Be an Advocate

You don’t need  special title or role to speak up for the kidney cancer community. In fact, when it comes to advocacy, the heavy lifting is done with small, consistent efforts by people just like you.

Whether you’re a patient, caregiver, family or friend, or a researcher or doctor — we need you. If you want to increase research funding and accelerate cures for kidney cancer, you belong here.

A Place for Everyone

Advocating for kidney cancer research funding doesn’t have to take up a lot of your time. There are simple steps you can take to keep in touch with our community and pitch in with what you can, when you can. Check out the options below!

KEEP IN TOUCH WITH US ONLINE

Spread awareness and stay in the loop with advocacy events by joining our online communities. We’re on social media and on Smart Patients, and we’d love for you to join us! When you share our posts, add your comments, join our online events, and watch our videos, you are amplifying our efforts and increasing our reach. It’s a simple way to make a difference!

JOIN US ON ADVOCACY DAYS

No experience necessary! Advocacy Days are generally two-day events, where you meet with your Congressional reps in person or via Zoom. We train you, so you know what to say to convince Congress to fund kidney cancer research. Virtual advocacy days especially do not take up a lot of time and make an enormous impact on research funding. Your story matters!

WRITE A LETTER TO CONGRESS

A simple but personal letter can be a powerful tool to encourage your representatives to fund kidney cancer research. We work each year to ask for increased funding for the National Institutes of Health and the CDMRP’s Kidney Cancer Research Program. If you can’t join us for Advocacy Day events, consider adding your voice with a letter or email.

District Days

For the summer of 2021, we are conducting District Days. This is an opportunity for you to speak directly with your congressperson in small-group Zoom meetings. You’ll share your kidney cancer story and help them understand the need for research funding. Join us!

Join Our Grassroots Army

You might not realize how important it is for the kidney cancer community to advocate in order to make progress toward cures.

What are we advocating for?

Awareness? Funding? Research? Cures?

The answer is — we are advocating for all of those things. We know that awareness of kidney cancer and its impact on many lives leads to a sense of urgency, a desire for solutions. Awareness leads to advocacy, and advocacy — joining to speak as one voice — leads to funding and research. That’s how we get to cures.

The @OncoAlert 🚨@ecancer Weekly RoundUp
July 25-31
Best
@weoncologists 🤠

@jamecancerdoc @DrSGraff @tmprowell @hoperugo @ErikaHamilton9 @DrHBurstein @antgiorda @prat_aleix ...@NicoleKuderer @MichaelGnant @neerajaiims @AlbertBourla @DrChoueiri @MarkYarchoan @CathyEngMD @barlesi

Would you look at these rockstars 🤩

New Uromigos podcast ‘on location’ in Spain. https://anchor.fm/the-uromigos/episodes/Episode-120-The-Uromigos-Paper-of-the-Month-from-Mallorca-e1562qo

Recently diagnosed with COVID-19? Bristol Myers Squibb's COVID treatment trial -- mAb Duo -- is now up and live on the NIH Rise Above COVID site for patients. This Phase 2 trial is for ...COVID-positive patients experiencing symptoms who are standard risk to progressing (not only high risk patients). The Phase 2 trial enrollment is now live in the US at 53 sites.

You may already know that we at KidneyCAN are big proponents for clinical trials. Here's why:

Why should I join a clinical trial?
Clinical trials are part of clinical research and at the heart of all medical advances. Clinical trials look at new ways to prevent, detect, or treat disease.

Treatments might be new drugs or new combinations of drugs, new surgical procedures or devices, or new ways to use existing treatments.

The goal of clinical trials is to determine if a new test or treatment works and is safe. Clinical trials can also look at other aspects of care, such as improving the quality of life for people with chronic illnesses.

People participate in clinical trials for a variety of reasons. Healthy volunteers say they participate to help others and to contribute to moving science forward. Participants with an illness or disease also participate to help others, but also to possibly receive the newest treatment and to have the additional care and attention from the clinical trial staff.

Clinical trials offer hope for many people and an opportunity to help researchers find better treatments for others in the future.

Recently diagnosed with COVID-19? Bristol Myers Squibb's COVID treatment trial -- mAb Duo -- is now up and live on the NIH Rise Above COVID site for patients. This Phase 2 trial is for ...COVID-positive patients experiencing symptoms who are standard risk to progressing (not only high risk patients). The Phase 2 trial enrollment is now live in the US at 53 sites.

You may already know that we at KidneyCAN are big proponents for clinical trials. Here's why:

Why should I join a clinical trial?
Clinical trials are part of clinical research and at the heart of all medical advances. Clinical trials look at new ways to prevent, detect, or treat disease.

Treatments might be new drugs or new combinations of drugs, new surgical procedures or devices, or new ways to use existing treatments.

The goal of clinical trials is to determine if a new test or treatment works and is safe. Clinical trials can also look at other aspects of care, such as improving the quality of life for people with chronic illnesses.

People participate in clinical trials for a variety of reasons. Healthy volunteers say they participate to help others and to contribute to moving science forward. Participants with an illness or disease also participate to help others, but also to possibly receive the newest treatment and to have the additional care and attention from the clinical trial staff.

Clinical trials offer hope for many people and an opportunity to help researchers find better treatments for others in the future.

A can't-miss event for sure! Rockstar lineup of experts discussing the latest in #kidneycancer research, treatments, and patient education.

We're looking forward to this! ...https://twitter.com/DrChoueiri/status/1420733946514395139

💡Many cancers develop despite excellent "life long health decisions". I spent all day telling my patients that #cancer is NOT their fault.

Can we reduce cancer risk? Yes.
...Can we PREVENT cancer? No.

Exciting news! @BMS #COVID mAb Duo is now live on the @NIH Rise Above COVID site for patients!

https://www.riseabovecovid.org/us/en/
 
This Phase 2 trial is for COVID-positive ...patients experiencing symptoms who are standard risk to progressing (not only high risk). Enroll now in US @ 53 sites

Please get vaccinated. “We can do this!” Thank you @McDonalds for extending this message on your coffee cups. Delta is different. Please make the choice to protect yourself and your loved ones. ...@CDCgov @COVID19nCCC

Latest News

Dr. John T. Wilson: “A Lot of Reason to Hope”

Dr. John T. Wilson: “A Lot of Reason to Hope”

Researcher Spotlight: Dr. John T. Wilson Giving Patients "A Lot of Reason to Hope" At KidneyCAN, we have the pleasure of meeting and working with talented researchers from all over the world. We want to share some of the insights and experiences of one such researcher...

read more

KidneyCAN is a registered 501(c)(3) nonprofit and does not receive any funding through the Congressionally Directed Medical Research Programs (CDMRP) or KCRP (Kidney Cancer Research Program). Our work is funded by grassroots donors in the kidney cancer community. 

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Latest News

Dr. John T. Wilson: “A Lot of Reason to Hope”

Dr. John T. Wilson: “A Lot of Reason to Hope”

Researcher Spotlight: Dr. John T. Wilson Giving Patients "A Lot of Reason to Hope" At KidneyCAN, we have the pleasure of meeting and working with talented researchers from all over the world. We want to share some of the insights and experiences of one such researcher today, Dr. John T. Wilson,...

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Latest News

Dr. John T. Wilson: “A Lot of Reason to Hope”

Dr. John T. Wilson: “A Lot of Reason to Hope”

Researcher Spotlight: Dr. John T. Wilson Giving Patients "A Lot of Reason to Hope" At KidneyCAN, we have the pleasure of meeting and working with talented researchers from all over the world. We want to share some of the insights and experiences of one such researcher today, Dr. John T. Wilson,...

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Latest News

World Kidney Cancer Day 2021: We Need to Talk About How We’re Feeling

World Kidney Cancer Day 2021: We Need to Talk About How We’re Feeling

On June 17th, people from all around the world came together to participate in activities for #WorldKidneyCancerDay, and we’re proud to share what KidneyCAN did in partnership with the IKCC and many other partners from the kidney cancer community. Our goal each year on World Kidney Cancer Day is...

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KIDNEYCAN NEWS →

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CONTACT →

Latest News

Dr. John T. Wilson: “A Lot of Reason to Hope”

Dr. John T. Wilson: “A Lot of Reason to Hope”

Researcher Spotlight: Dr. John T. Wilson Giving Patients "A Lot of Reason to Hope" At KidneyCAN, we have the pleasure of meeting and working with talented researchers from all over the world. We want to share some of the insights and experiences of one such researcher today, Dr. John T. Wilson,...

SUPPORT OUR WORK →

FUNDRAISE FOR KIDNEYCAN →

DONATE →

CONTACT →

Latest News

World Kidney Cancer Day 2021: We Need to Talk About How We’re Feeling

World Kidney Cancer Day 2021: We Need to Talk About How We’re Feeling

On June 17th, people from all around the world came together to participate in activities for #WorldKidneyCancerDay, and we’re proud to share what KidneyCAN did in partnership with the IKCC and many other partners from the kidney cancer community. Our goal each year on World Kidney Cancer Day is...