A diagnosis of kidney cancer can be overwhelming, and finding information to get started is difficult at first. We have put together resources to help you form a plan for a newly-diagnosed renal mass.
YOUR DIAGNOSIS
Start here for information about kidney cancer diagnosis and testing, including types of kidney cancer and terms to know.
Building Your Care Team
TREATMENTS & TRIAL OPTIONS
Learn about how you could take part in kidney cancer treatments and trials.
LIVING WELL WITH KIDNEY CANCER
This will look different for everyone, but learn how to manage these changes and live life to the full.
Take a breath. Don’t go to the internet and read outdated statistics. Medicines and treatments are changing daily, weekly. Find a care team that you can trust.
I recommend SmartPatients.com for everybody; there’s a place for you on Smart Patients. You’ll hear from other patients, you’ll hear from professionals.
– Gary C.,
advice to a new kidney cancer patient
Connect with Our Communities
There are multiple support groups serving the kidney cancer community. SmartPatients.com is a patient forum and a KidneyCAN partner. We recommend this as a private, moderated place to talk with other patients. Your cancer center may also have their own support groups.
PATIENT News
Remembering Ralph: Time Well Spent
Ralph Knapp was diagnosed in 2014 with stage IV kidney cancer and used the opportunity to increase research funding and bring hope to patients everywhere. With heavy hearts and profound sadness, we announce the passing of Ralph Knapp, a founder of KidneyCAN and leader...
IKCC Report: Retention in Clinical Trials
The International Kidney Cancer Coalition launched a pilot program to understand the barriers and other considerations that drive the decision to leave a clinical trial and uncover ways to better support patients currently in or considering joining clinical trials....
Let’s Get Loud: Spring 2022 Advocacy Days
On March 7-8, KidneyCAN gathered advocates from all over the United States to ask Congress for robust funding for kidney cancer research through the NIH and CDMRP (Congressionally Directed Medical Research Programs). Read on to hear about our goals for this event and...
Join Our Grassroots Army
Join Us!
Today, KidneyCAN is working with One Voice Against Cancer to advocate for #cancer research funding. Here we are with Senator Toomey's office (PA), along with Senator Warnock's office (GA). Thank you to Livestrong and other organizations lifting their voices today!
We urge Congress to support $49 billion in #funding for the NIH and $7.766 billion for the NCI.
Let’s save lives through #CancerResearch!
#CancerVoice22
It's not too late to join us for the next Town Hall event in our series! Learn about shared decision-making and your immunotherapy choices from leading oncologists.
Register now: https://bit.ly/ImmunotherapyTownHall
#kidneycan #immunotherapy #townhall #livingwithcancer #cancerlife #kidneycancer #patienteducation
It's not too late to register for our next Town Hall event! Learn about immunotherapy choices for #kidneycancer treatment from leading oncologists. We'll have Dr. Naomi Haas from Penn Medicine, Dr. Hans Hammers from UTSW, and Dr. Monty Pal from City of Hope.
📅 Tues, April 26
🕔 5:00 PM EDT
💻 Free Webinar via Zoom
Register now! https://bit.ly/ImmunotherapyTownHall
#kidneycan #livingwithcancer #cancerlife #patienteducation #empoweredpatient #shareddecisionmaking
Reminder! Our next patient education town hall will explore immunotherapy options for #kidneycancer patients.
📅 April 26th
🕔 5:00 pm ET
💻 via Zoom webinar
Register here: https://bit.ly/ImmunotherapyTownHall
Featuring Drs. Naomi Haas of UPenn, Hans Hammers of UTSW, and Monty Pal of City of Hope. Join us to hear this panel of leading expert oncologists discuss how they share the immunotherapy decision-making process with their patients.
Researchers! KidneyCAN is accepting abstracts for the 2022 Kidney Cancer Research Summit on October 6-7 in Philadelphia, PA.
Don't miss the opportunity to be part of this incredible meeting for #kidneycancer specialists.
Abstract submission guidelines and full details here: http://bit.ly/KCRS22Abstracts
#kidneycancerresearch #cancerresearch #kcsm
Another educational opportunity for #KidneyCancer patients!
Learn from some of the nation's top doctors at Yale Cancer Center. Tomorrow night (Thursday) at 7:00 PM ET.
Register: https://zoom.us/webinar/register/WN_1uI0atogTR2VKcFC_W78Fg
Hear the latest in kidney cancer care, emerging therapies and general wellness from Dr. Thomas Hutson DO, Pharm.D., FACP of Texas Oncology and a panel of experts at @curetoday's Educated Patient® Kidney Cancer Summit on Saturday, April 9th .
Connect with the kidney cancer community and empower your own journey!
Learn more and reserve your virtual seat:
http://ow.ly/weVJ50Ivtjy
#educatedpatient #kidneycancer
We continue to honor the caregivers in our community during #KidneyCancerAwareness month. Tracy shares her insightful perspective along with the decisions she and her wife Julie had to make when facing a diagnosis.
Read more:
https://kidneycan.org/tracys-story-a-caregivers-perspective/
#kidneycancer #caregiving #cancerlife #livingwithcancer #caregiving #KCAM
Ralph Knapp, your community loves and remembers you.
Thank you all for your messages of support.
🧡💚✨
With heavy hearts and profound sadness, we announce the passing of Ralph Knapp, a founder of KidneyCAN and leader of our mission to accelerate cures for kidney cancer.
Ralph was diagnosed in 2014 with stage IV kidney cancer and used the opportunity to increase research funding and bring hope to patients everywhere. Ralph brought a unique energy and entrepreneurial acumen to kidney cancer advocacy, and despite his health challenges, was never without a smile and a hug for everyone. He was a model of faith and optimism, and our team will miss him enormously.
We are committed to carrying Ralph's mission forward and will share more in the days to come.
