Shared Decision-Making: Understanding Your Immunotherapy Choices
A KidneyCAN Town Hall Event
Our latest Town Hall focused on immunotherapy for kidney cancer patients. If you missed the live event, you can watch here.
Watch as leading experts discuss shared decision making and the current immunotherapy options for patients with kidney cancer.
This event has already taken place, but you can watch the full video, including the doctors’ discussions and the patient/caregiver Q & A that followed.
If you are interested in hearing about more events like this, make sure you’re subscribed to our newsletter.
Naomi Haas, M.D.
University of Pennsylvania Medicine
Hans Hammers, M.D., Ph.D.
UTSW Medical Center
Sumanta Pal, M.D.
City of Hope Cancer Center
An informed patient is an empowered patient.
We at KidneyCAN know how challenging it can be to keep up with research developments and how they could impact your treatment options. We hope the ideas presented in our Town Hall help you as you work with your doctor to manage your care for kidney cancer.
If you’re looking to connect with more people who share your challenges and can offer support, check out our Smart Patients forum.
This event supported by:
Join Our Grassroots Army
Join Us!
The KidneyCAN team is deeply saddened to share the loss of Gary Poteat. Gary was diagnosed in 2007 with Stage IV #kidneycancer, and in the 15 years since, he and his wife Susan have contributed enormously to research progress and advocacy efforts.
Many of you know Susan as our Medical Science Liaison and an active member of our SmartPatients community. Please read about Gary's extraordinary life and join us in offering condolences to the Poteat family.
https://kidneycan.org/gary-poteat-in-memory/
KidneyCAN is excited to announce the first annual Rock the Run 5K fundraiser! We want YOU to join us!
KidneyCAN was co-founded by Ralph Knapp, who said, “Raising funds for research, clinical trials, and finding a cure for #kidneycancer has become my hope and passion.” KidneyCAN’s past fundraisers included two “Rock the Cure” events that raised over $300,000. These events embodied Ralph’s fun and electric personality and were filled with music, friends, and fellowship.
We lost Ralph in March 2022. To honor his memory and continue his quest to save lives, we are launching an annual Rock the Run fundraiser.
· Join us in Philly on October 7th, or create your own local event through October 15th!
· As big or small as you want to make it!
· Walk, run, bike ... you can ROCK it your way!
· Register as an individual, or join one of our teams!
Let’s #acceleratecures for kidney cancer! 🎸
MORE INFO & REGISTRATION: https://kidneycan.org/rock-the-run-kidney-cancer-research-22/
Did you catch our latest newsletter? Highlights for the Kidney Cancer Research Summit in October, research funding advocacy news, inspiring patient stories, info on clinical trials, and more!
#kidneycancer #kidneycan #acceleratingcures
Link in our stories, and you can subscribe on our website!
https://conta.cc/3dXmf9o
Explore more!💪✨
Our friend Bruce shares his experiences staying active and safe despite challenges brought on by stage IV #kidneycancer and a #pandemic.
We can all learn from you, Bruce! Thank you for telling your story for #KidneyCANDID.
WATCH NOW: https://youtu.be/kdnWclM6694 (link in stories)
A couple of photos from today's #DistrictDays advocacy event, where we've gathered patients, caregivers, friends, family, doctors, and researchers to tell Congress that we need robust #research funding for #kidneycancer through the #NIH and the #CDMRP. A few things to notice:
· Our efforts today spanned the entire US, with folks meeting virtually as far east as New England and as far west as Hawaii!
· The experts gathered to speak up for research funding represent the University of Hawaii, Dana-Farber Cancer Institute, Brigham and Women's Hospital, Beth Israel Deaconess Medical Center.
· Every advocacy meeting is data-packed and backed with numbers ... whether you're a doctor, researcher, patient, or caregiver, we make sure you have the information needed to show Congress the importance of funding kidney cancer research.
Thank you to this all-star team of advocates for their work today! You're #acceleratingcures!
Today and tomorrow, KidneyCAN and our partners are telling Congress to #fundthecure for #kidneycancer!
We're meeting with representatives from all over the United States to share the urgent need for#RCC #research funding.
Thanks to Katie with @SenatorBurr's office for supporting robust funding for the @NIHgov and the Congressionally Directed Medical Research Programs.
We are #accleratingcures! Thank you to all of our advocates -- patients, caregivers, family, friends, doctors, and researchers -- who've lifted their voices for our community today!
It's not too late to join us for today's #KidneyCancer #TownHall!
Learn about #clinicaltrials and how to explore your options with two of the nation's leading #research experts.
Register at https://kidneycan.org/clinical-trials-for-kidney-cancer/
It's a simple and sad fact. We aren't making progress fast enough.
We need YOU to help us on August 8-9 when we tell Congress to #fundthecure for #kidneycancer.
District Days Advocacy Event
• Meet with your House and Senate representatives via Zoom.
• Tell them about the impact of kidney cancer on your life.
• Ask for funding for research through the National Institutes of Health (NIH) and Congressionally Directed Medical Research Programs - CDMRP.
It's easy and so impactful. You just tell your story and use the resources provided by KidneyCAN to make specific funding requests. We'll help you every step of the way.
Learn more and register here: https://kidneycan.org/2022-district-days/
#rcc #kidneycancerawareness #cancerresearch
Reminder! This event is tomorrow, and it's not too late to join!
You are invited to the free, virtual Kidney Cancer Patient and Caregiver Education Symposium, hosted by @seattlecancercarealliance in partnership with KidneyCAN and Kidney Cancer Association. During the event, attendees will hear medical experts discuss newly emerging treatment options, brain metastases, surgical advancements, and supportive care such as nutrition along with introductions from patient advocacy and support groups.
Date: July 16, 2022 (Saturday)
Time: 9am to 1:30pm PDT
Co-Chairs: Scott S. Tykodi, MD, PhD and John L. Gore, MD, MS, FACS (Physicians, Seattle Cancer Care Alliance)
Partners: KidneyCAN, Kidney Cancer Association, and Julie & Art Chmura (Seattle Kidney Cancer Support Group)
Format: Virtual (via Zoom)
Register here! https://bit.ly/SCCASymposium
#kidneycancer #RCC #patienteducation #empoweredpatient #acceleratingcures
