Making the Most of More Time:
Stories of Survivorship

A KidneyCAN Town Hall Event

In a moderated discussion, patients reflect on their kidney cancer diagnosis, living fully, getting support, and making the most of their time. 

➥ Missed the live webinar? Watch here!

WATCH NOW

This event has already taken place, but you can watch the full video here and find the resources mentioned and linked in the chat listed below.

If you are interested in hearing about more events like this, make sure you’re subscribed to our newsletter.

Resource Links from Topics Mentioned in the Program

Here are links to the resources for patients and caregivers mentioned in the program. Some resources were discussed by panelists, while others were brought up by attendees in the chat discussion.

More from the Panelists

Adam’s Essays

Laura’s Kidney Cancer Blog

Bryan’s Work to Fund Research

Mental Health Resources

Mindfulness for Coping with Cancer

Dealing with SCANXIETY

When Cancer Returns

Anxiety and Depression Checklist from NCI

“When you have cancer, there’s so much pressure to go out and DO SOMETHING every day. Sometimes just existing and being happy is a good day. Take the win when you can!”

– Panelist Laura Esfeller

KidneyCAN thanks all who participated in this special Town Hall event, including Dr. Evan Hall for masterful moderation, and our panelists for sharing their stories and perspectives. Thank you as well to our patient and caregiver community for providing insights and resources in the chat and community social that followed the Town Hall. 

Meet the Patient Panelists

Evan Hall | KidneyCAN Town Hall Moderator

ADAM STERN, M.D.

Psychiatrist,
Harvard Medical School

A distinguished psychiatrist at Harvard Medical School, Dr. Adam Stern’s journey took a twist when he transitioned from being a physician to a patient. Diagnosed with metastatic kidney cancer in 2018, he faced the challenge head-on and has spent the last five years undergoing multiple surgeries, ablations, and immunotherapy treatments to manage the disease.

Despite these hurdles, Adam returned to work full-time, pursued his passions in writing, cartooning, and podcasting, and celebrated the birth of his second child, who is now 2 1/2 years old.

Embodying resilience and optimism, he approaches each day with the determination to make the most of the time he’s been given and to position himself for good fortune. Adam attributes his perseverance to the exceptional care he has received and the unwavering support of his loving family.

Read more about Adam’s work here.

Laura Esfeller | KidneyCAN

Laura Esfeller

Patient Advocate, 
SWOG Cancer Research Network

Laura is a 35-year-old metastatic kidney cancer survivor and HLRCC patient who was diagnosed with kidney cancer at the age of 29. She is a writer, marketer, and cat fanatic. Laura loves the beach, music, traveling, and not having cancer. Born in Louisiana and now living in California, Laura is a statistical abnormality who fights for cures for kidney cancer.

Laura says cancer is “one big game of deception,” as it took years for doctors to diagnose her with kidney cancer. Her young age deceived them. Despite her cancer diagnosis, she maintains a positive outlook and is always candid about her struggles with the disease. Laura has undergone major surgery to remove her kidney and other organs, and has experienced multiple setbacks, including a diagnosis of metastatic kidney cancer. However, she has been in remission for six years, thanks in part to the Cabometyx drug, which she received through the through PAPMET/SWOG S1500 clinical trial.

In addition to her cancer advocacy work, Laura is also the Director of Marketing Services for the San Manuel Band of Mission Indians in California, where she oversees the production, account services, and copywriting teams within the brand marketing organization. Despite her busy schedule, Laura is committed to fighting for cures for kidney cancer and raising awareness about AYA (adolescent and young adult) cancer. You can read more on Laura’s blog here.

Bryan Lewis | KidneyCAN

Bryan Lewis

Co-Founder & President, 
KidneyCAN

Bryan’s journey with kidney cancer began in the summer of 2007 when he was only 46 years old and a new father to one-year-old twins.

Despite the disease spreading beyond local lymph nodes, Bryan and his wife chose to undergo surgery, thanks to the recommendation of a doctor who believed in his chances due to his age and overall health. After an arduous 13-hour operation, a week in intensive care, and weeks of recovery, Bryan’s three-month scans were clear. Today, he continues to show no evidence of disease (NED).

In 2013, a spark of inspiration from a good friend ignited Bryan’s passion for kidney cancer advocacy and the pursuit of cures for others. Grateful for the unwavering support from his wife, family, friends, and his faith in God, Bryan is proud of KidneyCAN’s success in raising research funding for kidney cancer and the growing community of researchers committed to providing better treatment options for those still in need.

Read more about Bryan’s work here.

An informed patient is an empowered patient.

We at KidneyCAN know how challenging it can be to keep up with research developments and how they could impact your treatment options. We hope the ideas presented in our Town Hall help you as you work with your doctor to manage your care for kidney cancer.

If you’re looking to connect with more people who share your challenges and can offer support, check out our Smart Patients forum.

This event supported by:

For Patients

Advocacy

Research

Join Our Grassroots Army

We know that awareness of kidney cancer and its impact on many lives leads to a sense of urgency, a desire for solutions. Awareness leads to advocacy, and advocacy — joining to speak as one voice — leads to funding and research. That’s how we get to cures.

Did you know? #KidneyCancer is the 6th most prevalent cancer in men and the 9th most prevalent cancer in women, yet it has been a historically underfunded area of research. 

We are working to change that, but we need your help! Join us with a couple hours of your time on Tuesday, March 12th! We're organizing meetings with Members of Congress to ask for robust funding for kidney cancer research. 

When you share your story, you make an impact!

Register to join us 👉https://bit.ly/2024KCAdvocacy

ps. New to advocacy? No worries! Our team provides you with training and a toolkit, so you show up to your meetings feeling ready!

Did you know? #KidneyCancer is the 6th most prevalent cancer in men and the 9th most prevalent cancer in women, yet it has been a historically underfunded area of research.

We are working to change that, but we need your help! Join us with a couple hours of your time on Tuesday, March 12th! We`re organizing meetings with Members of Congress to ask for robust funding for kidney cancer research.

When you share your story, you make an impact!

Register to join us 👉https://bit.ly/2024KCAdvocacy

ps. New to advocacy? No worries! Our team provides you with training and a toolkit, so you show up to your meetings feeling ready!
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🗓️ Today's the day! Join us at 1PM ET for a vital webinar on Managing Medical Bills & Getting Financial Help, hosted by our partners at Triage Cancer. 

Navigating the financial side of healthcare can be challenging. Let's tackle it together! Save your spot now at TriageCancer.org/Webinars. 

#MedicalBills #FinancialSupport #CancerCare

🗓️ Today`s the day! Join us at 1PM ET for a vital webinar on Managing Medical Bills & Getting Financial Help, hosted by our partners at Triage Cancer.

Navigating the financial side of healthcare can be challenging. Let`s tackle it together! Save your spot now at TriageCancer.org/Webinars.

#MedicalBills #FinancialSupport #CancerCare
...

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Every breakthrough in kidney cancer research begins with funding—and that’s where we step in. 

KidneyCAN, together with AACR, is excited to fund two $50,000 research grants. Your support helps us invest directly in new treatments that bring us closer to a cure. Thank you for being part of this crucial journey! 

More info: https://bit.ly/AACR-KidneyCAN-Grant

#AcceleratingCures #FundingCures #PatientDriven #KidneyCancerCare

Every breakthrough in kidney cancer research begins with funding—and that’s where we step in.

KidneyCAN, together with AACR, is excited to fund two $50,000 research grants. Your support helps us invest directly in new treatments that bring us closer to a cure. Thank you for being part of this crucial journey!

More info: https://bit.ly/AACR-KidneyCAN-Grant

#AcceleratingCures #FundingCures #PatientDriven #KidneyCancerCare
...

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Did you know? Access to specialized #kidneycancer care is a significant and expensive challenge in rural areas, but #telehealth can bridge this gap. 

KidneyCAN is advocating for robust telehealth legislation, and we need your voice on March 12th! Join our virtual advocacy day to ensure everyone has the care they deserve. 🧡💚

Register now: https://bit.ly/2024KCAdvocacy

Did you know? Access to specialized #kidneycancer care is a significant and expensive challenge in rural areas, but #telehealth can bridge this gap.

KidneyCAN is advocating for robust telehealth legislation, and we need your voice on March 12th! Join our virtual advocacy day to ensure everyone has the care they deserve. 🧡💚

Register now: https://bit.ly/2024KCAdvocacy
...

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📢 Attention #kidneycancer advocates in the following states! We need YOU!

VT ◦ KY ◦ AR ◦ MS ◦ NM ◦ WY ◦ UT ◦ ID ◦ AK ◦ HI ◦ NV ◦ OR ◦ ND ◦ SD ◦ NE ◦ WI

Your state urgently needs representation for our Virtual Advocacy Day on March 12th! 

Stand with KidneyCAN and make your voice heard for kidney cancer research funding. Advocacy takes just a little bit of your time, and we provide everything you need to succeed!

Sign up now: https://bit.ly/2024KCAdvocacy 

#BeTheChange #AcceleratingCures #CancerResearch #FundTheCure

📢 Attention #kidneycancer advocates in the following states! We need YOU!

VT ◦ KY ◦ AR ◦ MS ◦ NM ◦ WY ◦ UT ◦ ID ◦ AK ◦ HI ◦ NV ◦ OR ◦ ND ◦ SD ◦ NE ◦ WI

Your state urgently needs representation for our Virtual Advocacy Day on March 12th!

Stand with KidneyCAN and make your voice heard for kidney cancer research funding. Advocacy takes just a little bit of your time, and we provide everything you need to succeed!

Sign up now: https://bit.ly/2024KCAdvocacy

#BeTheChange #AcceleratingCures #CancerResearch #FundTheCure
...

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Get ready to be inspired! 🌟 

Join us for a live event with the new NCI Director, Dr. Kimryn Rathmell, on Feb 22 at 11:30 AM ET. 

As a #kidneycancer specialist, Dr. Rathmell's appointment is a significant moment for our community. Tune in to hear her vision and impact on cancer research. 

You can watch on Facebook Live at https://www.facebook.com/events/764377741828356/

#NCIDirectorLive #KidneyCancerCare #CancerResearch

Get ready to be inspired! 🌟

Join us for a live event with the new NCI Director, Dr. Kimryn Rathmell, on Feb 22 at 11:30 AM ET.

As a #kidneycancer specialist, Dr. Rathmell`s appointment is a significant moment for our community. Tune in to hear her vision and impact on cancer research.

You can watch on Facebook Live at https://www.facebook.com/events/764377741828356/

#NCIDirectorLive #KidneyCancerCare #CancerResearch
...

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🌐Spring Advocacy Days are coming up! We still need virtual participants on March 12th! No matter where you are, you can join KidneyCAN to advocate for #kidneycancer research funding. 

Your story has power! Share it with Congress from the comfort of your home to help us make progress. 

Learn more and sign up: https://bit.ly/2024KCAdvocacy 

#VirtualAdvocacy #KidneyCancerAction

🌐Spring Advocacy Days are coming up! We still need virtual participants on March 12th! No matter where you are, you can join KidneyCAN to advocate for #kidneycancer research funding.

Your story has power! Share it with Congress from the comfort of your home to help us make progress.

Learn more and sign up: https://bit.ly/2024KCAdvocacy

#VirtualAdvocacy #KidneyCancerAction
...

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🎥 The full recording of KidneyCAN's latest Town Hall is now available on YouTube! 

Join Uromigos Drs. Brian Rini and Tom Powles as they provide exclusive insights into #kidneycancer research advancements. Perfect for patients, caregivers, and professionals seeking the latest info. 

Watch now and stay informed! ➡️ https://youtu.be/aIMbUp0Fan0

#KidneyCANTownHall #Uromigos #RCC #CancerNews #KidneyCancerAwareness #ResearchUpdates

🎥 The full recording of KidneyCAN`s latest Town Hall is now available on YouTube!

Join Uromigos Drs. Brian Rini and Tom Powles as they provide exclusive insights into #kidneycancer research advancements. Perfect for patients, caregivers, and professionals seeking the latest info.

Watch now and stay informed! ➡️ https://youtu.be/aIMbUp0Fan0

#KidneyCANTownHall #Uromigos #RCC #CancerNews #KidneyCancerAwareness #ResearchUpdates
...

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Exciting news from KidneyCAN! 🌟 

In partnership with AACR, we're directly funding two $50,000 research grants to advance #kidneycancer treatments. It's a big leap toward new breakthroughs, and it's all thanks to the support of our incredible community. (Psst -- that's YOU!)

Together, we're powering the journey to cures. 

Details here: https://bit.ly/AACR-KidneyCAN-Grant

#AcceleratingCures #KidneyCancerResearch #CommunityImpact #RCC

Exciting news from KidneyCAN! 🌟

In partnership with AACR, we`re directly funding two $50,000 research grants to advance #kidneycancer treatments. It`s a big leap toward new breakthroughs, and it`s all thanks to the support of our incredible community. (Psst -- that`s YOU!)

Together, we`re powering the journey to cures.

Details here: https://bit.ly/AACR-KidneyCAN-Grant

#AcceleratingCures #KidneyCancerResearch #CommunityImpact #RCC
...

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We are gearing up for tonight's Town Hall to review the latest #kidneycancer research with the Uromigos! You won't want to miss their trademark wit and debate as they cover 2023 research breakthroughs and look ahead to what we can expect in 2024. 

➡️ Renowned Experts: Brian Rini & Tom Powles
➡️ 6:00-7:00 pm ET
➡️ FREE Zoom webinar
➡️ Register for access: https://bit.ly/UromigosTownHall

Pro tip #1:  If you email us at 6 pm asking for the link, we will have trouble letting you in ... register now to get the link in your inbox, and you won't miss a thing!

Pro tip #2: If you want to see this but can't catch it live, register! You will get a link to the video as soon as it's available. 

Looking forward to a great event! See you tonight!

#AcceleratingCures #TownHall #CancerResearch #KidneyCancer #RCC #KidneyCancerResearch #Uromigos #2023Research #2024Outlook #CancerAwareness #MedicalResearch #ImmunotherapyAdvances #Immunotherapy #Biomarkers

We are gearing up for tonight`s Town Hall to review the latest #kidneycancer research with the Uromigos! You won`t want to miss their trademark wit and debate as they cover 2023 research breakthroughs and look ahead to what we can expect in 2024.

➡️ Renowned Experts: Brian Rini & Tom Powles
➡️ 6:00-7:00 pm ET
➡️ FREE Zoom webinar
➡️ Register for access: https://bit.ly/UromigosTownHall

Pro tip #1: If you email us at 6 pm asking for the link, we will have trouble letting you in ... register now to get the link in your inbox, and you won`t miss a thing!

Pro tip #2: If you want to see this but can`t catch it live, register! You will get a link to the video as soon as it`s available.

Looking forward to a great event! See you tonight!

#AcceleratingCures #TownHall #CancerResearch #KidneyCancer #RCC #KidneyCancerResearch #Uromigos #2023Research #2024Outlook #CancerAwareness #MedicalResearch #ImmunotherapyAdvances #Immunotherapy #Biomarkers
...

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Scarlett Talcott, a vibrant 11-year-old from southern Montana, stands confidently in front of the Capitol Building during KidneyCAN's Advocacy Day. Living on a ranch with her parents, sister, and two brothers, Scarlett balances her love for the arts, crafting, and 4-H activities with a strong...

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