In March of 2019, KidneyCAN sponsored the Kidney Cancer Advocacy Day in D.C. This successful event was attended by more than 20 kidney cancer patient advocates from various parts of the country.

We had more than 50 Capitol Hill appointments with our respective elected representatives. Our delegates represented the states of New Jersey, New York, Delaware, Massachusetts, Maine, Virginia, Pennsylvania, Indiana, and Georgia.

Our main legislative “ask” was to support robust, sustainable funding for the National Institutes of Health (NIH) and for an increase to the Kidney Cancer Research Program (KCRP) pursuant to the Congressionally Directed Medical Research Program (CDMRP) Department of Defense.

These days provide us with an important opportunity to let our reps hear how needed funding is for kidney cancer research. When we lift our voices, we get results! This year, Congress has approved $40 million in funding for kidney cancer research.

We are heading back to the Hill in March of 2020, and we need all hands on deck for this event! Our Spring 2020 D.C. Advocacy Days will take place on March 9th and 10th.

You do not need to be an “expert” in medicine, research, or the legislative process. We benefit when all members of the kidney cancer community share their stories. To get an idea of what it’s like to be an advocate, check out our 2019 spring advocacy agenda.

We’re always looking for advocates, so if you’re interested in participating in our next Capitol Hill day contact us HERE. We would love to hear from you.

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Deb Beyhan is the Patient Legislative Advocate for KidneyCAN. She was diagnosed with stage IV kidney cancer in 2016 at the age of 53. Deb lives outside of Atlanta, GA, with her husband.    For this month's Community Spotlight, we want to tell you about a member of our volunteer team, Deb Beyhan....

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District Days: Asking Congress to Fund Kidney Cancer Research

On August 8-9th, KidneyCAN gathered advocates from all over the United States to ask Congress for robust funding for kidney cancer research through the NIH and CDMRP (Congressionally Directed Medical Research Programs). Read on to hear about our goals for this event and how you can help fund...

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The 2022 Kidney Cancer Research Summit

Dr. Laurence Albiges (Institut Gustave Roussy) presents on the microbiome at KCRS22. The microbiome has now been recognized as one of the emerging hallmarks and enabling characteristics of cancer. KidneyCAN hosted the 4th Annual Kidney Cancer Research Summit on October 6-7, 2022  live in...

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Rock the Run for Kidney Cancer Research Funding

Rock the Run for Kidney Cancer Research Funding

KidneyCAN had the first ever Rock the Run 5k fundraiser in October 2022. This is part of the group of KCRS22 attendees who walked and ran with us at dawn before the second conference day began. KidneyCAN is proud to share the results of the first annual Rock the Run 5K fundraiser. Our Purpose...