidneycan.org/tracys-story-a-caregivers-perspective/
Join us this month in raising awareness and supporting those affected by kidney cancer! 🧡💚💪✨
A diagnosis of #kidneycancer can be overwhelming, but our Patient Resource Center is here to help!
We offer information on the different types of kidney cancer, surgical and non-surgical treatment options, and questions to ask at your appointments.
Learn more at https://bit.ly/CareTeamRCC
#KidneyCancerAwareness
Mar 19
A diagnosis of #kidneycancer can be overwhelming, but our Patient Resource Center is here to help!
We offer information on the different types of kidney cancer, surgical and non-surgical treatment options, and questions to ask at your appointments.
Learn more at https://bit.ly/CareTeamRCC
#KidneyCancerAwareness
Are you or a loved one seeking comprehensive care for #kidneycancer? Our interactive map can help you locate centers near you that offer advanced treatments and compassionate care.
Check it out now at kidneycan.org/map.
#KidneyCancerAwareness #KidneyCancerCare
Mar 18
Are you or a loved one seeking comprehensive care for #kidneycancer? Our interactive map can help you locate centers near you that offer advanced treatments and compassionate care.
Check it out now at kidneycan.org/map.
#KidneyCancerAwareness #KidneyCancerCare
Did you know that not all cancer centers are created equal?
If you`re newly diagnosed with #kidneycancer, it`s essential to understand the different types of cancer centers available and which may best fit your needs.
Our Patient Resource Center has more information to help you build the best care team to treat your disease. Check it out: https://bit.ly/CareTeamRCC
#KidneyCancerAwareness #acceleratingcures #RCC
Mar 18
Did you know that not all cancer centers are created equal?
If you`re newly diagnosed with #kidneycancer, it`s essential to understand the different types of cancer centers available and which may best fit your needs.
Our Patient Resource Center has more information to help you build the best care team to treat your disease. Check it out: https://bit.ly/CareTeamRCC
#KidneyCancerAwareness #acceleratingcures #RCC
Building a solid care team is critical if you or a loved one has been recently diagnosed with #kidneycancer.
Check out the Patient Resource Center at www.kidneycan.org for tips to help you do just that! Understand the different types of medical specialists and the role each will play in your care, locate the most experienced treatment centers, and get organized for your visits.
#KidneyCancerAwareness
Mar 17
Building a solid care team is critical if you or a loved one has been recently diagnosed with #kidneycancer.
Check out the Patient Resource Center at www.kidneycan.org for tips to help you do just that! Understand the different types of medical specialists and the role each will play in your care, locate the most experienced treatment centers, and get organized for your visits.
#KidneyCancerAwareness
Spotted on #CapitolHill! So grateful for the Honorable Rosa DeLauro`s support of #KidneyCancerAwarenessMonth!
As Ranking Member of the Appropriations Committee, she has shown unwavering commitment to funding critical #kidneycancer research.
Thank you for shining an orange light on this important cause! 🧡🎗️
#acceleratingcures
Mar 16
Spotted on #CapitolHill! So grateful for the Honorable Rosa DeLauro`s support of #KidneyCancerAwarenessMonth!
As Ranking Member of the Appropriations Committee, she has shown unwavering commitment to funding critical #kidneycancer research.
Thank you for shining an orange light on this important cause! 🧡🎗️
#acceleratingcures
This week, KidneyCAN advocates are on Capitol Hill meeting with members of Congress to ask for increased funding for #kidneycancer research.
We believe that patient advocacy and engagement are essential in advancing research and treatments.
As patients and survivors, caregivers, healthcare professionals and researchers, we are uniquely positioned to speak to the impact of this disease on our lives, and the need for robust funding for cancer research. That’s why we’re urging Congress to provide $60 million for the CDMRP Kidney Cancer Research Program.
We also believe that the National Institutes of Health and the National Cancer Institute are critical in advancing #medicalresearch. That’s why we’re urging Congress to provide $50.9 billion for the NIH, including $9.988 billion for the NCI.
Additionally, we’re advocating for long-term #telehealth legislation to ensure patients have access to care regardless of location. Telehealth is especially important for #cancer patients who need consistent monitoring and specialized care.
Finally, at KidneyCAN, we believe incorporating the #patientvoice on legislative policy matters is essential in #acceleratingcures and improving outcomes. We urge Congress to listen to the patient`s voice on matters of health care legislation.
We are committed to advocating for robust funding for medical research and advancing policies that promote clinical trial development and diversity in enrollment.
Join us in advocating for a brighter future for kidney cancer patients and survivors!
#KidneyCancerAwareness #FundtheCure
Mar 14
This week, KidneyCAN advocates are on Capitol Hill meeting with members of Congress to ask for increased funding for #kidneycancer research.
We believe that patient advocacy and engagement are essential in advancing research and treatments.
As patients and survivors, caregivers, healthcare professionals and researchers, we are uniquely positioned to speak to the impact of this disease on our lives, and the need for robust funding for cancer research. That’s why we’re urging Congress to provide $60 million for the CDMRP Kidney Cancer Research Program.
We also believe that the National Institutes of Health and the National Cancer Institute are critical in advancing #medicalresearch. That’s why we’re urging Congress to provide $50.9 billion for the NIH, including $9.988 billion for the NCI.
Additionally, we’re advocating for long-term #telehealth legislation to ensure patients have access to care regardless of location. Telehealth is especially important for #cancer patients who need consistent monitoring and specialized care.
Finally, at KidneyCAN, we believe incorporating the #patientvoice on legislative policy matters is essential in #acceleratingcures and improving outcomes. We urge Congress to listen to the patient`s voice on matters of health care legislation.
We are committed to advocating for robust funding for medical research and advancing policies that promote clinical trial development and diversity in enrollment.
Join us in advocating for a brighter future for kidney cancer patients and survivors!
#KidneyCancerAwareness #FundtheCure
