Be an Advocate

You don’t need  special title or role to speak up for the kidney cancer community. In fact, when it comes to advocacy, the heavy lifting is done with small, consistent efforts by people just like you.

Whether you’re a patient, caregiver, family or friend, or a researcher or doctor — we need you. If you want to increase research funding and accelerate cures for kidney cancer, you belong here.

A Place for Everyone

Advocating for kidney cancer research funding doesn’t have to take up a lot of your time. There are simple steps you can take to keep in touch with our community and pitch in with what you can, when you can. Check out the options below!

KEEP IN TOUCH WITH US ONLINE

Spread awareness and stay in the loop with advocacy events by joining our online communities. We’re on social media and on Smart Patients, and we’d love for you to join us! When you share our posts, add your comments, join our online events, and watch our videos, you are amplifying our efforts and increasing our reach. It’s a simple way to make a difference!

JOIN US ON ADVOCACY DAYS

No experience necessary! Advocacy Days are generally two-day events, where you meet with your Congressional reps in person or via Zoom. We train you, so you know what to say to convince Congress to fund kidney cancer research. Virtual advocacy days especially do not take up a lot of time and make an enormous impact on research funding. Your story matters!

WRITE A LETTER TO CONGRESS

A simple but personal letter can be a powerful tool to encourage your representatives to fund kidney cancer research. We work each year to ask for increased funding for the National Institutes of Health and the CDMRP’s Kidney Cancer Research Program. If you can’t join us for Advocacy Day events, consider adding your voice with a letter or email.

Join Our Grassroots Army

You might not realize how important it is for the kidney cancer community to advocate in order to make progress toward cures.

What are we advocating for?

Awareness? Funding? Research? Cures?

The answer is — we are advocating for all of those things. We know that awareness of kidney cancer and its impact on many lives leads to a sense of urgency, a desire for solutions. Awareness leads to advocacy, and advocacy — joining to speak as one voice — leads to funding and research. That’s how we get to cures.

🧡💚💪✨

We met with the offices of @SenWarren and @SenMarkey yesterday and today we are advocating with reps from all over to help #accelerateCURES for #kidneycancer! Thanks to @kidneycan and all of the organizers & advocates — docs and patients alike — for making this happen.

A couple of photos from today's #DistrictDays advocacy event, where we've gathered patients, caregivers, friends, family, doctors, and researchers to tell Congress that we need robust ...#research funding for #kidneycancer through the #NIH and the #CDMRP. A few things to notice:

· Our efforts today spanned the entire US, with folks meeting virtually as far east as New England and as far west as Hawaii!
· The experts gathered to speak up for research funding represent the University of Hawaii, Dana-Farber Cancer Institute, Brigham and Women's Hospital, Beth Israel Deaconess Medical Center.
· Every advocacy meeting is data-packed and backed with numbers ... whether you're a doctor, researcher, patient, or caregiver, we make sure you have the information needed to show Congress the importance of funding kidney cancer research.

Thank you to this all-star team of advocates for their work today! You're #acceleratingcures!

A couple of photos from today's #DistrictDays advocacy event, where we've gathered patients, caregivers, friends, family, doctors, and researchers to tell Congress that we need robust ...#research funding for #kidneycancer through the #NIH and the #CDMRP. A few things to notice:

· Our efforts today spanned the entire US, with folks meeting virtually as far east as New England and as far west as Hawaii!
· The experts gathered to speak up for research funding represent the University of Hawaii, Dana-Farber Cancer Institute, Brigham and Women's Hospital, Beth Israel Deaconess Medical Center.
· Every advocacy meeting is data-packed and backed with numbers ... whether you're a doctor, researcher, patient, or caregiver, we make sure you have the information needed to show Congress the importance of funding kidney cancer research.

Thank you to this all-star team of advocates for their work today! You're #acceleratingcures!

A great conversation with @SenBrianSchatz's office on KidneyCAN's #DistrictDays #advocacy event

Dr. Brenda Hernandez of @UHCancerCenter & @advocatekidneys share data on ...#kidneycancer incidence in Hawaii to demonstrate the need for robust @NIH & @CDMRP funding

#acceleratingcures

This pic from our #DistrictDays advocacy event for #kidneycancer research funding is like a game of I-Spy with our fave patients, advocates, doctors, & researchers!

So powerful to have ...you all there speaking to @SenWarren's office today to ask for robust @NIH & @CDMRPfunding!

You’re a champion, @CJSTRAV3 🤩

Thank you @SenatorHassan and Legislative Correspondent, Madeleine Marr for supporting Kidney Cancer Research. We appreciate your time today and letting our voices be heard. Great discussion. Thank you for listening. @kidneycan @advocatekidneys @DanaFarber_GU @DrChoueiri

Thank you for sharing the patient perspective and advocating with us today!

Thank you Senator @RonWyden and Bre Irish, for supporting kidney cancer research. We appreciate your time today and letting our voices be heard. @kidneycan #kidneycan #FundtheCure #kidneycancerawareness

Doctors and researchers help so much when they speak up with us! Thank you @lsalas_epigenet for your advocacy!

#teamwork

Today I met with NH reps to share the urgent need for research funding for #kidneycancer and #CancerResearch. Thank you to @SenatorShaheen and @Senatorhassan for speaking with us today. Thank you to the #patients #advocates for sharing their stories.
@kidneycan @CDMRP @NIH

Latest News

Dr. Brandon Manley: Physician, Scientist, Advocate

Dr. Brandon Manley: Physician, Scientist, Advocate

Brandon Manley, M.D., is a urologic oncologist who specializes in genitourinary oncology, with a focus on patients with kidney cancer. He currently practices at Moffitt Cancer Center in Tampa, Florida, where he lives with his wife Aimee, and his two daughters Sadie...

read more
Remembering Ralph: Time Well Spent

Remembering Ralph: Time Well Spent

Ralph Knapp was diagnosed in 2014 with stage IV kidney cancer and used the opportunity to increase research funding and bring hope to patients everywhere. With heavy hearts and profound sadness, we announce the passing of Ralph Knapp, a founder of KidneyCAN and leader...

read more
IKCC Report: Retention in Clinical Trials

IKCC Report: Retention in Clinical Trials

The International Kidney Cancer Coalition launched a pilot program to understand the barriers and other considerations that drive the decision to leave a clinical trial and uncover ways to better support patients currently in or considering joining clinical trials....

read more

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Latest News

Dr. Brandon Manley: Physician, Scientist, Advocate

Dr. Brandon Manley: Physician, Scientist, Advocate

Brandon Manley, M.D., is a urologic oncologist who specializes in genitourinary oncology, with a focus on patients with kidney cancer. He currently practices at Moffitt Cancer Center in Tampa, Florida, where he lives with his wife Aimee, and his two daughters Sadie and Brooklyn. The family enjoys...

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Latest News

Dr. Brandon Manley: Physician, Scientist, Advocate

Dr. Brandon Manley: Physician, Scientist, Advocate

Brandon Manley, M.D., is a urologic oncologist who specializes in genitourinary oncology, with a focus on patients with kidney cancer. He currently practices at Moffitt Cancer Center in Tampa, Florida, where he lives with his wife Aimee, and his two daughters Sadie and Brooklyn. The family enjoys...

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Latest News

Dr. Brandon Manley: Physician, Scientist, Advocate

Dr. Brandon Manley: Physician, Scientist, Advocate

Brandon Manley, M.D., is a urologic oncologist who specializes in genitourinary oncology, with a focus on patients with kidney cancer. He currently practices at Moffitt Cancer Center in Tampa, Florida, where he lives with his wife Aimee, and his two daughters Sadie and Brooklyn. The family enjoys...

SUPPORT OUR WORK →

FUNDRAISE FOR KIDNEYCAN →

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Latest News

Remembering Ralph: Time Well Spent

Remembering Ralph: Time Well Spent

Ralph Knapp was diagnosed in 2014 with stage IV kidney cancer and used the opportunity to increase research funding and bring hope to patients everywhere. With heavy hearts and profound sadness, we announce the passing of Ralph Knapp, a founder of KidneyCAN and leader of our mission to accelerate...