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Leah Christoforidis: Rare Kidney Cancer and Her Advocacy for Research

Leah Christoforidis: Rare Kidney Cancer and Her Advocacy for Research

Meet Leah Christoforidis, a resilient Illinois resident and mother of four, whose life took an unexpected turn when diagnosed with a rare form of kidney cancer during her pregnancy. In this month's Community Spotlight, Leah shares her compelling journey from diagnosis to advocacy, revealing how...

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Latest News

Leah Christoforidis: Rare Kidney Cancer and Her Advocacy for Research

Leah Christoforidis: Rare Kidney Cancer and Her Advocacy for Research

Meet Leah Christoforidis, a resilient Illinois resident and mother of four, whose life took an unexpected turn when diagnosed with a rare form of kidney cancer during her pregnancy. In this month's Community Spotlight, Leah shares her compelling journey from diagnosis to advocacy, revealing how...

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Renée Maria Saliby: Kidney Cancer Research Champion

Renée Maria Saliby: Kidney Cancer Research Champion

Introducing Renée Maria Saliby, a dedicated young investigator in kidney cancer research! At just 27, Renée is blazing an inspring professional trail. Read on as she shares insights from her personal experiences and career pursuits, along with opportunities available for young researchers to...

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Latest News

Leah Christoforidis: Rare Kidney Cancer and Her Advocacy for Research

Leah Christoforidis: Rare Kidney Cancer and Her Advocacy for Research

Meet Leah Christoforidis, a resilient Illinois resident and mother of four, whose life took an unexpected turn when diagnosed with a rare form of kidney cancer during her pregnancy. In this month's Community Spotlight, Leah shares her compelling journey from diagnosis to advocacy, revealing how...

Our Ask: Fund Kidney Cancer Research

We lose almost 40 people per day to kidney cancer in the United States. The need for research funding is urgent.
For District Days, the kidney cancer community met with members of Congress all over the United States to ask for robust funding of kidney cancer research.

Each time we do this, we organize a list of  “asks” that concisely explain what the kidney cancer community as a whole wants Congress to do. Our 2021 asks are as follows. We want Congress to

  • Maintain the $50 million currently allocated for KCRP for Fiscal Year 2022.
  • Increase the NIH budget by $3.5 billion for Fiscal Year 2022.
  • Support the creation of ARPA-H (the Advanced Research Projects Agency – Health) at NIH with an additional $3 billion.
  • Continue supporting legislative initiatives that contribute to robust, sustainable funding for medical research.
  • Continue to incorporate the patient perspective on legislative policy matters.

 

 

Thank you to the many delegates from all over the country who spoke on behalf of patients, caregivers, friends, and family members today. Thank you to doctors and researchers from the medical community who made the time in their busy schedules to lift their voices with ours.

Days of Online Meetings

Meetings with Congressional Offices

Kidney Cancer Advocates

States Represented by Advocates

"An Incredible Two Days of Advocacy"

Dr. Mehdi Mollapour, a urology professor and kidney cancer researcher from Upstate Medical University, joined patients and families to speak to the office of Senator Gillibrand (NY) about the need for funding the Kidney Cancer Research Program through the Congressionally Directed Medical Research Program. 

Kidney Cancer Advocacy in Tennesee

Dr. John T. Wilson of Vanderbilt University Medical spoke to the office of Representative Jim Cooper (TN) to discuss the impact of KCRP research funding on patients’ lives. He was joined by KidneyCAN patients and advocates as well. 

“This was an amazing experience! I would recommend anyone who is able to participate next time.”

– Brandy R., New York Advocate

We are always looking for more people to join us for kidney cancer research advocacy events. If you want to hear from us when we are organizing the next time, join our newsletter list!