Living Well with Kidney Cancer

A cancer diagnosis and treatment changes many facets of your life. Having the information and support you need to manage your stress and ways to improve your health and wellbeing can help.

Take the time to listen to kidney cancer specialists from around the country talk about the rapid advances in kidney cancer treatments and the outcomes they see in their patients. Listen to their hope, and keep moving forward with planning your best life.

We’ve collected some great resources on this page chosen specifically to support your well-being, providing support as you care for your relationships, your body, your mind and soul, and your financial health.

VISIT THE TRANSCRIPTS PAGE FOR PRINTED NOTES FROM THE VIDEO

Caring for your Relationships

A cancer diagnosis can impact your emotional health, which in turn can affect your relationships. This is a life-changing experience, and you may need to adjust roles in your household and extended family. We’ve gathered resources to guide you as you share your diagnosis, communicate with others, and look for support.

Sharing Your Diagnosis

How to tell others about your cancer diagnosis is a personal choice. There’s no one right time or way to share your information. Visit our resources aimed to help you start these conversations.

Communicating with Family

A cancer diagnosis affects everyone in the family, but especially your partner. We have some good tips for keeping the lines of communication with your spouse or partner open.

Communicating your Diagnosis to Children

Whether children or adults, discussing your diagnosis of kidney cancer for the first time is difficult. Here is some advice from experts to prepare.

Support Groups & Forums

Connecting with other patients and caregivers is a huge source of support for both the newly diagnosed  and those who’ve been living with cancer for a while. You’re not alone!

Tips for the Caregiver

Resources for friends and family members giving care to a person with cancer. It’s also important to take care of yourself while caring for your loved one.

“There is a temptation from family and friends to try to fix things, to try to make everything better. Ultimately, what a patient who has a new cancer diagnosis needs is for family and friends to be there, to support them and for the occasional hug.”

Dr. Moshe Ornstein, MD, MA – Cleveland Clinic

A cancer diagnosis can make you feel like you’ve lost control of your body and health, but there is a lot you can still do to stay active, get the most out of your treatment, and reduce the impact of side effects on your life. This section addresses topics that can help your body feel its best. 

Caring for your
Body

Keeping Up Your Daily Routine

Think about how you want to spend your time and who you like to be with. Try to develop a daily routine.

Click the link below to view this information from Cancer.org

Staying Active

Physical exercise can help your mood and your health.

Click the link below to view this information from This is living with cancer.com

Caring for Your Kidney Function

Kidneys are vital to your overall health and body functions. Check out these healthy steps to take the best care of your kidneys.

Improving your Sleep

Worry, pain and schedule disruption can all affect your sleep. Get ideas for sleep management so you can feel your best.

Click the link below to view this information from Cancer.gov

Healthy Eating

Consider making decisions that become a part of your overall lifestyle through healthy eating habits and nutrition.

Caring for Mind & Soul

A kidney cancer diagnosis can impact more than your physical health. For many patients, learning how to care for their mind and soul as they navigate diagnosis and treatment can be helpful. Read on for some resources we’ve collected. 

Managing Stress

Read and/or download this good guide from NCI on the many mental and emotional aspects of adjusting to cancer.

Spirituality in Cancer Care

Using spirtual beliefs to help cope with cancer can be very important to some patients. Your oncologist can refer you to resources for spiritual support in your cancer center and in your community.

Click the link below to view this page from Cancer.gov

Caring for your
Financial Health

Our partner, Triage Cancer, provides free education on the practical and legal issues that can arise after a cancer diagnosis.

Caring for your
Financial Health

Reliable  Resources for Cancer Information
The internet is vast, and looking online for medical information or resources can be overwhelming. Here are some trustworthy sites to find information on kidney cancer.
NATIONAL CANCER INSTITUTE
www.cancer.gov
From the American Society of Clinical Oncologists (ASCO)
CANCER.NET
www.cancer.net
NATIONAL COMPREHENSIVE CANCER NETWORK
Guidelines for Patients with Kidney Cancer
www.nccn.org
NATIONAL COMPREHENSIVE CANCER NETWORK
Pautas para Pacientes con Cáncer de Riñón (Español)
www.nccn.org
INTERNATIONAL KIDNEY CANCER COALITION
www.ikcc.org
CANCER AND CAREERS
Strategies for Coping with Cancer in the Workplace
www.cancerandcareers.org

This helpful widget from the National Cancer Institute can help you with medical vocabulary:

Understanding Your Kidney Cancer Diagnosis

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Building a Care Team

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Treatment & Trial Options

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Living Well with Kidney Cancer

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Latest News

Michael Whitley: A Kidney Cancer Diagnosis “Cracked Me Open”

Michael Whitley: A Kidney Cancer Diagnosis “Cracked Me Open”

Michael Whitley is 45 years old and lives in Huntsville, Alabama, with his boyfriend, Michael Mueller. He's the owner and Chief Operating Officer of EngeniusMicro, a techonology-development company focused on defense contracting. Following his kidney cancer diagnosis in 2019, Michael wanted to...

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District Days: Asking Congress to Fund Kidney Cancer Research

District Days: Asking Congress to Fund Kidney Cancer Research

On August 8-9th, KidneyCAN gathered advocates from all over the United States to ask Congress for robust funding for kidney cancer research through the NIH and CDMRP (Congressionally Directed Medical Research Programs). Read on to hear about our goals for this event and how you can help fund...

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District Days: Asking Congress to Fund Kidney Cancer Research

District Days: Asking Congress to Fund Kidney Cancer Research

On August 8-9th, KidneyCAN gathered advocates from all over the United States to ask Congress for robust funding for kidney cancer research through the NIH and CDMRP (Congressionally Directed Medical Research Programs). Read on to hear about our goals for this event and how you can help fund...

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In Memory of Gary Poteat: A Hard Worker, a Helper, a Teacher

In Memory of Gary Poteat: A Hard Worker, a Helper, a Teacher

Gary Poteat was the husband of Susan Poteat, KidneyCAN's Medical Science Liaison. Gary and Susan were married for 43 years. Since Gary's diagnosis of Stage IV kidney cancer in 2007, both Gary and Susan have been active advocates for research funding and trial participation. The KidneyCAN community...