“What strikes me about these individuals and many others I have met in the community is the personal will to ‘do something.’ The disease eliminates so much of our sense of agency that we thirst for the ability to make any kind of difference, and we are beginning to realize that we may be stronger together.”

The moniker “patient advocate” can come in many shapes, sizes and flavors. In the article below, you will hear about a few approaches we’re taking in the kidney cancer community.

These are not the only ways to contribute. Countless others are using their time care-taking, going to D.C. to advocate for funding, sharing advice and personal experiences with others, building data sets, reading publications, raising awareness, educating the public — the list goes on and on.

Furthermore, other advocacy organizations, such as the KCA, the Judy Nicholson Foundation, KCCure, ACKC, VHL Alliance, RMC, Powerful Patients, Kure It, Climb 4 Kidney Cancer, and the IKCC are all contributing to the overall efforts to enhance the community and “move the needle” toward a cure.

Thank you for all doing something. Together, we will succeed.

Bryan Lewis

President, KidneyCAN

Click image or this link to read full article.

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Shari Stonacek: So Many Reasons to Live

Shari Stonacek: So Many Reasons to Live

Shari Stonacek is living with Stage IV kidney cancer. She is pictured here (center) with her family from left to right: daughter Joycin, daughter Jasmin, son-in-law Jordan, daughter-in-law Rachel holding grandson Landon, son Justin, Shari, husband Troy, daughter Joslin holding granddaughter...

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District Days 2021: Speaking with One Voice

District Days 2021: Speaking with One Voice

Our Ask: Fund Kidney Cancer Research We lose almost 40 people per day to kidney cancer in the United States. The need for research funding is urgent.For District Days, the kidney cancer community met with members of Congress all over the United States to ask for robust funding of kidney cancer...

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Shari Stonacek: So Many Reasons to Live

Shari Stonacek: So Many Reasons to Live

Shari Stonacek is living with Stage IV kidney cancer. She is pictured here (center) with her family from left to right: daughter Joycin, daughter Jasmin, son-in-law Jordan, daughter-in-law Rachel holding grandson Landon, son Justin, Shari, husband Troy, daughter Joslin holding granddaughter...

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District Days 2021: Speaking with One Voice

District Days 2021: Speaking with One Voice

Our Ask: Fund Kidney Cancer Research We lose almost 40 people per day to kidney cancer in the United States. The need for research funding is urgent.For District Days, the kidney cancer community met with members of Congress all over the United States to ask for robust funding of kidney cancer...

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Latest News

Shari Stonacek: So Many Reasons to Live

Shari Stonacek: So Many Reasons to Live

Shari Stonacek is living with Stage IV kidney cancer. She is pictured here (center) with her family from left to right: daughter Joycin, daughter Jasmin, son-in-law Jordan, daughter-in-law Rachel holding grandson Landon, son Justin, Shari, husband Troy, daughter Joslin holding granddaughter...