Kidney Cancer Advocacy Days
Spring 2023
KidneyCAN participates in Advocacy Days in Washington D.C. every year, joining other advocates from around the country to make the voices of the kidney cancer community heard on Capitol Hill. These events offer a unique opportunity to meet with members of Congress and their staff to discuss issues that are important to our community and advocate for increased funding for kidney cancer research.
Our goals in participating in Advocacy Days events are simple but critical: we want to advocate for increased funding for kidney cancer research and ensure that the patient voice is heard in matters of healthcare legislation.
This year, we are asking Congress to support a $60 million appropriation for the Kidney Cancer Research Program (KCRP), $50.9 billion for the National Institutes of Health (NIH) including a $9.988 billion appropriation for the National Cancer Institute (NCI), and long-term telehealth legislation.
We believe that by increasing funding for research, we can accelerate the development of new treatments and ultimately find a cure for kidney cancer. Additionally, by ensuring that the patient voice is heard in matters of healthcare legislation, we can work to promote clinical trial development and diversity in enrollment, which will bring us closer to our goal of accelerating cures.
OUR 2024 ASKS
$60 million appropriation for KCRP for Fiscal Year 2024 (FY24).
$50.9 billion for the NIH including $9.988 billion appropriation for the NCI.
Long-term telehealth legislation.
Robust, sustainable funding for medical research and incorporate the patient voice on legislative policy matters, particularly those promoting clinical trial development, diversity in enrollment, and accelerating cures.
Spring Advocacy Days 2023 by the Numbers
138
ADVOCATES
42
STATES
186
CONGRESSIONAL MEETINGS
NO EXPERIENCE NECESSARY!
All patients, families, caregivers, friends, and medical professionals welcome. Most advocates will meet virtually with their representatives and Congressional staff in their home districts to ask for research funding.
We provide training with Advocacy 101, a detailed guide to help you know what to expect and how to talk to your representatives about kidney cancer research funding. You will receive a meeting schedule, talking points, scripts you can use if you would like, and leave-behind documents.
If you have any questions, please reach out! We welcome anyone with a passion for accelerating cures for kidney cancer. Contact our Legislative Patient Advocate, Debra Beyhan, at debra.beyhan@kidneycan.org.
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WE NEED YOU
This money isn’t a given. We’ve had to fight for it, year after year. In this video, Dr. Andrew Smith, a kidney cancer researcher from the University of Alabama, explains the impact of this funding on his work and the state of Alabama.
When you meet with Congress, you’ll help them understand the impact of kidney cancer on people’s lives and the urgent need for a cure. Join us and make your voice heard!
Join Our Grassroots Army
Join Us!
💚June 15th is #WorldKidneyCancerDay. This year, we`re talking about how to live well when you have kidney cancer.
A #kidneycancer diagnosis can impact your emotional health, which in turn can affect your relationships. This is a life-changing experience, and you may need to adjust household and extended family roles. At our Patient Resource Center, we’ve gathered resources to guide you as you share your diagnosis, communicate with others, and seek support.
Learn more: https://bit.ly/LivingWellRCC
Jun 8
💚June 15th is #WorldKidneyCancerDay. This year, we`re talking about how to live well when you have kidney cancer.
A #kidneycancer diagnosis can impact your emotional health, which in turn can affect your relationships. This is a life-changing experience, and you may need to adjust household and extended family roles. At our Patient Resource Center, we’ve gathered resources to guide you as you share your diagnosis, communicate with others, and seek support.
Learn more: https://bit.ly/LivingWellRCC
🌍 #WorldKidneyCancerDay is coming up!
IKCC is hosting a Global Patient and Caregiver Symposium on June 15th to discuss living well with #kidneycancer. We`re excited to join and learn together.
Don`t miss out! Register here: https://www.worldkidneycancerday.org/register/
Being diagnosed with and treated for kidney cancer will change many facets of your life. KidneyCAN provides information and support to help you manage your stress and improve your health and well-being at our Patient Resource Center: https://bit.ly/LivingWellRCC
#AcceleratingCures #LivingWellwithCancer
Jun 8
🌍 #WorldKidneyCancerDay is coming up!
IKCC is hosting a Global Patient and Caregiver Symposium on June 15th to discuss living well with #kidneycancer. We`re excited to join and learn together.
Don`t miss out! Register here: https://www.worldkidneycancerday.org/register/
Being diagnosed with and treated for kidney cancer will change many facets of your life. KidneyCAN provides information and support to help you manage your stress and improve your health and well-being at our Patient Resource Center: https://bit.ly/LivingWellRCC
#AcceleratingCures #LivingWellwithCancer
📣 World Kidney Cancer Day is on June 15th!
This year`s theme is "Living Well with Kidney Cancer." Join our partners and us at IKCC for the Global Patient and Caregiver Symposium to learn more about maintaining your quality of life while managing #kidneycancer.
Register here: https://www.worldkidneycancerday.org/register/
In the meantime, check out our Patient Resource Center for more resources to help you feel your best while coping with kidney cancer: https://bit.ly/LivingWellRCC
#WorldKidneyCancerDay #AcceleratingCures #LivingWellwithCancer
Jun 7
📣 World Kidney Cancer Day is on June 15th!
This year`s theme is "Living Well with Kidney Cancer." Join our partners and us at IKCC for the Global Patient and Caregiver Symposium to learn more about maintaining your quality of life while managing #kidneycancer.
Register here: https://www.worldkidneycancerday.org/register/
In the meantime, check out our Patient Resource Center for more resources to help you feel your best while coping with kidney cancer: https://bit.ly/LivingWellRCC
#WorldKidneyCancerDay #AcceleratingCures #LivingWellwithCancer
Don`t miss this insightful video featuring Dr. Eric Jonasch from MD Anderson Cancer Center discussing brain metastases in #kidneycancer. Learn about:
· early indicators
· the importance of brain MRIs
· treatment options like SRS and surgery
· the effectiveness of existing drug treatments
Stay informed and empowered on this critical topic. Watch the full video on YouTube: https://youtu.be/q7c-YV85oso
May 31
Don`t miss this insightful video featuring Dr. Eric Jonasch from MD Anderson Cancer Center discussing brain metastases in #kidneycancer. Learn about:
· early indicators
· the importance of brain MRIs
· treatment options like SRS and surgery
· the effectiveness of existing drug treatments
Stay informed and empowered on this critical topic. Watch the full video on YouTube: https://youtu.be/q7c-YV85oso
🇺🇸 Honoring Heroes on Memorial Day 🇺🇸
Today, on #MemorialDay, we remember and honor the brave men and women who made the ultimate sacrifice while serving our country. We pay tribute to their courage, dedication, and selflessness in defending our freedoms.
As we commemorate this day, it is essential to recognize that many service-related deaths result from diseases, specifically #kidneycancer, linked to exposures during military service. We stand with our veterans and their families, offering support and resources to navigate their healthcare journeys.
Visit our Kidney Cancer and the Military page in the Patient Resource Center, where we share powerful stories from veterans affected by cancer due to exposure while serving. These stories highlight the significance of the recently passed PACT Act, which provides recognition, validation, and medical aid for service-related chemical injuries.
https://bit.ly/MiltaryandKidneyCancer
Today, let us honor our fallen heroes and also support our living heroes by ensuring they receive the care and benefits they deserve. Together, we can continue to advocate for improved healthcare access and research advancements, while standing in solidarity with our military community.
#MemorialDay #RememberingOurHeroes #VeteransStories #PACTAct #supportourheroes
May 29
🇺🇸 Honoring Heroes on Memorial Day 🇺🇸
Today, on #MemorialDay, we remember and honor the brave men and women who made the ultimate sacrifice while serving our country. We pay tribute to their courage, dedication, and selflessness in defending our freedoms.
As we commemorate this day, it is essential to recognize that many service-related deaths result from diseases, specifically #kidneycancer, linked to exposures during military service. We stand with our veterans and their families, offering support and resources to navigate their healthcare journeys.
Visit our Kidney Cancer and the Military page in the Patient Resource Center, where we share powerful stories from veterans affected by cancer due to exposure while serving. These stories highlight the significance of the recently passed PACT Act, which provides recognition, validation, and medical aid for service-related chemical injuries.
https://bit.ly/MiltaryandKidneyCancer
Today, let us honor our fallen heroes and also support our living heroes by ensuring they receive the care and benefits they deserve. Together, we can continue to advocate for improved healthcare access and research advancements, while standing in solidarity with our military community.
#MemorialDay #RememberingOurHeroes #VeteransStories #PACTAct #supportourheroes
A gorgeous day in DC! KidneyCAN joined partner organizations to speak to freshman reps in Congress about the need for CDMRP funding. Thanks to all who joined us!
#AcceleratingCures
May 18
A gorgeous day in DC! KidneyCAN joined partner organizations to speak to freshman reps in Congress about the need for CDMRP funding. Thanks to all who joined us!
#AcceleratingCures
📸 Capturing meaningful connections! Our KidneyCAN team had the privilege of engaging with patients and guests at the "Together Facing Genitourinary Cancer" workshop at Fox Chase Cancer Center last night. Patients also heard from experts on promising treatments for #GUcancers.
We`re proud to provide valuable resources and support to those affected by #kidneycancer! Thank you to FCCC for having us at this event.
May 12
📸 Capturing meaningful connections! Our KidneyCAN team had the privilege of engaging with patients and guests at the "Together Facing Genitourinary Cancer" workshop at Fox Chase Cancer Center last night. Patients also heard from experts on promising treatments for #GUcancers.
We`re proud to provide valuable resources and support to those affected by #kidneycancer! Thank you to FCCC for having us at this event.
We recently caught up with one of our favorites, Dr. Alexander Kutikov of Fox Chase Cancer Center, at the American Urological Association meeting. Tonight, we`re back at Fox Chase for "Together Facing Genitourinary Cancer," a free educational workshop for patients and caregivers.
The program will feature a panel of Fox Chase clinicians and researchers discussing promising treatments for bladder, kidney, and prostate cancer. KidneyCAN, along with industry partners and Fox Chase special services, will also participate in the event by providing helpful resources.
If you`re near Philly, come join us tonight! Info at https://www.foxchase.org/TogetherFacingGUCancer2023
May 11
We recently caught up with one of our favorites, Dr. Alexander Kutikov of Fox Chase Cancer Center, at the American Urological Association meeting. Tonight, we`re back at Fox Chase for "Together Facing Genitourinary Cancer," a free educational workshop for patients and caregivers.
The program will feature a panel of Fox Chase clinicians and researchers discussing promising treatments for bladder, kidney, and prostate cancer. KidneyCAN, along with industry partners and Fox Chase special services, will also participate in the event by providing helpful resources.
If you`re near Philly, come join us tonight! Info at https://www.foxchase.org/TogetherFacingGUCancer2023
"I`m not going to be pre-cancer Laura ever again. I happen to quite like post-cancer Laura, actually, so that`s a good thing."
🧡💚💪✨
At our recent Town Hall, we heard from the best experts -- patients who understand the challenges of living with #kidneycancer. We also learned about strategies for coping and thriving despite the uncertainties. Watch the recording now for inspiration and hope!
WATCH: https://youtu.be/gdYKrEL7OjM
Additional resources for patients at www.kidneycan.org
#kidneycancer #KidneyCAN #TownHall #RCC #survivorship
May 3
"I`m not going to be pre-cancer Laura ever again. I happen to quite like post-cancer Laura, actually, so that`s a good thing."
🧡💚💪✨
At our recent Town Hall, we heard from the best experts -- patients who understand the challenges of living with #kidneycancer. We also learned about strategies for coping and thriving despite the uncertainties. Watch the recording now for inspiration and hope!
WATCH: https://youtu.be/gdYKrEL7OjM
Additional resources for patients at www.kidneycan.org
#kidneycancer #KidneyCAN #TownHall #RCC #survivorship
Looking for inspiration and hope on your #kidneycancer journey? Join us for our Town Hall event on Tuesday, featuring stories of survivorship from three patients.
Register now for this free virtual webinar: https://bit.ly/RCCSurvivorship
#rcc #cancersurvivorship #hope
Apr 22
Looking for inspiration and hope on your #kidneycancer journey? Join us for our Town Hall event on Tuesday, featuring stories of survivorship from three patients.
Register now for this free virtual webinar: https://bit.ly/RCCSurvivorship
#rcc #cancersurvivorship #hope
