A diagnosis of kidney cancer can be overwhelming, and finding information to get started is difficult at first. We have put together resources to help you form a plan for a newly-diagnosed renal mass.
YOUR DIAGNOSIS
Start here for information about kidney cancer diagnosis and testing, including types of kidney cancer and terms to know.
Building Your Care Team
TREATMENTS & TRIAL OPTIONS
Learn about how you could take part in kidney cancer treatments and trials.
LIVING WELL WITH KIDNEY CANCER
This will look different for everyone, but learn how to manage these changes and live life to the full.
Take a breath. Don’t go to the internet and read outdated statistics. Medicines and treatments are changing daily, weekly. Find a care team that you can trust.
I recommend SmartPatients.com for everybody; there’s a place for you on Smart Patients. You’ll hear from other patients, you’ll hear from professionals.
– Gary C.,
advice to a new kidney cancer patient
Connect with Our Communities
There are multiple support groups serving the kidney cancer community. SmartPatients.com is a patient forum and a KidneyCAN partner. We recommend this as a private, moderated place to talk with other patients. Your cancer center may also have their own support groups.
PATIENT News
World Kidney Cancer Day 2021: We Need to Talk About How We’re Feeling
On June 17th, people from all around the world came together to participate in activities for #WorldKidneyCancerDay, and we’re proud to share what KidneyCAN did in partnership with the IKCC and many other partners from the kidney cancer community. Our goal each year...
Dr. John T. Wilson: “A Lot of Reason to Hope”
Researcher Spotlight: Dr. John T. Wilson Giving Patients "A Lot of Reason to Hope" At KidneyCAN, we have the pleasure of meeting and working with talented researchers from all over the world. We want to share some of the insights and experiences of one such researcher...
Speak Up for Kidney Cancer Research Funding: District Days 2021
In 2016, Congress allocated $0 in funding dedicated to kidney cancer research. Through the power of advocacy, we have raised that number to $135 million in five years. We need YOU to keep this funding in place. Please plan to join our grassroots army for our second...
Join Our Grassroots Army
Join Us!
Recently diagnosed with COVID-19? Bristol Myers Squibb's COVID treatment trial -- mAb Duo -- is now up and live on the NIH Rise Above COVID site for patients. This Phase 2 trial is for COVID-positive patients experiencing symptoms who are standard risk to progressing (not only high risk patients). The Phase 2 trial enrollment is now live in the US at 53 sites.
You may already know that we at KidneyCAN are big proponents for clinical trials. Here's why:
Why should I join a clinical trial?
Clinical trials are part of clinical research and at the heart of all medical advances. Clinical trials look at new ways to prevent, detect, or treat disease.
Treatments might be new drugs or new combinations of drugs, new surgical procedures or devices, or new ways to use existing treatments.
The goal of clinical trials is to determine if a new test or treatment works and is safe. Clinical trials can also look at other aspects of care, such as improving the quality of life for people with chronic illnesses.
People participate in clinical trials for a variety of reasons. Healthy volunteers say they participate to help others and to contribute to moving science forward. Participants with an illness or disease also participate to help others, but also to possibly receive the newest treatment and to have the additional care and attention from the clinical trial staff.
Clinical trials offer hope for many people and an opportunity to help researchers find better treatments for others in the future.
We’d love to have you for Kidney Cancer District Advocacy Days!
You don’t need any prior experience or special skills. We provide you with training and a toolkit so that you can share your story with those who make decisions about research funding.
You’ll help them understand the impact of kidney cancer on people’s lives and the urgent need for a cure.
Join us and make your voice heard!
Register at https://kidneycan.org/2021-district-days/
We’d love to have you for #KidneyCancer District Advocacy Days! You don’t need any prior experience or special skills. We provide you with training and a toolkit so that you can share your story with those who make decisions about research funding. You’ll help them understand the impact of kidney cancer on people’s lives and the urgent need for a cure.
Join us and make your voice heard!
Register at https://kidneycan.org/2021-district-days/
Did you miss our LIVE viewing of "Kidney Cancer: Getting Back on Track After Treatment"? You can still watch the segment here!
https://fb.watch/v/HbgmOw6J/
Patients and caregivers! Can you give a couple of hours to tell your congressperson we need their support for #kidneycancer research?
We'll be making advocacy calls August 9-10th. You will not make this call alone! We give you training, support, and a script. Members of our advocacy team will be with you at every step!
A call or virtual visit means so much more than a letter. This is how we work to #fundthecure!
Register at https://kidneycan.org/2021-district-days/
You are invited to the free, virtual #KidneyCancer Patient and Caregiver Education Symposium, hosted by KidneyCAN in partnership with Seattle Cancer Care Alliance.
▶️ new perspectives on kidney cancer genetics
▶️ developments in imaging techniques
▶️ medical therapy
▶️ surgical advancements and laboratory research
▶️ patient advocacy and support groups
Date: July 17, 2021 (Saturday)
Time: 9am to 1:15pm PDT
Format: Virtual (via Zoom)
FREE registration: https://bit.ly/KidneyCancerPatientEd
An informed patient is an empowered patient!
Did you catch our June newsletter? Don't miss these important research updates and upcoming events for #kidneycancer patients and caregivers.
https://conta.cc/3xW05sK
"Hope can be a powerful medicine."
Thank you, Dr. Wilson, for talking to us about your research, advocacy, and hope for patients!
https://kidneycan.org/dr-john-t-wilson-a-lot-of-reason-to-hope/
On August 9-10th, the #kidneycancer community will speak as #onevoice to ask Congress to fund kidney cancer #research for the Congressionally Directed Medical Research Program and the National Institutes of Health.
Don’t miss this opportunity to share your story and let Congress know how kidney cancer has impacted your life. You do not need advocacy experience, just a passion for fighting kidney cancer!
Register at https://kidneycan.org/2021-district-days/
There's still time for #kidneycancer patients and caregivers to complete the global health survey and receive a personalized snapshot of your emotional wellbeing. This can be a valuable tool for you to use when talking with your care team about your overall health.
On #WorldKidneyCancerDay, we are talking about #mentalhealth. We want you to know you're not alone, and there are resources that can help you if you're one of the 96% of kidney cancer patients or caregivers who struggle with the psychological impact of cancer.
Use this link to get started: http://bit.ly/WKCD-mental-health-survey
KidneyCAN is a registered 501(c)(3) nonprofit and does not receive any funding through the Congressionally Directed Medical Research Programs (CDMRP) or KCRP (Kidney Cancer Research Program). Our work is funded by grassroots donors in the kidney cancer community.
