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Renée Maria Saliby: Kidney Cancer Research Champion

Renée Maria Saliby: Kidney Cancer Research Champion

Introducing Renée Maria Saliby, a dedicated young investigator in kidney cancer research! At just 27, Renée is blazing an inspring professional trail. Read on as she shares insights from her personal experiences and career pursuits, along with opportunities available for young researchers to...

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Empowering Young Voices: The Role of Youth in Kidney Cancer Advocacy

Empowering Young Voices: The Role of Youth in Kidney Cancer Advocacy

Scarlett Talcott, a vibrant 11-year-old from southern Montana, stands confidently in front of the Capitol Building during KidneyCAN's Advocacy Day. Living on a ranch with her parents, sister, and two brothers, Scarlett balances her love for the arts, crafting, and 4-H activities with a strong...

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Latest News

Renée Maria Saliby: Kidney Cancer Research Champion

Renée Maria Saliby: Kidney Cancer Research Champion

Introducing Renée Maria Saliby, a dedicated young investigator in kidney cancer research! At just 27, Renée is blazing an inspring professional trail. Read on as she shares insights from her personal experiences and career pursuits, along with opportunities available for young researchers to...

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Latest News

Diagnosis

A diagnosis of kidney cancer can be overwhelming at first.  There is an infinite amount of information available to patients and caregivers who are reeling from the diagnosis.

Our goal is to inform without adding to the overwhelm you’re already experiencing. We have reliable resources of information to help you as you begin to learn about kidney cancer.

A Kidney Cancer Diagnosis

What is a renal mass?

“We see a mass on your kidney.”  Perhaps you heard this statement after a CT or ultrasound that was performed for another reason, and you are wondering what is going to happen next. Kidney cancer is also referred to as a “renal mass” which is an abnormal growth in the kidney.

Why didn’t my doctor find my kidney cancer sooner?

There is no screening test for kidney cancer so it is usually discovered by chance or after symptoms develop. Genetic health conditions can increase a risk for kidney cancer. Additional testing is usually required to make a good plan for your care.

There are so many medical words that I don’t understand!

You’ll soon become very familiar with the terminology and acronyms used in your care. In the meantime, here’s a tool to help.  Enter the word you’d like explained in this dictionary of cancer terms provided by the National Cancer Institute:

VISIT >

Useful Videos

This excellent video “When the Doctor Says Cancer” from CANCER.NET gives you an excellent overview of how to navigate this difficult time.
This video from the Urology Care Foundation “What is a Renal Mass?” is a good place to start understanding about kidney cancer.

Click the image to download this comprehensive resource book from the National Comprehensive Cancer Network for clear and comprehensive information about many aspects of kidney cancer, from basic concept to treatment guides.

Listen as Dr. Hans Hammers of UT Southwestern talks about diagnosis, early doctor visits, second opinions, shared decision making, and the early planning process.

Building your care team

Choosing a doctor can feel overwhelming, but this is especially true for patients with kidney cancer, which is considered one of the more “rare” cancers.

How is kidney cancer treated?

Your treatment will be customized to your own disease and you may not have a plan until test results are available.  You may be given more than one option for treatment.

In this case, resources created by the International Kidney Cancer Coalition called “My Treatment, My Choices”  might be very helpful. These informational PDFs include workbooks to help you understand your options, ask the right questions at your appointments, and make a care plan.

Surgery, targeted therapy,  immunotherapy, or a combination may be used, depending on how advanced your cancer is.

Traditional “chemotherapy” isn’t used for most types of kidney cancer.

Reliable  Resources for Cancer Information
The internet is vast, and looking online for medical information or resources can be overwhelming. Here are some trustworthy sites to find information on kidney cancer.
NATIONAL CANCER INSTITUTE
www.cancer.gov
From the American Society of Clinical Oncologists (ASCO)
CANCER.NET
www.cancer.net
NATIONAL COMPREHENSIVE CANCER NETWORK
Guidelines for Patients with Kidney Cancer
www.nccn.org
NATIONAL COMPREHENSIVE CANCER NETWORK
Pautas para Pacientes con Cáncer de Riñón (Español)
www.nccn.org
INTERNATIONAL KIDNEY CANCER COALITION
www.ikcc.org
CANCER AND CAREERS
Strategies for Coping with Cancer in the Workplace
www.cancerandcareers.org

This helpful widget from the National Cancer Institute can help you with medical vocabulary:

Connect with Our Communities

There are multiple support groups serving the kidney cancer community.  SmartPatients.com is a patient forum and a KidneyCAN partner. We recommend this as a private, moderated  place to talk with other patients.  Your cancer center may also have their own support groups.

Join Our Grassroots Army

We know that awareness of kidney cancer and its impact on many lives leads to a sense of urgency, a desire for solutions. Awareness leads to advocacy, and advocacy — joining to speak as one voice — leads to funding and research. That’s how we get to cures.

"On May 10, 2016, I was blindsided with a stage four #kidneycancer diagnosis. I thought I was going to die. The five-year survival rate that year for metastatic #RCC patients was 5%." -- Laura, on the other side of her participation in a clinical trial

-----------------------------

Join us for “Partners in Progress: Real Talk on Clinical Trials with Doctors and Patients,” a KidneyCAN Town Hall where exploration meets real-world experience.

👉Hear Directly from Experts: Renowned doctors Dr. Naomi Haas and Dr. Bradley McGregor will demystify the process and potential of clinical trials in kidney cancer care.
👉Gain Patient Perspectives: Patients will share their unfiltered experiences with clinical trials, offering insights that only someone who has walked this path can provide.
👉Ask Your Questions: This is your chance to get unvarnished information and advice straight from those deeply entrenched in the fight against kidney cancer.

Arm yourself with knowledge and join a community eager to support you at every step of your journey!

Register now and secure your spot: https://bit.ly/RealTalkTrials

"On May 10, 2016, I was blindsided with a stage four #kidneycancer diagnosis. I thought I was going to die. The five-year survival rate that year for metastatic #RCC patients was 5%." -- Laura, on the other side of her participation in a clinical trial

-----------------------------

Join us for “Partners in Progress: Real Talk on Clinical Trials with Doctors and Patients,” a KidneyCAN Town Hall where exploration meets real-world experience.

👉Hear Directly from Experts: Renowned doctors Dr. Naomi Haas and Dr. Bradley McGregor will demystify the process and potential of clinical trials in kidney cancer care.
👉Gain Patient Perspectives: Patients will share their unfiltered experiences with clinical trials, offering insights that only someone who has walked this path can provide.
👉Ask Your Questions: This is your chance to get unvarnished information and advice straight from those deeply entrenched in the fight against kidney cancer.

Arm yourself with knowledge and join a community eager to support you at every step of your journey!

Register now and secure your spot: https://bit.ly/RealTalkTrials
...

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When Deb was diagnosed with stage IV kidney cancer six years ago, she thought she would miss out on a lot of life experiences. She turned to a clinical trial for hope.

Let's talk about the role of clinical trials in #kidneycancer treatment with those on the front lines. KidneyCAN's next Town Hall brings you insights from renowned doctors and experienced patients. 

🗓️ Wednesday, April 24th
⏰ 6 pm ET
💻 Free, Interactive Zoom Webinar
🥰 Community Social to follow

Register now to save your seat and ask your questions for the panel: https://bit.ly/RealTalkTrials

Let's navigate this path together!

When Deb was diagnosed with stage IV kidney cancer six years ago, she thought she would miss out on a lot of life experiences. She turned to a clinical trial for hope.

Let`s talk about the role of clinical trials in #kidneycancer treatment with those on the front lines. KidneyCAN`s next Town Hall brings you insights from renowned doctors and experienced patients.

🗓️ Wednesday, April 24th
⏰ 6 pm ET
💻 Free, Interactive Zoom Webinar
🥰 Community Social to follow

Register now to save your seat and ask your questions for the panel: https://bit.ly/RealTalkTrials

Let`s navigate this path together!
...

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KidneyCAN is proud to partner with the American Association for Cancer Research to offer two $50,000 one-year grants for basic, translational, and/or clinical research projects. We want to stimulate creative approaches for treating #KidneyCancer. 

✅One page application!
⏰Apply by April 11! 

Learn more: https://bit.ly/AACR-KidneyCAN-Grant

Let's #AccelerateCures!

KidneyCAN is proud to partner with the American Association for Cancer Research to offer two $50,000 one-year grants for basic, translational, and/or clinical research projects. We want to stimulate creative approaches for treating #KidneyCancer.

✅One page application!
⏰Apply by April 11!

Learn more: https://bit.ly/AACR-KidneyCAN-Grant

Let`s #AccelerateCures!
...

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Get the scoop on clinical trial participation from those who know! 

Plan to join KidneyCAN for our next Town Hall on April 24th: "Partners in Progress: Real Talk on Clinical Trials with Doctors and Patients." You'll learn everything you need to know as you weigh trial and treatment options for #KidneyCancer, from both doctor and patient panelists. 

Register now 👉 https://bit.ly/RealTalkTrials

Be sure to drop your questions in the comments here, as well as in the form when you register, so our team can ensure we answer as many as possible.

Get the scoop on clinical trial participation from those who know!

Plan to join KidneyCAN for our next Town Hall on April 24th: "Partners in Progress: Real Talk on Clinical Trials with Doctors and Patients." You`ll learn everything you need to know as you weigh trial and treatment options for #KidneyCancer, from both doctor and patient panelists.

Register now 👉 https://bit.ly/RealTalkTrials

Be sure to drop your questions in the comments here, as well as in the form when you register, so our team can ensure we answer as many as possible.
...

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"I don't know what's gonna happen tomorrow or next year, but for right now, I've determined that I'm gonna live as much as I can, as well as I can."

Six years after his diagnosis of Stage IV kidney cancer, Dr. Adam Stern's story is a light of optimism in the face of adversity. His video update reminds us of the power of living fully each day.

As we mark the end of #KidneyCancerAwarenessMonth, we reflect on the journey of hope, resilience, and community we've shared. Indeed, we go forward together.

Stay connected with KidneyCAN on social media and explore our Patient Resource Center for valuable insights and guidance. Every day of the year, thank you for being part of our community to #AccelerateCures for #KidneyCancer.

🧡💚💪✨

"I don`t know what`s gonna happen tomorrow or next year, but for right now, I`ve determined that I`m gonna live as much as I can, as well as I can."

Six years after his diagnosis of Stage IV kidney cancer, Dr. Adam Stern`s story is a light of optimism in the face of adversity. His video update reminds us of the power of living fully each day.

As we mark the end of #KidneyCancerAwarenessMonth, we reflect on the journey of hope, resilience, and community we`ve shared. Indeed, we go forward together.

Stay connected with KidneyCAN on social media and explore our Patient Resource Center for valuable insights and guidance. Every day of the year, thank you for being part of our community to #AccelerateCures for #KidneyCancer.

🧡💚💪✨
...

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This #KidneyCancerAwarenessMonth, remember that maintaining a healthy and active lifestyle during treatment is not just possible — it's empowering! 

Watch our Town Hall webinar to learn practical strategies for keeping your kidney function strong and your spirits high, directly from experts and fellow warriors on the same journey. 

Together, let's make health and activity our allies in the fight against #kidneycancer.

👉 Stay Active, Stay Informed: https://kidneycan.org/protecting-your-kidney-health/

This #KidneyCancerAwarenessMonth, remember that maintaining a healthy and active lifestyle during treatment is not just possible — it`s empowering!

Watch our Town Hall webinar to learn practical strategies for keeping your kidney function strong and your spirits high, directly from experts and fellow warriors on the same journey.

Together, let`s make health and activity our allies in the fight against #kidneycancer.

👉 Stay Active, Stay Informed: https://kidneycan.org/protecting-your-kidney-health/
...

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Did you know? Fewer than 5% of cancer patients enroll in clinical trials, yet these trials are crucial for advancing treatment. This #KidneyCancerAwarenessMonth, let's change the narrative. 

Our KidneyCAN Patient Resource Center offers clear, accessible information on treatment options and clinical trials, helping you make informed decisions. 

👉 Access the Resources: https://bit.ly/KidneyCANPRCTrials

#KidneyCancerAwareness #ClinicalTrialParticipation #PatientEmpowerment #KidneyCAN

Did you know? Fewer than 5% of cancer patients enroll in clinical trials, yet these trials are crucial for advancing treatment. This #KidneyCancerAwarenessMonth, let`s change the narrative.

Our KidneyCAN Patient Resource Center offers clear, accessible information on treatment options and clinical trials, helping you make informed decisions.

👉 Access the Resources: https://bit.ly/KidneyCANPRCTrials

#KidneyCancerAwareness #ClinicalTrialParticipation #PatientEmpowerment #KidneyCAN
...

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Exciting news from KidneyCAN! 🌟 

In partnership with AACR, we're directly funding two $50,000 research grants to advance kidney cancer treatments. It's a big leap toward new breakthroughs, and it's all thanks to the support of our incredible community. 

Together, we're #AcceleratingCures. 

https://bit.ly/AACR-KidneyCAN-Grant

Exciting news from KidneyCAN! 🌟

In partnership with AACR, we`re directly funding two $50,000 research grants to advance kidney cancer treatments. It`s a big leap toward new breakthroughs, and it`s all thanks to the support of our incredible community.

Together, we`re #AcceleratingCures.

https://bit.ly/AACR-KidneyCAN-Grant
...

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Kidney cancer can occur in various forms, with the most common type being renal cell carcinoma (#RCC), which itself is categorized into several subtypes. The main subtypes of RCC include clear cell RCC, papillary RCC (which has two subtypes: type 1 and type 2), chromophobe RCC, and collecting duct RCC. There are also less common types of #KidneyCancer, such as medullary carcinoma, mucinous tubular and spindle cell carcinoma, and neuroblastoma-associated RCC.

Understanding  your specific diagnosis is key to building the right care team. Unfortunately, according to a survey conducted by the International Kidney Cancer Coalition (IKCC), many patients leave their first appointments without a clear understanding of their diagnosis. 

Our Patient Resource Center can help you make sense of the different types of kidney cancer and the specialists who will treat your condition. Check it out at www.kidneycan.org. 

#KidneyCancerAwarenessMonth

Kidney cancer can occur in various forms, with the most common type being renal cell carcinoma (#RCC), which itself is categorized into several subtypes. The main subtypes of RCC include clear cell RCC, papillary RCC (which has two subtypes: type 1 and type 2), chromophobe RCC, and collecting duct RCC. There are also less common types of #KidneyCancer, such as medullary carcinoma, mucinous tubular and spindle cell carcinoma, and neuroblastoma-associated RCC.

Understanding your specific diagnosis is key to building the right care team. Unfortunately, according to a survey conducted by the International Kidney Cancer Coalition (IKCC), many patients leave their first appointments without a clear understanding of their diagnosis.

Our Patient Resource Center can help you make sense of the different types of kidney cancer and the specialists who will treat your condition. Check it out at www.kidneycan.org.

#KidneyCancerAwarenessMonth
...

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