District Days: Do Something!

On August 12-13, 2020, KidneyCAN organized our first District Days. 122 advocates from 29 states participated in 115 conference call meetings during this remote Hill Day. The KidneyCAN team designed, marketed, promoted, and operated the 2 day event for stakeholders in the kidney cancer community. Our partnering organizations included Joey’s Wings, Judy Nicholson Kidney Cancer Foundation (JNKCF), National Kidney Foundation (NKF), and VHL Alliance. The purpose of the event was as follows:

  • To Draw Attention to & Build Awareness of kidney cancer.
  • To Educate Policymakers (and staff) of the impact of kidney cancer on individuals, caregivers, families and other stakeholders.
  • To Speak as One Voice for the kidney cancer community.
  • To Thank Representatives for supporting issues impacting the community and to have a clearly articulated “ask” of legislators based on the legislative priorities of the kidney cancer community.
  • To Represent multiple stakeholder constituencies from multiple states.

“I had great experiences speaking with Rep. Delgado, Senator Gillibrand, and Senator Schumer’s offices these past two days. The staff from all three offices were engaged & genuinely interested in hearing our stories.”
– Bruce H., New York Delegate

Prior to meeting in-district with their local representatives, delegates attended an online educational seminar (Advocacy 101). This Advocacy 101 session included speakers from partner advocacy organizations, health care advocates, rehearsal/role playing, logistics, ‘how to do’ Congressional meetings and related matters. The aim of this seminar was to educate our participants to discuss issues impacting the kidney cancer community and to have a clearly articulated “ASK.” The seminar included providing each delegate with a Toolkit of patient advocacy “tools.” These tools included talking points, script, a “leave behind” document, legislative do’s and don’ts, appointment schedules, and related patient advocate materials.

Day 1 (August 12th) consisted of our advocates meeting virtually with staff and members of their local Congressional House district offices. Day 2 (August 13th) included our advocates meeting virtually with staff and members of their local Congressional Senate district offices.

 

Our Asks included:

  • $3 billion increase in funding for the NIH and NCI.
  • $50 million for the KCRP (CDMRP).
  • Continue to support legislative initiatives that contribute to robust, sustainable funding for medical research.
  • Continue to listen to the patient perspective on legislative policy matters.

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Shari Stonacek: So Many Reasons to Live

Shari Stonacek: So Many Reasons to Live

Shari Stonacek is living with Stage IV kidney cancer. She is pictured here (center) with her family from left to right: daughter Joycin, daughter Jasmin, son-in-law Jordan, daughter-in-law Rachel holding grandson Landon, son Justin, Shari, husband Troy, daughter Joslin holding granddaughter...

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District Days 2021: Speaking with One Voice

District Days 2021: Speaking with One Voice

Our Ask: Fund Kidney Cancer Research We lose almost 40 people per day to kidney cancer in the United States. The need for research funding is urgent.For District Days, the kidney cancer community met with members of Congress all over the United States to ask for robust funding of kidney cancer...

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Latest News

Shari Stonacek: So Many Reasons to Live

Shari Stonacek: So Many Reasons to Live

Shari Stonacek is living with Stage IV kidney cancer. She is pictured here (center) with her family from left to right: daughter Joycin, daughter Jasmin, son-in-law Jordan, daughter-in-law Rachel holding grandson Landon, son Justin, Shari, husband Troy, daughter Joslin holding granddaughter...

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Latest News

District Days 2021: Speaking with One Voice

District Days 2021: Speaking with One Voice

Our Ask: Fund Kidney Cancer Research We lose almost 40 people per day to kidney cancer in the United States. The need for research funding is urgent.For District Days, the kidney cancer community met with members of Congress all over the United States to ask for robust funding of kidney cancer...

SUPPORT OUR WORK →

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Latest News

Shari Stonacek: So Many Reasons to Live

Shari Stonacek: So Many Reasons to Live

Shari Stonacek is living with Stage IV kidney cancer. She is pictured here (center) with her family from left to right: daughter Joycin, daughter Jasmin, son-in-law Jordan, daughter-in-law Rachel holding grandson Landon, son Justin, Shari, husband Troy, daughter Joslin holding granddaughter...