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Privacy Policy

Kidney Cancer Coalition, Inc., dba KidneyCAN

Information updated and current as of October 2026.
Kidney Cancer Coalition, Inc., dba KidneyCAN (“KidneyCAN,” “we,” “our,” or “us”) is committed to protecting the privacy of our community members, donors, patients, advocates, and website visitors. This Privacy Policy describes how we collect, use, and safeguard information when you interact with our websites, including kidneycan.org, kcrs.kidneycan.org, patients.kidneycan.org, and kidneycancertrials.org (collectively, “the Sites”).

Note: The KidneyCAN Clinical Trial Navigator at kidneycancertrials.org is subject to its own Privacy Policy, available at https://www.kidneycancertrials.org/terms. This Privacy Policy does not govern that tool.

1. Information We Collect

We collect information you provide directly to us and information gathered automatically when you use the Sites.

Information You Provide

We may collect the following when you fill out a form, register for an event, make a donation, sign up for our newsletter, or contact us:

        • Name
        • Email address
        • Mobile phone number (when provided for event participation or SMS communications)
        • Mailing address (for donation acknowledgment or advocacy purposes)
        • General information about your connection to kidney cancer (e.g., patient, caregiver, advocate, healthcare provider) — shared voluntarily

Information Collected Automatically

When you visit our Sites, we and our analytics partners may automatically collect:

        • IP address and general geographic location
        • Browser type, device type, and operating system
        • Pages visited, time spent on pages, and referring URLs
        • Interactions with site content

This information is collected using cookies and similar technologies, including those provided by Google Analytics and Meta (Facebook) Pixel. See Section 5 for more detail.

2. How We Use Your Information

We use the information we collect to:

  • Send email communications, including newsletters, patient education resources, advocacy updates, research news, event information, and fundraising communications
  • Send SMS messages to individuals participating in specific KidneyCAN programs or events (see our Terms and Conditions for scope)
  • Process donations and maintain donation records
  • Register and communicate with event attendees and speakers
  • Respond to inquiries and support requests
  • Improve our websites and understand how our community engages with our content
  • Comply with legal obligations

 

3. Health Information

KidneyCAN does not collect, store, or maintain personally identifying health information about patients or community members. If you voluntarily share details about your health situation in a message or form, that information is used only for the immediate purpose of your communication with us and is not entered into a patient database or health record system.

4. How We Share Your Information

KidneyCAN does not sell, rent, or trade your personal information or contact lists to third parties, advertisers, or commercial partners.

We do not share your mobile phone number with any third parties or affiliates.

We may share information only in the following limited circumstances:

        • With trusted service providers who assist us in operating our websites or conducting our programs (e.g., email platforms, event registration tools, donation processors), under contractual obligations to keep your information confidential
        • When required by law, regulation, or legal process
        • To protect the rights, safety, or property of KidneyCAN, our staff, or the public

 

5. Cookies and Tracking Technologies

Our Sites use cookies and tracking technologies to understand how visitors interact with our content and to improve site performance. These include:

Google Analytics

We use Google Analytics to collect anonymous data about site traffic and visitor behavior. Google Analytics uses cookies to track interactions. Data collected is aggregated and does not personally identify you. You can opt out of Google Analytics tracking by using the Google Analytics Opt-out Browser Add-on available at https://tools.google.com/dlpage/gaoptout.

Meta (Facebook) Pixel

We use the Meta Pixel to measure the effectiveness of our outreach and to understand how visitors engage with our Sites after interacting with our content on Facebook or Instagram. The Meta Pixel may collect information about your activity on our Sites and associate it with your Facebook account if you are logged in. You can manage your ad preferences or opt out through your Facebook account settings or via the Digital Advertising Alliance opt-out tool at https://optout.aboutads.info.

Managing Cookies

You can configure your browser to refuse cookies or to alert you when cookies are being sent. Please note that disabling cookies may affect the functionality of certain parts of our Sites.

6. Data Retention

We retain personal information for as long as necessary to fulfill the purposes for which it was collected, to comply with legal obligations, and to support our organizational recordkeeping. If you request removal from our contact lists, we will process your request promptly and retain only the minimum information necessary to honor future opt-out preferences.

7. Your Choices and Rights

You have the following rights with respect to your information:

        • Opt out of email communications at any time by clicking “Unsubscribe” in any email or contacting us at info@kidneycan.org
        • Opt out of SMS communications by replying “STOP” to any KidneyCAN text message, or by contacting us directly
        • Request access to, correction of, or deletion of your personal information by contacting us at info@kidneycan.org

We will respond to all requests in a timely manner and in accordance with applicable law.

8. Children’s Privacy

KidneyCAN’s Sites are not directed to children under the age of 13. We do not knowingly collect personal information from children under 13. If you believe a child has provided us with personal information, please contact us at info@kidneycan.org and we will take steps to delete such information.

9. Security

KidneyCAN takes reasonable technical and organizational measures to protect your personal information from unauthorized access, disclosure, or misuse. However, no internet-based system is completely secure, and we cannot guarantee absolute security of information transmitted to or from our Sites.

10. Third-Party Links

Our Sites may contain links to external websites. This Privacy Policy does not apply to third-party sites, and KidneyCAN is not responsible for the privacy practices of those sites. We encourage you to review the privacy policies of any external sites you visit.

11. Changes to This Privacy Policy

KidneyCAN may update this Privacy Policy from time to time. Any changes will be posted on this page with an updated effective date. We encourage you to review this policy periodically. Continued use of our Sites following any changes constitutes your acceptance of the updated policy.

12. Contact Us

If you have questions, concerns, or requests related to this Privacy Policy, please contact us:

Kidney Cancer Coalition, Inc., dba KidneyCAN
Email: info@kidneycan.org
Phone: (267) 223-7970
Website: https://kidneycan.org