“What strikes me about these individuals and many others I have met in the community is the personal will to ‘do something.’ The disease eliminates so much of our sense of agency that we thirst for the ability to make any kind of difference, and we are beginning to realize that we may be stronger together.”

The moniker “patient advocate” can come in many shapes, sizes and flavors. In the article below, you will hear about a few approaches we’re taking in the kidney cancer community.

These are not the only ways to contribute. Countless others are using their time care-taking, going to D.C. to advocate for funding, sharing advice and personal experiences with others, building data sets, reading publications, raising awareness, educating the public — the list goes on and on.

Furthermore, other advocacy organizations, such as the KCA, the Judy Nicholson Foundation, KCCure, ACKC, VHL Alliance, RMC, Powerful Patients, Kure It, Climb 4 Kidney Cancer, and the IKCC are all contributing to the overall efforts to enhance the community and “move the needle” toward a cure.

Thank you for all doing something. Together, we will succeed.

Bryan Lewis

President, KidneyCAN

Click image or this link to read full article.

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Chuck Stravin: “With Time Comes Hope”

Chuck Stravin is married to his high school sweetheart, Liz, and lives in Quincy, Massachusetts, just south of Boston. Diagnosed with advanced renal cancer in 2015, Chuck is beating the odds and has become a passionate advocate for kidney cancer research funding.   For this month's Community...

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From the Heart to the Hill: Advocating for Kidney Cancer Research Funding

From the Heart to the Hill: Advocating for Kidney Cancer Research Funding

Spring Advocacy : By the Numbers KidneyCAN is thrilled to announce the success of our Spring Advocacy Days event, which took place on March 13th in person in Washington, D.C., and on March 14th virtually. We are grateful for the 186 confirmed meetings with representatives from 42 states, including...

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Latest News

From the Heart to the Hill: Advocating for Kidney Cancer Research Funding

From the Heart to the Hill: Advocating for Kidney Cancer Research Funding

Spring Advocacy : By the Numbers KidneyCAN is thrilled to announce the success of our Spring Advocacy Days event, which took place on March 13th in person in Washington, D.C., and on March 14th virtually. We are grateful for the 186 confirmed meetings with representatives from 42 states, including...

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Latest News

Chuck Stravin: “With Time Comes Hope”

Chuck Stravin: “With Time Comes Hope”

Chuck Stravin is married to his high school sweetheart, Liz, and lives in Quincy, Massachusetts, just south of Boston. Diagnosed with advanced renal cancer in 2015, Chuck is beating the odds and has become a passionate advocate for kidney cancer research funding.   For this month's Community...