KidneyCAN participates in Advocacy Days in Washington D.C. every year, joining advocates from around the country to make the voices of the kidney cancer community heard on Capitol Hill. These events offer a unique opportunity to meet with members of Congress and their staff to discuss issues that are important to our community and advocate for increased funding for kidney cancer research. You have missed Spring Advocacy Days but please consider joining us in this Fall.
We provide training with Advocacy 101, a detailed guide to help you know what to expect and how to talk to your representatives about kidney cancer research funding. You will receive a meeting schedule, talking points, scripts you can use if you would like, and leave-behind documents.
After she died in 2023, I found an even greater need to continue to advocate for funding for new and innovative treatments. I have met the most courageous people, both patients and family members, and have made new friends through our efforts.
Most recently, our team filled in for a patient advocate from another state who had died in 2024 and I felt honored to be able to continue that very brave person’s efforts. Meeting the researchers who are making incredible inroads in RCC treatment and hearing how vital our advocacy is for them to continue their work, has been insightful and rewarding.”
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