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Leah Christoforidis: Rare Kidney Cancer and Her Advocacy for Research

Leah Christoforidis: Rare Kidney Cancer and Her Advocacy for Research

Meet Leah Christoforidis, a resilient Illinois resident and mother of four, whose life took an unexpected turn when diagnosed with a rare form of kidney cancer during her pregnancy. In this month's Community Spotlight, Leah shares her compelling journey from diagnosis to advocacy, revealing how...

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Leah Christoforidis: Rare Kidney Cancer and Her Advocacy for Research

Leah Christoforidis: Rare Kidney Cancer and Her Advocacy for Research

Meet Leah Christoforidis, a resilient Illinois resident and mother of four, whose life took an unexpected turn when diagnosed with a rare form of kidney cancer during her pregnancy. In this month's Community Spotlight, Leah shares her compelling journey from diagnosis to advocacy, revealing how...

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Renée Maria Saliby: Kidney Cancer Research Champion

Renée Maria Saliby: Kidney Cancer Research Champion

Introducing Renée Maria Saliby, a dedicated young investigator in kidney cancer research! At just 27, Renée is blazing an inspring professional trail. Read on as she shares insights from her personal experiences and career pursuits, along with opportunities available for young researchers to...

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Latest News

Leah Christoforidis: Rare Kidney Cancer and Her Advocacy for Research

Leah Christoforidis: Rare Kidney Cancer and Her Advocacy for Research

Meet Leah Christoforidis, a resilient Illinois resident and mother of four, whose life took an unexpected turn when diagnosed with a rare form of kidney cancer during her pregnancy. In this month's Community Spotlight, Leah shares her compelling journey from diagnosis to advocacy, revealing how...

Learn About Clinical Trials

Clinical trials are research studies that involve people. Any time you or a loved one need treatment for cancer, clinical trials are an option to think about. Learning all you can about clinical trials can help you talk with your doctor and decide what is right for you.

We want to provide you with up-to-date, credible information about clinical trials. Information on this page is from the National Cancer Institute (NCI) and the National Institutes of Health (NIH).

What are Clinical Trials?

Clinical trials are research studies that involve people. Through clinical trials, doctors find new ways to improve treatments and the quality of life for people with disease.

Researchers design cancer clinical trials to test new ways to:

    • Treat cancer
    • Find and diagnose cancer
    • Prevent cancer
    • Manage symptoms of cancer and side effects from its treatment

Clinical trials are the final step in a long process that begins with research in a lab. Before any new treatment is used with people in clinical trials, researchers work for many years to understand its effects on cancer cells in the lab and in animals. They also try to figure out the side effects it may cause.

Every trial has a doctor in charge, who is called the principal investigator. The principal investigator prepares a plan for the trial, called a protocol. The protocol explains what will be done during the trial. It also contains information that helps the doctor decide if this treatment is right for you. Such as:

  • The reason for doing the trial
  • Who can join the trial (called “eligibility criteria”)
  • How many people are needed for the trial
  • Any drugs or other treatments that will be given, how they will be given, the dose, and how often
  • What medical tests will be done and how often
  • What types of information will be collected about the people taking part

Any time you or a loved one needs treatment for cancer, clinical trials are an option to think about. Trials are available for all stages of cancer. It is a myth that they are only for people who have advanced cancer that is not responding to treatment.

To look for NCI-supported trials, click here.

Why are Clinical Trials Important?

Today, people are living longer lives from successful cancer treatments that are the results of past clinical trials. Through clinical trials, doctors determine whether new treatments are safe and effective and work better than current treatments. Clinical trials also help us find new ways to prevent and detect cancer, and they help us improve the quality of life for people during and after treatment. When you take part in a clinical trial, you add to our knowledge about cancer and help improve cancer care for future patients. Clinical trials are the key to making progress against cancer.

We asked patients and doctors to discuss their clinical trial experience for people who are wondering if a clinical trial might be right for them.

Why should I join a clinical trial?

Clinical trials are part of clinical research and at the heart of all medical advances. Clinical trials look at new ways to prevent, detect, or treat disease.

Treatments might be new drugs or new combinations of drugs, new surgical procedures or devices, or new ways to use existing treatments.

The goal of clinical trials is to determine if a new test or treatment works and is safe. Clinical trials can also look at other aspects of care, such as improving the quality of life for people with chronic illnesses.

People participate in clinical trials for a variety of reasons. Healthy volunteers say they participate to help others and to contribute to moving science forward. Participants with an illness or disease also participate to help others, but also to possibly receive the newest treatment and to have the additional care and attention from the clinical trial staff.

Clinical trials offer hope for many people and an opportunity to help researchers find better treatments for others in the future.

NCI has trained trial counselors who can help you find potential trials to discuss with your oncologist.  There is no charge to you.

Talking with your oncologist about trials

Dr Martin Voss, medical oncologist from MSKCC gives a detailed discussion of enrolling in a clinical trial for kidney cancer patients.

How do I find a Kidney Cancer Trial?

Watch this quick overview of how to search for an NCI-supported clinical trial or call 1-800-4-CANCER (1-800-422-6237) to speak with an NCI cancer information specialist in English or Spanish.

After a discussion with your oncologist about trials, you may want to explore options yourself.

NCI offers help for patients new to clinical trials useful steps to find a trial.

How can I find kidney cancer trials close to me?

Click the link to search on clinicaltrials.gov which has the broadest information. Fill in a few basics like “kidney cancer” and your location. You can add a keyword like “immunotherapy” or “Papillary” to filter your results and shorten the list.

Kidney Cancer Research Consortium

The Kidney Cancer Research Consortium is comprised of seven partner institutions at top academic research institutions across the country.

Visit their website for more information about clinical trials.

Paying for Clinical Trials

Many patients ask about the costs of trial participation. A mix of insurance plus trial sponsor support can minimize your out-of-pocket costs.

Learn more by watching this short video from Cancer.gov below.

Download this useful document from the National Cancer Institute to read about taking part in a clinical research trial.

Reliable  Resources for Cancer Information
NATIONAL CANCER INSTITUTE
www.cancer.gov
CANCER.NET
www.cancer.net/cancer-types/kidney-cancer
INTERNATIONAL KIDNEY CANCER COALITION
www.ikcc.org
CANCER AND CAREERS
www.cancerandcareers.org/en/at-work

Join Our Grassroots Army

We know that awareness of kidney cancer and its impact on many lives leads to a sense of urgency, a desire for solutions. Awareness leads to advocacy, and advocacy — joining to speak as one voice — leads to funding and research. That’s how we get to cures.

Missed our "Partners in Progress" Town Hall? The full event is now available for you to watch at your convenience! 

Get the latest insights on clinical trials for kidney cancer from top experts and hear the powerful stories of patients. Plus, find all the links and resources mentioned during the event on our website. 

Your journey towards understanding and navigating kidney cancer treatments continues here.

Watch Now: https://kidneycan.org/real-talk-on-kidney-cancer-clinical-trials/

Missed our "Partners in Progress" Town Hall? The full event is now available for you to watch at your convenience!

Get the latest insights on clinical trials for kidney cancer from top experts and hear the powerful stories of patients. Plus, find all the links and resources mentioned during the event on our website.

Your journey towards understanding and navigating kidney cancer treatments continues here.

Watch Now: https://kidneycan.org/real-talk-on-kidney-cancer-clinical-trials/
...

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Clinical trials can be a game-changer in #KidneyCancer treatment. Join our next Town Hall and get all your questions answered by those who know best: the patients and doctors. 

Join us next week! Your journey to healing starts here. 🌟

https://bit.ly/RealTalkTrials

Clinical trials can be a game-changer in #KidneyCancer treatment. Join our next Town Hall and get all your questions answered by those who know best: the patients and doctors.

Join us next week! Your journey to healing starts here. 🌟

https://bit.ly/RealTalkTrials
...

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"On May 10, 2016, I was blindsided with a stage four #kidneycancer diagnosis. I thought I was going to die. The five-year survival rate that year for metastatic #RCC patients was 5%." -- Laura, on the other side of her participation in a clinical trial

-----------------------------

Join us for “Partners in Progress: Real Talk on Clinical Trials with Doctors and Patients,” a KidneyCAN Town Hall where exploration meets real-world experience.

👉Hear Directly from Experts: Renowned doctors Dr. Naomi Haas and Dr. Bradley McGregor will demystify the process and potential of clinical trials in kidney cancer care.
👉Gain Patient Perspectives: Patients will share their unfiltered experiences with clinical trials, offering insights that only someone who has walked this path can provide.
👉Ask Your Questions: This is your chance to get unvarnished information and advice straight from those deeply entrenched in the fight against kidney cancer.

Arm yourself with knowledge and join a community eager to support you at every step of your journey!

Register now and secure your spot: https://bit.ly/RealTalkTrials

"On May 10, 2016, I was blindsided with a stage four #kidneycancer diagnosis. I thought I was going to die. The five-year survival rate that year for metastatic #RCC patients was 5%." -- Laura, on the other side of her participation in a clinical trial

-----------------------------

Join us for “Partners in Progress: Real Talk on Clinical Trials with Doctors and Patients,” a KidneyCAN Town Hall where exploration meets real-world experience.

👉Hear Directly from Experts: Renowned doctors Dr. Naomi Haas and Dr. Bradley McGregor will demystify the process and potential of clinical trials in kidney cancer care.
👉Gain Patient Perspectives: Patients will share their unfiltered experiences with clinical trials, offering insights that only someone who has walked this path can provide.
👉Ask Your Questions: This is your chance to get unvarnished information and advice straight from those deeply entrenched in the fight against kidney cancer.

Arm yourself with knowledge and join a community eager to support you at every step of your journey!

Register now and secure your spot: https://bit.ly/RealTalkTrials
...

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When Deb was diagnosed with stage IV kidney cancer six years ago, she thought she would miss out on a lot of life experiences. She turned to a clinical trial for hope.

Let's talk about the role of clinical trials in #kidneycancer treatment with those on the front lines. KidneyCAN's next Town Hall brings you insights from renowned doctors and experienced patients. 

🗓️ Wednesday, April 24th
⏰ 6 pm ET
💻 Free, Interactive Zoom Webinar
🥰 Community Social to follow

Register now to save your seat and ask your questions for the panel: https://bit.ly/RealTalkTrials

Let's navigate this path together!

When Deb was diagnosed with stage IV kidney cancer six years ago, she thought she would miss out on a lot of life experiences. She turned to a clinical trial for hope.

Let`s talk about the role of clinical trials in #kidneycancer treatment with those on the front lines. KidneyCAN`s next Town Hall brings you insights from renowned doctors and experienced patients.

🗓️ Wednesday, April 24th
⏰ 6 pm ET
💻 Free, Interactive Zoom Webinar
🥰 Community Social to follow

Register now to save your seat and ask your questions for the panel: https://bit.ly/RealTalkTrials

Let`s navigate this path together!
...

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KidneyCAN is proud to partner with the American Association for Cancer Research to offer two $50,000 one-year grants for basic, translational, and/or clinical research projects. We want to stimulate creative approaches for treating #KidneyCancer. 

✅One page application!
⏰Apply by April 11! 

Learn more: https://bit.ly/AACR-KidneyCAN-Grant

Let's #AccelerateCures!

KidneyCAN is proud to partner with the American Association for Cancer Research to offer two $50,000 one-year grants for basic, translational, and/or clinical research projects. We want to stimulate creative approaches for treating #KidneyCancer.

✅One page application!
⏰Apply by April 11!

Learn more: https://bit.ly/AACR-KidneyCAN-Grant

Let`s #AccelerateCures!
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Get the scoop on clinical trial participation from those who know! 

Plan to join KidneyCAN for our next Town Hall on April 24th: "Partners in Progress: Real Talk on Clinical Trials with Doctors and Patients." You'll learn everything you need to know as you weigh trial and treatment options for #KidneyCancer, from both doctor and patient panelists. 

Register now 👉 https://bit.ly/RealTalkTrials

Be sure to drop your questions in the comments here, as well as in the form when you register, so our team can ensure we answer as many as possible.

Get the scoop on clinical trial participation from those who know!

Plan to join KidneyCAN for our next Town Hall on April 24th: "Partners in Progress: Real Talk on Clinical Trials with Doctors and Patients." You`ll learn everything you need to know as you weigh trial and treatment options for #KidneyCancer, from both doctor and patient panelists.

Register now 👉 https://bit.ly/RealTalkTrials

Be sure to drop your questions in the comments here, as well as in the form when you register, so our team can ensure we answer as many as possible.
...

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"I don't know what's gonna happen tomorrow or next year, but for right now, I've determined that I'm gonna live as much as I can, as well as I can."

Six years after his diagnosis of Stage IV kidney cancer, Dr. Adam Stern's story is a light of optimism in the face of adversity. His video update reminds us of the power of living fully each day.

As we mark the end of #KidneyCancerAwarenessMonth, we reflect on the journey of hope, resilience, and community we've shared. Indeed, we go forward together.

Stay connected with KidneyCAN on social media and explore our Patient Resource Center for valuable insights and guidance. Every day of the year, thank you for being part of our community to #AccelerateCures for #KidneyCancer.

🧡💚💪✨

"I don`t know what`s gonna happen tomorrow or next year, but for right now, I`ve determined that I`m gonna live as much as I can, as well as I can."

Six years after his diagnosis of Stage IV kidney cancer, Dr. Adam Stern`s story is a light of optimism in the face of adversity. His video update reminds us of the power of living fully each day.

As we mark the end of #KidneyCancerAwarenessMonth, we reflect on the journey of hope, resilience, and community we`ve shared. Indeed, we go forward together.

Stay connected with KidneyCAN on social media and explore our Patient Resource Center for valuable insights and guidance. Every day of the year, thank you for being part of our community to #AccelerateCures for #KidneyCancer.

🧡💚💪✨
...

12 2
This #KidneyCancerAwarenessMonth, remember that maintaining a healthy and active lifestyle during treatment is not just possible — it's empowering! 

Watch our Town Hall webinar to learn practical strategies for keeping your kidney function strong and your spirits high, directly from experts and fellow warriors on the same journey. 

Together, let's make health and activity our allies in the fight against #kidneycancer.

👉 Stay Active, Stay Informed: https://kidneycan.org/protecting-your-kidney-health/

This #KidneyCancerAwarenessMonth, remember that maintaining a healthy and active lifestyle during treatment is not just possible — it`s empowering!

Watch our Town Hall webinar to learn practical strategies for keeping your kidney function strong and your spirits high, directly from experts and fellow warriors on the same journey.

Together, let`s make health and activity our allies in the fight against #kidneycancer.

👉 Stay Active, Stay Informed: https://kidneycan.org/protecting-your-kidney-health/
...

12 0
Did you know? Fewer than 5% of cancer patients enroll in clinical trials, yet these trials are crucial for advancing treatment. This #KidneyCancerAwarenessMonth, let's change the narrative. 

Our KidneyCAN Patient Resource Center offers clear, accessible information on treatment options and clinical trials, helping you make informed decisions. 

👉 Access the Resources: https://bit.ly/KidneyCANPRCTrials

#KidneyCancerAwareness #ClinicalTrialParticipation #PatientEmpowerment #KidneyCAN

Did you know? Fewer than 5% of cancer patients enroll in clinical trials, yet these trials are crucial for advancing treatment. This #KidneyCancerAwarenessMonth, let`s change the narrative.

Our KidneyCAN Patient Resource Center offers clear, accessible information on treatment options and clinical trials, helping you make informed decisions.

👉 Access the Resources: https://bit.ly/KidneyCANPRCTrials

#KidneyCancerAwareness #ClinicalTrialParticipation #PatientEmpowerment #KidneyCAN
...

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