A diagnosis of kidney cancer can be overwhelming, and finding information to get started is difficult at first. We have put together resources to help you form a plan for a newly-diagnosed renal mass.
YOUR DIAGNOSIS
Start here for information about kidney cancer diagnosis and testing, including types of kidney cancer and terms to know.
Building Your Care Team
TREATMENTS & TRIAL OPTIONS
Learn about how you could take part in kidney cancer treatments and trials.
LIVING WELL WITH KIDNEY CANCER
This will look different for everyone, but learn how to manage these changes and live life to the full.
Take a breath. Don’t go to the internet and read outdated statistics. Medicines and treatments are changing daily, weekly. Find a care team that you can trust.
I recommend SmartPatients.com for everybody; there’s a place for you on Smart Patients. You’ll hear from other patients, you’ll hear from professionals.
– Gary C.,
advice to a new kidney cancer patient
Connect with Our Communities
There are multiple support groups serving the kidney cancer community. SmartPatients.com is a patient forum and a KidneyCAN partner. We recommend this as a private, moderated place to talk with other patients. Your cancer center may also have their own support groups.
PATIENT News
In Memory of Gary Poteat: A Hard Worker, a Helper, a Teacher
Gary Poteat was the husband of Susan Poteat, KidneyCAN's Medical Science Liaison. Gary and Susan were married for 43 years. Since Gary's diagnosis of Stage IV kidney cancer in 2007, both Gary and Susan have been active advocates for research funding and trial...
District Days: Asking Congress to Fund Kidney Cancer Research
On August 8-9th, KidneyCAN gathered advocates from all over the United States to ask Congress for robust funding for kidney cancer research through the NIH and CDMRP (Congressionally Directed Medical Research Programs). Read on to hear about our goals for this event...
Michael Whitley: A Kidney Cancer Diagnosis “Cracked Me Open”
Michael Whitley is 45 years old and lives in Huntsville, Alabama, with his boyfriend, Michael Mueller. He's the owner and Chief Operating Officer of EngeniusMicro, a techonology-development company focused on defense contracting. Following his kidney cancer diagnosis...
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The KidneyCAN team is deeply saddened to share the loss of Gary Poteat. Gary was diagnosed in 2007 with Stage IV #kidneycancer, and in the 15 years since, he and his wife Susan have contributed enormously to research progress and advocacy efforts.
Many of you know Susan as our Medical Science Liaison and an active member of our SmartPatients community. Please read about Gary's extraordinary life and join us in offering condolences to the Poteat family.
https://kidneycan.org/gary-poteat-in-memory/
KidneyCAN is excited to announce the first annual Rock the Run 5K fundraiser! We want YOU to join us!
KidneyCAN was co-founded by Ralph Knapp, who said, “Raising funds for research, clinical trials, and finding a cure for #kidneycancer has become my hope and passion.” KidneyCAN’s past fundraisers included two “Rock the Cure” events that raised over $300,000. These events embodied Ralph’s fun and electric personality and were filled with music, friends, and fellowship.
We lost Ralph in March 2022. To honor his memory and continue his quest to save lives, we are launching an annual Rock the Run fundraiser.
· Join us in Philly on October 7th, or create your own local event through October 15th!
· As big or small as you want to make it!
· Walk, run, bike ... you can ROCK it your way!
· Register as an individual, or join one of our teams!
Let’s #acceleratecures for kidney cancer! 🎸
MORE INFO & REGISTRATION: https://kidneycan.org/rock-the-run-kidney-cancer-research-22/
Did you catch our latest newsletter? Highlights for the Kidney Cancer Research Summit in October, research funding advocacy news, inspiring patient stories, info on clinical trials, and more!
#kidneycancer #kidneycan #acceleratingcures
Link in our stories, and you can subscribe on our website!
https://conta.cc/3dXmf9o
Explore more!💪✨
Our friend Bruce shares his experiences staying active and safe despite challenges brought on by stage IV #kidneycancer and a #pandemic.
We can all learn from you, Bruce! Thank you for telling your story for #KidneyCANDID.
WATCH NOW: https://youtu.be/kdnWclM6694 (link in stories)
A couple of photos from today's #DistrictDays advocacy event, where we've gathered patients, caregivers, friends, family, doctors, and researchers to tell Congress that we need robust #research funding for #kidneycancer through the #NIH and the #CDMRP. A few things to notice:
· Our efforts today spanned the entire US, with folks meeting virtually as far east as New England and as far west as Hawaii!
· The experts gathered to speak up for research funding represent the University of Hawaii, Dana-Farber Cancer Institute, Brigham and Women's Hospital, Beth Israel Deaconess Medical Center.
· Every advocacy meeting is data-packed and backed with numbers ... whether you're a doctor, researcher, patient, or caregiver, we make sure you have the information needed to show Congress the importance of funding kidney cancer research.
Thank you to this all-star team of advocates for their work today! You're #acceleratingcures!
Today and tomorrow, KidneyCAN and our partners are telling Congress to #fundthecure for #kidneycancer!
We're meeting with representatives from all over the United States to share the urgent need for#RCC #research funding.
Thanks to Katie with @SenatorBurr's office for supporting robust funding for the @NIHgov and the Congressionally Directed Medical Research Programs.
We are #accleratingcures! Thank you to all of our advocates -- patients, caregivers, family, friends, doctors, and researchers -- who've lifted their voices for our community today!
It's not too late to join us for today's #KidneyCancer #TownHall!
Learn about #clinicaltrials and how to explore your options with two of the nation's leading #research experts.
Register at https://kidneycan.org/clinical-trials-for-kidney-cancer/
It's a simple and sad fact. We aren't making progress fast enough.
We need YOU to help us on August 8-9 when we tell Congress to #fundthecure for #kidneycancer.
District Days Advocacy Event
• Meet with your House and Senate representatives via Zoom.
• Tell them about the impact of kidney cancer on your life.
• Ask for funding for research through the National Institutes of Health (NIH) and Congressionally Directed Medical Research Programs - CDMRP.
It's easy and so impactful. You just tell your story and use the resources provided by KidneyCAN to make specific funding requests. We'll help you every step of the way.
Learn more and register here: https://kidneycan.org/2022-district-days/
#rcc #kidneycancerawareness #cancerresearch
Reminder! This event is tomorrow, and it's not too late to join!
You are invited to the free, virtual Kidney Cancer Patient and Caregiver Education Symposium, hosted by @seattlecancercarealliance in partnership with KidneyCAN and Kidney Cancer Association. During the event, attendees will hear medical experts discuss newly emerging treatment options, brain metastases, surgical advancements, and supportive care such as nutrition along with introductions from patient advocacy and support groups.
Date: July 16, 2022 (Saturday)
Time: 9am to 1:30pm PDT
Co-Chairs: Scott S. Tykodi, MD, PhD and John L. Gore, MD, MS, FACS (Physicians, Seattle Cancer Care Alliance)
Partners: KidneyCAN, Kidney Cancer Association, and Julie & Art Chmura (Seattle Kidney Cancer Support Group)
Format: Virtual (via Zoom)
Register here! https://bit.ly/SCCASymposium
#kidneycancer #RCC #patienteducation #empoweredpatient #acceleratingcures
