Our Ask: Fund Kidney Cancer Research

We lose almost 40 people per day to kidney cancer in the United States. The need for research funding is urgent.
For District Days, the kidney cancer community met with members of Congress all over the United States to ask for robust funding of kidney cancer research.

Each time we do this, we organize a list of  “asks” that concisely explain what the kidney cancer community as a whole wants Congress to do. Our 2021 asks are as follows. We want Congress to

  • Maintain the $50 million currently allocated for KCRP for Fiscal Year 2022.
  • Increase the NIH budget by $3.5 billion for Fiscal Year 2022.
  • Support the creation of ARPA-H (the Advanced Research Projects Agency – Health) at NIH with an additional $3 billion.
  • Continue supporting legislative initiatives that contribute to robust, sustainable funding for medical research.
  • Continue to incorporate the patient perspective on legislative policy matters.

 

 

Thank you to the many delegates from all over the country who spoke on behalf of patients, caregivers, friends, and family members today. Thank you to doctors and researchers from the medical community who made the time in their busy schedules to lift their voices with ours.

Days of Online Meetings

Meetings with Congressional Offices

Kidney Cancer Advocates

States Represented by Advocates

"An Incredible Two Days of Advocacy"

Dr. Mehdi Mollapour, a urology professor and kidney cancer researcher from Upstate Medical University, joined patients and families to speak to the office of Senator Gillibrand (NY) about the need for funding the Kidney Cancer Research Program through the Congressionally Directed Medical Research Program. 

Kidney Cancer Advocacy in Tennesee

Dr. John T. Wilson of Vanderbilt University Medical spoke to the office of Representative Jim Cooper (TN) to discuss the impact of KCRP research funding on patients’ lives. He was joined by KidneyCAN patients and advocates as well. 

“This was an amazing experience! I would recommend anyone who is able to participate next time.”

– Brandy R., New York Advocate

We are always looking for more people to join us for kidney cancer research advocacy events. If you want to hear from us when we are organizing the next time, join our newsletter list!

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Lenny and Phyllis: “We Need to Keep Up the Fight”

Lenny and Phyllis: “We Need to Keep Up the Fight”

Phyllis was diagnosed with kidney cancer in 2012. Tumors were found on both kidneys and treated with surgery. Her cancer progessed to stage IV in 2014, but Phyllis says, "Here I am, ten years later! Life has changed, but it is good!" For this month's Community Spotlight, we are sharing the story...

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District Days: Asking Congress to Fund Kidney Cancer Research

District Days: Asking Congress to Fund Kidney Cancer Research

On August 8-9th, KidneyCAN gathered advocates from all over the United States to ask Congress for robust funding for kidney cancer research through the NIH and CDMRP (Congressionally Directed Medical Research Programs). Read on to hear about our goals for this event and how you can help fund...

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The 2022 Kidney Cancer Research Summit

The 2022 Kidney Cancer Research Summit

Dr. Laurence Albiges (Institut Gustave Roussy) presents on the microbiome at KCRS22. The microbiome has now been recognized as one of the emerging hallmarks and enabling characteristics of cancer. KidneyCAN hosted the 4th Annual Kidney Cancer Research Summit on October 6-7, 2022  live in...

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Latest News

Lenny and Phyllis: “We Need to Keep Up the Fight”

Lenny and Phyllis: “We Need to Keep Up the Fight”

Phyllis was diagnosed with kidney cancer in 2012. Tumors were found on both kidneys and treated with surgery. Her cancer progessed to stage IV in 2014, but Phyllis says, "Here I am, ten years later! Life has changed, but it is good!" For this month's Community Spotlight, we are sharing the story...