A diagnosis of kidney cancer can be overwhelming, and finding information to get started is difficult at first. We have put together resources to help you form a plan for a newly-diagnosed renal mass.
YOUR DIAGNOSIS
Start here for information about kidney cancer diagnosis and testing, including types of kidney cancer and terms to know.
Building Your Care Team
TREATMENTS & TRIAL OPTIONS
Learn about how you could take part in kidney cancer treatments and trials.
LIVING WELL WITH KIDNEY CANCER
This will look different for everyone, but learn how to manage these changes and live life to the full.
Take a breath. Don’t go to the internet and read outdated statistics. Medicines and treatments are changing daily, weekly. Find a care team that you can trust.
I recommend SmartPatients.com for everybody; there’s a place for you on Smart Patients. You’ll hear from other patients, you’ll hear from professionals.
– Gary C.,
advice to a new kidney cancer patient
Connect with Our Communities
There are multiple support groups serving the kidney cancer community. SmartPatients.com is a patient forum and a KidneyCAN partner. We recommend this as a private, moderated place to talk with other patients. Your cancer center may also have their own support groups.
PATIENT News
Dr. Yousef Zakharia: “I Believe in Teamwork”
For this Community Spotlight feature, we spoke to Dr. Yousef Zakharia, a medical oncologist at the Holden Comprehensive Cancer Center and associate professor at the University of Iowa. Dr. Zakharia shares important information about finding the best care at...
Dr. Moshe Ornstein: A Journey of Advocacy, Research, and Community in Kidney Cancer
This month, we asked Dr. Moshe Ornstein to share his insights in kidney cancer research and advocacy. He is a dedicated kidney cancer physician and researcher at the Cleveland Clinic. Dr. Ornstein completed his fellowship in Hematology & Oncology at the Cleveland...
From the Heart to the Hill: Advocating for Kidney Cancer Research Funding
Spring Advocacy : By the Numbers KidneyCAN is thrilled to announce the success of our Spring Advocacy Days event, which took place on March 13th in person in Washington, D.C., and on March 14th virtually. We are grateful for the 186 confirmed meetings with...
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🎥 NEW VIDEO ALERT! Dive into the highlights of the KCRS23 meeting with Dr. Adam Stern, a #kidneycancer warrior, and Dr. Toni Choueiri from Dana-Farber, a leading voice in kidney cancer research. Discover why KCRS23 is a pivotal event in the kidney cancer community.
For an in-depth look at all the groundbreaking presentations, slides, and videos from KCRS23, visit: https://kcrs.kidneycan.org/kcrs23-presentations-video-slides/
Stay informed and be a part of the change in kidney cancer research!
#KCRS23 #KidneyCancerResearch
Sep 21
🎥 NEW VIDEO ALERT! Dive into the highlights of the KCRS23 meeting with Dr. Adam Stern, a #kidneycancer warrior, and Dr. Toni Choueiri from Dana-Farber, a leading voice in kidney cancer research. Discover why KCRS23 is a pivotal event in the kidney cancer community.
For an in-depth look at all the groundbreaking presentations, slides, and videos from KCRS23, visit: https://kcrs.kidneycan.org/kcrs23-presentations-video-slides/
Stay informed and be a part of the change in kidney cancer research!
#KCRS23 #KidneyCancerResearch
From coast to coast, our advocates made their voices heard! Over 100 passionate individuals joined us virtually this week, connecting with their representatives from the comfort of their homes.
Their message? The urgent need for #kidneycancer research funding.
Distance didn`t diminish our impact! In fact, it showcased our community`s resilience and adaptability. From living rooms to home offices, our advocates shared personal stories, presented data, and urged their reps to prioritize research for #RCC.
A massive thank you to every virtual advocate. Your dedication and commitment prove that we can come together to make a difference no matter where we are. 🌟💻
#AdvocacyDays #FundtheCure #VirtualAdvocacy #UnitedForResearch
Sep 20
From coast to coast, our advocates made their voices heard! Over 100 passionate individuals joined us virtually this week, connecting with their representatives from the comfort of their homes.
Their message? The urgent need for #kidneycancer research funding.
Distance didn`t diminish our impact! In fact, it showcased our community`s resilience and adaptability. From living rooms to home offices, our advocates shared personal stories, presented data, and urged their reps to prioritize research for #RCC.
A massive thank you to every virtual advocate. Your dedication and commitment prove that we can come together to make a difference no matter where we are. 🌟💻
#AdvocacyDays #FundtheCure #VirtualAdvocacy #UnitedForResearch
A behind-the-scenes look at the heart of advocacy in action! Our tireless advocates have been meeting face-to-face with decision-makers in DC, sharing personal stories and emphasizing the critical importance of #kidneycancer research funding.
Each photo captures a moment of collaboration, hope, and determination. These moments drive change, push boundaries, and remind us of the collective power we hold when we come together for a cause. Witness the change-makers in action!
Huge gratitude to our advocates for their unwavering commitment. Together, we`re shaping a brighter future for all affected by kidney cancer.
#AdvocacyDays #RCC #FundtheCure #KidneyCANOnTheHill #CancerResearch #AdvocacyInAction #TogetherForACure
Sep 20
A behind-the-scenes look at the heart of advocacy in action! Our tireless advocates have been meeting face-to-face with decision-makers in DC, sharing personal stories and emphasizing the critical importance of #kidneycancer research funding.
Each photo captures a moment of collaboration, hope, and determination. These moments drive change, push boundaries, and remind us of the collective power we hold when we come together for a cause. Witness the change-makers in action!
Huge gratitude to our advocates for their unwavering commitment. Together, we`re shaping a brighter future for all affected by kidney cancer.
#AdvocacyDays #RCC #FundtheCure #KidneyCANOnTheHill #CancerResearch #AdvocacyInAction #TogetherForACure
KidneyCAN in Action!
Scenes from a powerful week in DC! Our dedicated advocates took to Capitol Hill, navigating the halls of power and engaging in meaningful conversations with our representatives.
Their mission? To emphasize the urgent need for funding #kidneycancer research.
Every handshake, every story shared, and every office visited brings us one step closer to a future where kidney cancer is a thing of the past. Together, we`re not just making a statement; we`re making a difference.
Swipe to see the passion and commitment in action!
Thank you to all our advocates for being the voice of the kidney cancer community. Let`s keep the momentum going! #AdvocacyDay #RCC #FundtheCure #KidneyCANOnTheHill #CancerResearch
Sep 20
KidneyCAN in Action!
Scenes from a powerful week in DC! Our dedicated advocates took to Capitol Hill, navigating the halls of power and engaging in meaningful conversations with our representatives.
Their mission? To emphasize the urgent need for funding #kidneycancer research.
Every handshake, every story shared, and every office visited brings us one step closer to a future where kidney cancer is a thing of the past. Together, we`re not just making a statement; we`re making a difference.
Swipe to see the passion and commitment in action!
Thank you to all our advocates for being the voice of the kidney cancer community. Let`s keep the momentum going! #AdvocacyDay #RCC #FundtheCure #KidneyCANOnTheHill #CancerResearch
Standing tall in front of the Capitol Building, Kathleen champions the fight against #kidneycancer, inspired by the memory of her husband, Ken Moore, who passed in July 2021.
With the unwavering support of her children, Allison and Eric, Kathleen joins KidneyCAN today in urging Congress for:
✅ A $60 million appropriation for the #KCRP for FY24.
✅ $50.9 billion for the NIH, including a $9.988 billion appropriation for the NCI.
✅ Long-term #telehealth legislation.
✅ Sustainable funding for medical #research and ensuring the #patientvoice is central in legislative policy, especially in promoting diverse #clinicaltrial enrollment.
Together, we believe in a future with early detection, less toxic treatments, and ultimately, cures for kidney cancer.
#AdvocacyDays #KidneyCAN #AcceleratingCures #OneVoiceAgainstCancer
Sep 18
Standing tall in front of the Capitol Building, Kathleen champions the fight against #kidneycancer, inspired by the memory of her husband, Ken Moore, who passed in July 2021.
With the unwavering support of her children, Allison and Eric, Kathleen joins KidneyCAN today in urging Congress for:
✅ A $60 million appropriation for the #KCRP for FY24.
✅ $50.9 billion for the NIH, including a $9.988 billion appropriation for the NCI.
✅ Long-term #telehealth legislation.
✅ Sustainable funding for medical #research and ensuring the #patientvoice is central in legislative policy, especially in promoting diverse #clinicaltrial enrollment.
Together, we believe in a future with early detection, less toxic treatments, and ultimately, cures for kidney cancer.
#AdvocacyDays #KidneyCAN #AcceleratingCures #OneVoiceAgainstCancer
We’re off to our first #AdvocacyDays meetings on Capitol Hill!
Today we ask Congress to fund #kidneycancer research through the CDMRP and National Institutes of Health.
With 40 people per day losing their lives to this terrible disease, our mission is urgent.
#AcceleratingCures
Sep 18
We’re off to our first #AdvocacyDays meetings on Capitol Hill!
Today we ask Congress to fund #kidneycancer research through the CDMRP and National Institutes of Health.
With 40 people per day losing their lives to this terrible disease, our mission is urgent.
#AcceleratingCures
🎉 Milestone Alert! The #PACTAct has reached the $1 MILLION mark for claims filed!
This legislation has been instrumental in supporting #kidneycancer patients and many others. At KidneyCAN, we`re proud to have advocated for such transformative legislation and ensured veterans know the benefits available to them.
Learn more about this achievement here: https://bit.ly/PACTAct1M
#PACTAct #KidneyCANAdvocacy #SupportOurVeterans
Sep 15
🎉 Milestone Alert! The #PACTAct has reached the $1 MILLION mark for claims filed!
This legislation has been instrumental in supporting #kidneycancer patients and many others. At KidneyCAN, we`re proud to have advocated for such transformative legislation and ensured veterans know the benefits available to them.
Learn more about this achievement here: https://bit.ly/PACTAct1M
#PACTAct #KidneyCANAdvocacy #SupportOurVeterans
In the heart of Washington D.C., as the Rally for Medical Research unfolds, we take a moment to honor the brave souls we’ve lost to kidney cancer.
Each name on this sign, held by KidneyCAN President Bryan Lewis, is more than a memory—it’s a legacy.
Many of these patients participated in clinical trials and advocated tirelessly for research funding. Their courage and commitment have paved the path for future advancements in kidney cancer research.
They were not just patients; they were pioneers, champions for change, ensuring brighter prospects for those who follow in their footsteps.
Today, we rally in their memory, inspired by their dedication. Their spirit drives our mission forward. 🧡💚
#RallyMedRes #FundNIH
Sep 14
In the heart of Washington D.C., as the Rally for Medical Research unfolds, we take a moment to honor the brave souls we’ve lost to kidney cancer.
Each name on this sign, held by KidneyCAN President Bryan Lewis, is more than a memory—it’s a legacy.
Many of these patients participated in clinical trials and advocated tirelessly for research funding. Their courage and commitment have paved the path for future advancements in kidney cancer research.
They were not just patients; they were pioneers, champions for change, ensuring brighter prospects for those who follow in their footsteps.
Today, we rally in their memory, inspired by their dedication. Their spirit drives our mission forward. 🧡💚
#RallyMedRes #FundNIH
The power of unity! Today, we’re rallying with organizations from across the country to emphasize the importance of investing in the NIH.
Together, we can drive change, inspire hope, and save lives. Be part of the movement. 🌟
#RallyMedRes #FundNIH
#AcceleratingCures
Sep 14
The power of unity! Today, we’re rallying with organizations from across the country to emphasize the importance of investing in the NIH.
Together, we can drive change, inspire hope, and save lives. Be part of the movement. 🌟
#RallyMedRes #FundNIH
#AcceleratingCures
We`re proud to be in Washington D.C. today and tomorrow, standing alongside advocates from across the country at the 2023 Rally for Medical Research.
Our mission? To emphasize the importance of NIH funding and champion kidney cancer research.
Join us in raising our voices for MORE PROGRESS, MORE HOPE, and MORE LIVES SAVED.
#RallyMedRes #FundNIH
Sep 13
We`re proud to be in Washington D.C. today and tomorrow, standing alongside advocates from across the country at the 2023 Rally for Medical Research.
Our mission? To emphasize the importance of NIH funding and champion kidney cancer research.
Join us in raising our voices for MORE PROGRESS, MORE HOPE, and MORE LIVES SAVED.
#RallyMedRes #FundNIH
