The treatment part of this Phase 1 clinical trial for kidney cancer is over, now we’re in the watching and waiting phase.

My husband, Ralph, is patient #3 in a first in human clinical trial for kidney cancer at NIH.  He was diagnosed with stage IV Kidney Cancer in 2014. His journey has been long and somewhat difficult. This is his 4th clinical trial and 8th treatment regime.

A little over a week ago he had new fighter T-cells infused.  These new T-cells are modified to identify and attack his tumor cells.  At least, that’s what they did in the lab.  We’re waiting to see if they behave like that in Ralph’s body.

He was released after 12 days in the hospital.  Overall, he did very well tolerating the treatment which included 13 doses of IL-2.  His team of about 20 doctors are very pleased and relieved.  They really did not think he could tolerate that many IL-2 treatments since his heart is compromised.  However, he was released on oxygen which is likely temporary and a result of the IL-2 treatment.

Over the next several weeks, we’ll continue to stay in the downtown Bethesda area which has great places to eat (and shop) all within walking distance to our hotel.  He’ll have follow-up visits at NIH to include lab work, etc.  After all, they want to keep a close eye on their patient and their experiment.

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Debra Beyhan: Embracing the Ups and Downs of Life with Kidney Cancer

Debra Beyhan: Embracing the Ups and Downs of Life with Kidney Cancer

Deb Beyhan is the Patient Legislative Advocate for KidneyCAN. She was diagnosed with stage IV kidney cancer in 2016 at the age of 53. Deb lives outside of Atlanta, GA, with her husband.    For this month's Community Spotlight, we want to tell you about a member of our volunteer team, Deb Beyhan....

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District Days: Asking Congress to Fund Kidney Cancer Research

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On August 8-9th, KidneyCAN gathered advocates from all over the United States to ask Congress for robust funding for kidney cancer research through the NIH and CDMRP (Congressionally Directed Medical Research Programs). Read on to hear about our goals for this event and how you can help fund...

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The 2022 Kidney Cancer Research Summit

The 2022 Kidney Cancer Research Summit

Dr. Laurence Albiges (Institut Gustave Roussy) presents on the microbiome at KCRS22. The microbiome has now been recognized as one of the emerging hallmarks and enabling characteristics of cancer. KidneyCAN hosted the 4th Annual Kidney Cancer Research Summit on October 6-7, 2022  live in...

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Rock the Run for Kidney Cancer Research Funding

Rock the Run for Kidney Cancer Research Funding

KidneyCAN had the first ever Rock the Run 5k fundraiser in October 2022. This is part of the group of KCRS22 attendees who walked and ran with us at dawn before the second conference day began. KidneyCAN is proud to share the results of the first annual Rock the Run 5K fundraiser. Our Purpose...