Raising Awareness
Speak up with us!
Kidney cancer research is underfunded
40 Lives per day
This year, more than 76,000 Americans will be diagnosed with kidney cancer and almost 14,000 kidney cancer patients will lose their lives. The need for research and additional treatment options is urgent.
A Poor Prognosis
Despite amazing strides in kidney cancer treatment, the prognosis for those with stage IV disease remains poor. The five-year survival rate is just under 10%.
More work needs doing, and we advocate to fund that work.
FUNDING HAPPENS IN D.C.
Every year, lobbyists flood Washington, D.C., to ensure that their interests get prioritized when Congress appropriates funding. In this video, KidneyCAN President Bryan Lewis explains how you have to speak up and get a seat at that table — otherwise, “you’re on the menu.”
A TELLING COMPARISON
Melanoma and kidney cancer have long been considered sister diseases. Both have dire prognoses and a very poor response to traditional chemotherapy and radiation therapy. Both are among the most responsive of all cancers to immunotherapy.
Statistics show 40% more patients die from kidney cancer each year than melanoma. However, in recent years, melanoma research has received in both private funding and federal grants many times the funding for kidney cancer research.
Ready to Fight?
There are so many ways you can help. We need your voice! If every person impacted by kidney cancer did a little to speak up for the community, we would be impossible to ignore.
Join Our Grassroots Army
Join Us!
Recently diagnosed with COVID-19? Bristol Myers Squibb's COVID treatment trial -- mAb Duo -- is now up and live on the NIH Rise Above COVID site for patients. This Phase 2 trial is for COVID-positive patients experiencing symptoms who are standard risk to progressing (not only high risk patients). The Phase 2 trial enrollment is now live in the US at 53 sites.
You may already know that we at KidneyCAN are big proponents for clinical trials. Here's why:
Why should I join a clinical trial?
Clinical trials are part of clinical research and at the heart of all medical advances. Clinical trials look at new ways to prevent, detect, or treat disease.
Treatments might be new drugs or new combinations of drugs, new surgical procedures or devices, or new ways to use existing treatments.
The goal of clinical trials is to determine if a new test or treatment works and is safe. Clinical trials can also look at other aspects of care, such as improving the quality of life for people with chronic illnesses.
People participate in clinical trials for a variety of reasons. Healthy volunteers say they participate to help others and to contribute to moving science forward. Participants with an illness or disease also participate to help others, but also to possibly receive the newest treatment and to have the additional care and attention from the clinical trial staff.
Clinical trials offer hope for many people and an opportunity to help researchers find better treatments for others in the future.
We’d love to have you for Kidney Cancer District Advocacy Days!
You don’t need any prior experience or special skills. We provide you with training and a toolkit so that you can share your story with those who make decisions about research funding.
You’ll help them understand the impact of kidney cancer on people’s lives and the urgent need for a cure.
Join us and make your voice heard!
Register at https://kidneycan.org/2021-district-days/
We’d love to have you for #KidneyCancer District Advocacy Days! You don’t need any prior experience or special skills. We provide you with training and a toolkit so that you can share your story with those who make decisions about research funding. You’ll help them understand the impact of kidney cancer on people’s lives and the urgent need for a cure.
Join us and make your voice heard!
Register at https://kidneycan.org/2021-district-days/
Did you miss our LIVE viewing of "Kidney Cancer: Getting Back on Track After Treatment"? You can still watch the segment here!
https://fb.watch/v/HbgmOw6J/
Patients and caregivers! Can you give a couple of hours to tell your congressperson we need their support for #kidneycancer research?
We'll be making advocacy calls August 9-10th. You will not make this call alone! We give you training, support, and a script. Members of our advocacy team will be with you at every step!
A call or virtual visit means so much more than a letter. This is how we work to #fundthecure!
Register at https://kidneycan.org/2021-district-days/
You are invited to the free, virtual #KidneyCancer Patient and Caregiver Education Symposium, hosted by KidneyCAN in partnership with Seattle Cancer Care Alliance.
▶️ new perspectives on kidney cancer genetics
▶️ developments in imaging techniques
▶️ medical therapy
▶️ surgical advancements and laboratory research
▶️ patient advocacy and support groups
Date: July 17, 2021 (Saturday)
Time: 9am to 1:15pm PDT
Format: Virtual (via Zoom)
FREE registration: https://bit.ly/KidneyCancerPatientEd
An informed patient is an empowered patient!
Did you catch our June newsletter? Don't miss these important research updates and upcoming events for #kidneycancer patients and caregivers.
https://conta.cc/3xW05sK
"Hope can be a powerful medicine."
Thank you, Dr. Wilson, for talking to us about your research, advocacy, and hope for patients!
https://kidneycan.org/dr-john-t-wilson-a-lot-of-reason-to-hope/
On August 9-10th, the #kidneycancer community will speak as #onevoice to ask Congress to fund kidney cancer #research for the Congressionally Directed Medical Research Program and the National Institutes of Health.
Don’t miss this opportunity to share your story and let Congress know how kidney cancer has impacted your life. You do not need advocacy experience, just a passion for fighting kidney cancer!
Register at https://kidneycan.org/2021-district-days/
There's still time for #kidneycancer patients and caregivers to complete the global health survey and receive a personalized snapshot of your emotional wellbeing. This can be a valuable tool for you to use when talking with your care team about your overall health.
On #WorldKidneyCancerDay, we are talking about #mentalhealth. We want you to know you're not alone, and there are resources that can help you if you're one of the 96% of kidney cancer patients or caregivers who struggle with the psychological impact of cancer.
Use this link to get started: http://bit.ly/WKCD-mental-health-survey
KidneyCAN is a registered 501(c)(3) nonprofit and does not receive any funding through the Congressionally Directed Medical Research Programs (CDMRP) or KCRP (Kidney Cancer Research Program). Our work is funded by grassroots donors in the kidney cancer community.
