The Need for Advocacy & Involvement
The Kidney Cancer Research Story
In the video here, KidneyCAN president Bryan Lewis explains the role of his own experience with kidney cancer in the work he now does to advocate for the kidney cancer community and explain the need for research funding.
As Bryan shares, competition for funding is fierce, and it’s essential that legislators hear from the kidney cancer community what is needed and how important research funding is. He says, “If you’re not a the table, you’re on the menu.”
How the Knapps Became Advocates
Brenda Knapp explains: “After my husband Ralph was diagnosed with metastatic renal cell carcinoma (kidney cancer) in June 2014, we didn’t know what to do other than everything we could to keep him alive. While receiving treatment at Johns Hopkins under Hans Hammers, MD, Phd, it became clear that Kidney Cancer was underfunded. In June 2015, we learned that Dr. Hammers had secured millions of dollars of new immunotherapy drugs through Bristol-Myers Squibb; however, he lacked the necessary funds to administer his clinical trial for 25 advanced patients.”
What Did We Do?
“We turned to our friends, family and business associates and in just 3 short weeks, we raised over $300,000 to fund the RADVAX clinical trial.
In July 2016, we formed the Kidney Cancer Coalition (a non-profit) to not only bring awareness to the lack of research funding but to raise much needed funds for our Kidney Cancer researchers around the country.”
Check out our KidneyCAN Events!
Create a Fundraiser!
Create a birthday or anniversary fundraiser for KidneyCAN on Facebook OR Hold your own “Rock the Cure for Kidney Cancer” fundraising event in your hometown! We will provide support and bring our expertise to help you “Rock the Cure”
We’re passionate and here to help!
Check out the “Rock the Cure” event in Virginia Beach 2018!
Contact us about hosting your own Rock the Cure for Kidney Cancer Research event HERE
Let your voice be heard!
KidneyCAN led by our President Bryan Lewis is the VOICE on Capitol Hill. We can show you how to become an advocate by contacting your local Federal representatives OR joining us on Advocacy Day in DC.
Send us an email! We can discuss the different ways you can make a difference. Contact us HERE
Become a Volunteer!
We are a grassroots organization dedicated to research and advocacy AND can always use help! Our volunteers are scattered all throughout the country and help in many ways.
Contact us HERE – we would love to hear from you!
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