A diagnosis of kidney cancer can be overwhelming, and finding information to get started is difficult at first. We have put together resources to help you form a plan for a newly-diagnosed renal mass.
YOUR DIAGNOSIS
Start here for information about kidney cancer diagnosis and testing, including types of kidney cancer and terms to know.
Building Your Care Team
TREATMENTS & TRIAL OPTIONS
Learn about how you could take part in kidney cancer treatments and trials.
LIVING WELL WITH KIDNEY CANCER
This will look different for everyone, but learn how to manage these changes and live life to the full.
Take a breath. Don’t go to the internet and read outdated statistics. Medicines and treatments are changing daily, weekly. Find a care team that you can trust.
I recommend SmartPatients.com for everybody; there’s a place for you on Smart Patients. You’ll hear from other patients, you’ll hear from professionals.
– Gary C.,
advice to a new kidney cancer patient
Connect with Our Communities
There are multiple support groups serving the kidney cancer community. SmartPatients.com is a patient forum and a KidneyCAN partner. We recommend this as a private, moderated place to talk with other patients. Your cancer center may also have their own support groups.
PATIENT News
Lenny and Phyllis: “We Need to Keep Up the Fight”
Phyllis was diagnosed with kidney cancer in 2012. Tumors were found on both kidneys and treated with surgery. Her cancer progessed to stage IV in 2014, but Phyllis says, "Here I am, ten years later! Life has changed, but it is good!" For this month's Community...
Rock the Run for Kidney Cancer Research Funding
KidneyCAN had the first ever Rock the Run 5k fundraiser in October 2022. This is part of the group of KCRS22 attendees who walked and ran with us at dawn before the second conference day began. KidneyCAN is proud to share the results of the first annual Rock the Run...
The 2022 Kidney Cancer Research Summit
Dr. Laurence Albiges (Institut Gustave Roussy) presents on the microbiome at KCRS22. The microbiome has now been recognized as one of the emerging hallmarks and enabling characteristics of cancer. KidneyCAN hosted the 4th Annual Kidney Cancer Research Summit on...
Join Our Grassroots Army
Join Us!
Plan to join us next week on Tuesday for one of our most popular events!
Dr. Rana McKay of UC San Diego and Dr. Hans Hammers of UTSW will discuss the latest research in #kidneycancer -- both what we learned in 2022 and what we can look ahead to in 2023. Register in advance to submit your questions to the panel.
⭐ Looking Back, Looking Forward: The Latest News in Kidney Cancer Research
📆 Tuesday, January 31st
🕧 6:00-7:00 pm ET
💻 FREE Zoom webinar
✏️ Sign up at kidneycan.org
Following the Town Hall, we will have an informal Zoom social for patients and caregivers to connect.
Don't miss this! We can't wait to see you!
This is one of our most-anticipated annual events, and we've got a rockstar lineup for the 2023 edition!
▶️ Looking Back, Looking Forward: The Latest Research in Kidney Cancer
▶️ Tuesday, January 31st
▶️ 6:00 pm ET
▶️ Free Zoom Webinar
Dr. Rana McKay of UC San Diego Health will review the 2022 #kidneycancer research breakthroughs, and Dr. Hans Hammers of UTSW will discuss what we can anticipate in 2023.
Don't miss out! Ask your questions when you register, and our panel will include what we can in the program!
Register now at https://kidneycan.org/2023-kidney-cancer-research-town-hall/
Our partner @jnkcf is hosting #KidneyCancer conversations, and the next one up features one of our favorite teammates! Meryl is speaking about navigating life with kidney cancer.
This event is free!
Register at https://jnfkidneycancer.org/navigating-life-with-kidney-cancer-a-survivors-testimony-with-meryl-uranga/
Today we honor the life and legacy of Dr. Martin Luther King, who said in 1966: "Of all the forms of inequality, injustice in health is the most shocking and the most inhuman because it often results in physical death." He was speaking at the Medical Committee for Human Rights annual meeting in Chicago.
The mission of KidneyCAN is to accelerate cures for kidney cancer. We believe that means accelerating cures for everyone through a commitment to practices that promote equity, diversity, and inclusion. Here's to continued antiracist work that addresses systemic inequities in health care, including access to clinical trials.
LIVE in ONE HOUR!
Some studies have shown that people with #kidneycancer are at increased risk of developing kidney disease.
What's the best way to keep your kidneys healthy during and after treatment for kidney cancer? Do you know the signs and symptoms to prompt a call to your doctor?
Our experts can answer these questions and more. Join us!
Event link: https://fb.me/e/3Qk7dLEvA
Do you know how to keep your kidneys healthy during #kidneycancer treatments? What about after treatments?
Join us for a special Live stream event where we’ll answer your questions on protecting kidney health, streaming tomorrow at 2 pm ET on Facebook, YouTube, & Twitter!
RSVP now to get notifications on FB: https://fb.me/e/3Rig4xARG
Congress is poised to approve $50 million dollars for #kidneycancer research in 2023!
This year, we attended 390 Capitol Hill meetings with over 300 advocates working the Hill. We are grateful to you, our grassroots supporters, for helping to make this happen.
The holiday season can be busy and stressful, even when you're feeling great! When you're juggling hosting and shopping and traveling while ALSO living with #kidneycancer, it can be too much.
We gathered some experts to share tips for coping and caring for yourself during the holidays!
WATCH: https://youtu.be/l4miZPznhQQ
When you're living with #kidneycancer, the holidays sometimes have to take on a "new normal," with adjusted expectations, and that's okay.
If you're overwhelmed or struggling to feel festive, check out the Town Hall webinar we hosted to help folks handle the holiday season!
WATCH: https://youtu.be/l4miZPznhQQ
#livingwithcancer #cancercare #selfcare #holidayselfcare #rcc #kidneycan
Season of Inspiration! We asked our community to share what inspires them on hard days.
Bill says, "Knowing that kidney cancer can return at any time reminds me that part of each day must be spent doing something joyful. In the many years since diagnosis, I’ve found that supporting animal adoption brings happiness to many people."
Love this! Do something JOYFUL every day.
What makes you feel #inspired this season? Please share your story with us at [email protected] to be featured on our pages!
