Kidney Cancer Advocacy Days
Spring 2022
In 2016, Congress allocated $0 in funding dedicated to kidney cancer research. Through the power of advocacy, we have raised that number to $135 million in five years.
On March 7–8, our Spring Advocacy Days event was held, and we asked Congress to continue funding lifesaving research for kidney cancer patients.
We need people like YOU to join us at our next event!
NO EXPERIENCE NECESSARY!
We provide training with Advocacy 101, a detailed guide to help you know what to expect and how to talk to your representatives about kidney cancer research funding. You will receive a meeting schedule, talking points, scripts you can use if you would like, and leave-behind documents.
If you have any questions, please reach out! We welcome anyone with a passion for accelerating cures for kidney cancer. Contact our Legislative Patient Advocacy Lead, Debra Beyhan, at [email protected].
Spring Advocacy Days 2022 by the Numbers
Advocates
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States
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This money isn’t a given. We’ve had to fight for it, year after year. In this video, Dr. Andrew Smith, a kidney cancer researcher from the University of Alabama, explains the impact of this funding on his work and the state of Alabama.
When you meet with Congress, you’ll help them understand the impact of kidney cancer on people’s lives and the urgent need for a cure. Join us and make your voice heard!
Join Our Grassroots Army
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Join us to learn the basics of the clinical trial process and why trial participation can make sense anywhere along your treatment journey.
Register now to get your questions included in the program!
https://kidneycan.org/clinical-trials-for-kidney-cancer/
Managing medication dose vs. side effects is a common stressor for #kidneycancer patients. Dr. Hans Hammers of @utswcancer breaks down dosing for patients and gives tips for patients when communicating with their docs.
WATCH: https://youtu.be/frjlpzQmFxg
#KidneyCANDID #acceleratingcures #livingwithcancer #cancerlife
It's not too late to join @TriageCancer for an empowering webinar for patients and caregivers.
Learn how YOU can make a difference for those living with #cancer.
“Engaging in Policy & Legislative Advocacy”
TODAY! June 21, 2022
10am PT | 12pm CT | 1pm ET
Register: https://triagecancer.org/webinarreg-advocacy
We are winding down #WorldKidneyCancerDay in the United States, but you still have more opportunities to learn about #clinicaltrials as a treatment option for #kidneycancer.
Plan to join us on July 19th for this free webinar featuring two leading #kidneycancer researchers. We will discuss the basics of the clinical trial process and why trial participation can make sense anywhere along your treatment journey.
Register at www.kidneycan.org!
Many patients are surprised to be offered a #clinicaltrial as an option for their first treatment for #kidneycancer. At large cancer centers, you may be offered a trial for any needed treatment change. Your oncologist may even suggest travel so you can access a new therapy years before it is FDA-approved.
Clinical trials are how we make progress in our mission to #acceleratecures for kidney cancer. It is a myth that trials are only for patients seeking a last resort.
We hope you have found our #WorldKidneyCancerDay resources helpful, and we really hope you'll use them to have a conversation with your care team about your treatment options.
#WKCD #livingwithcancer
Depending on your #kidneycancer type, its stage, and your quality of life priorities, a range of treatment options may be available to you. Studies show the best outcomes are when patients and doctors make treatment decisions together. But currently, not enough conversations are happening.
That's why the theme for this year's #WorldKidneyCancerDay is "We need to talk about treatment options."
Learn more at https://www.worldkidneycancerday.org/
Studies show patients and their doctors don't talk nearly enough about treatment options -- including access to clinical trials -- and that better conversations and shared decision-making lead to better treatment options with fewer side effects.
On #WorldKidneyCancerDay, we want to share resources to help you learn about clinical trials and treatment options for #kidneycancer.
Visit the IKCC's InfoHub to learn more about clinical trials. https://ikcc.org/infohubpost/clinical-trials/
On #WorldKidneyCancerDay, KidneyCAN wants you to know how important it is to discuss your treatment options with your doctor. On July 19th, we're hosting a Town Hall event for patients and caregivers to learn about clinical trials as a treatment option at any point in your care for cancer. Join us to learn the basics of the clinical trial process and why trial participation can make sense anywhere along your treatment journey. Consents, endpoints, patient rights, and how trial participation affects your clinical care are all part of this discussion with two leading clinical investigators.
Register for this free webinar at https://kidneycan.org/clinical-trials-for-kidney-cancer/
#WKCD #acceleratingcures
Studies show kidney cancer patients and their doctors aren't currently having the conversations they should be about kidney cancer treatment options, including access to clinical trials. And treatment outcomes are sometimes compromised as a result.
Sometimes its because patients don't feel they can question their doctors. Other times its because doctors don't want to overwhelm their patients, or their appointments are too short.
That's why the theme for World Kidney Cancer Day 2022 is "We need to talk about treatment options." The International Kidney Cancer Coalition (IKCC) has created a downloadable PDF of the six questions every kidney cancer patient should feel able to ask their cancer care team.
Find it here: https://www.worldkidneycancerday.org/
Today, on #WorldKidneyCancerDay, we are discussing the challenges and opportunities involved in having better conversations about #kidneycancer treatment options. How can we do better?
A key issue here in the United States is equitable access to clinical trials and serving underrepresented populations. Helping patients understand clinical trials -- how to ask about them and where to find them -- is a big step forward.
#WKCD #livingwithcancer #acceleratingcures
