Be an Advocate

You don’t need  special title or role to speak up for the kidney cancer community. In fact, when it comes to advocacy, the heavy lifting is done with small, consistent efforts by people just like you.

Whether you’re a patient, caregiver, family or friend, or a researcher or doctor — we need you. If you want to increase research funding and accelerate cures for kidney cancer, you belong here.

A Place for Everyone

Advocating for kidney cancer research funding doesn’t have to take up a lot of your time. There are simple steps you can take to keep in touch with our community and pitch in with what you can, when you can. Check out the options below!

KEEP IN TOUCH WITH US ONLINE

Spread awareness and stay in the loop with advocacy events by joining our online communities. We’re on social media and on Smart Patients, and we’d love for you to join us! When you share our posts, add your comments, join our online events, and watch our videos, you are amplifying our efforts and increasing our reach. It’s a simple way to make a difference!

JOIN US ON ADVOCACY DAYS

No experience necessary! Advocacy Days are generally two-day events, where you meet with your Congressional reps in person or via Zoom. We train you, so you know what to say to convince Congress to fund kidney cancer research. Virtual advocacy days especially do not take up a lot of time and make an enormous impact on research funding. Your story matters!

WRITE A LETTER TO CONGRESS

A simple but personal letter can be a powerful tool to encourage your representatives to fund kidney cancer research. We work each year to ask for increased funding for the National Institutes of Health and the CDMRP’s Kidney Cancer Research Program. If you can’t join us for Advocacy Day events, consider adding your voice with a letter or email.

Join Our Grassroots Army

You might not realize how important it is for the kidney cancer community to advocate in order to make progress toward cures.

What are we advocating for?

Awareness? Funding? Research? Cures?

The answer is — we are advocating for all of those things. We know that awareness of kidney cancer and its impact on many lives leads to a sense of urgency, a desire for solutions. Awareness leads to advocacy, and advocacy — joining to speak as one voice — leads to funding and research. That’s how we get to cures.

Save the date 16 June 2022 to take part in World Kidney Cancer Day and raise awareness of clinical trials and access to treatments for #kidneycancer patients.
To improve the lives of patients ...worldwide ‘We need to talk’.
For more info:
https://t.co/wPwUYXhRFR

A rockstar group for sure 🤩

Really enjoyed being on this panel with such a phenomenal group of kidney cancer experts @TiansterZhang @PBarataMD @bilenma @MosheOrnsteinMD
@KidneyCancer @kidneycan @IKCCorg https://twitter.com/OncLive/status/1527031335067570176

WATCH: @BraunMDPhD, of @YaleCancer, explains how biomarkers help to stratify treatment decision-making for patients with RCC. #kcsm #oncology https://t.co/8osdQxmlrb

So much to look forward to at @ASCO #ASCO22 #ASCOGU. Thank you @DrChoueiri for this excellent roundup!

As #ASCO22 is approaching, my top 10 GU abstracts to be presented (just based on titles!). This is not an exhaustive list with many more exciting abstracts to discover…

@ASCO @OncoAlert @ASCOPres @CliffordHudis @jrgralow @DanaFarber_GU

4-CALYPSO: A three-arm randomized phase II study of durvalumab alone or with savolitinib or tremelimumab in previously treated advanced clear cell renal cancer.
@tompowles1 | @QMBCI

3-The relationship between health-related quality of life (HRQoL) and clinical outcomes in patients with advanced renal cell carcinoma (aRCC) in CheckMate (CM) 214.
@CellaDavid | @MSSatNU

Fantastic !! Thank you for transforming the funding landscape in kidney cancer! @kidneycan @advocatekidneys https://t.co/SmrO7mVzbX

@kidneycan @CDMRP @DrChoueiri @HHammersMD @montypal @DrRanaMcKay @KimrynRathmell @EJonasch @kaydaustin @TiansterZhang Good science has a great chance at getting @CDMRP funding for accelerating cures for #kidneycancer. Get going today.

Latest News

Remembering Ralph: Time Well Spent

Remembering Ralph: Time Well Spent

Ralph Knapp was diagnosed in 2014 with stage IV kidney cancer and used the opportunity to increase research funding and bring hope to patients everywhere. With heavy hearts and profound sadness, we announce the passing of Ralph Knapp, a founder of KidneyCAN and leader...

read more
IKCC Report: Retention in Clinical Trials

IKCC Report: Retention in Clinical Trials

The International Kidney Cancer Coalition launched a pilot program to understand the barriers and other considerations that drive the decision to leave a clinical trial and uncover ways to better support patients currently in or considering joining clinical trials....

read more
Let’s Get Loud: Spring 2022 Advocacy Days

Let’s Get Loud: Spring 2022 Advocacy Days

On March 7-8, KidneyCAN gathered advocates from all over the United States to ask Congress for robust funding for kidney cancer research through the NIH and CDMRP (Congressionally Directed Medical Research Programs). Read on to hear about our goals for this event and...

read more

WHO WE ARE →

WHAT WE DO →

OUR STORIES →

THE KIDNEY CANCER COMMUNITY →

SCIENTIFIC ADVISORS →

DONATE →

CONTACT →

Latest News

Remembering Ralph: Time Well Spent

Remembering Ralph: Time Well Spent

Ralph Knapp was diagnosed in 2014 with stage IV kidney cancer and used the opportunity to increase research funding and bring hope to patients everywhere. With heavy hearts and profound sadness, we announce the passing of Ralph Knapp, a founder of KidneyCAN and leader of our mission to accelerate...

SPRING ADVOCACY DAYS 2022 →

JOIN OUR COMMUNITY →

RAISING AWARENESS →

BE AN ADVOCATE →

DONATE NOW →

CONTACT →

Latest News

Let’s Get Loud: Spring 2022 Advocacy Days

Let’s Get Loud: Spring 2022 Advocacy Days

On March 7-8, KidneyCAN gathered advocates from all over the United States to ask Congress for robust funding for kidney cancer research through the NIH and CDMRP (Congressionally Directed Medical Research Programs). Read on to hear about our goals for this event and how you can help fund...

Patient Resource Center

UNDERSTANDING YOUR KIDNEY CANCER DIAGNOSIS

BUILDING A CARE TEAM

TREATMENT & TRIAL OPTIONS

LIVING WELL WITH KIDNEY CANCER

KCRS: KIDNEY CANCER RESEARCH SUMMIT →

RESEARCH OPPORTUNITIES →

NEWS →

Latest News

IKCC Report: Retention in Clinical Trials

IKCC Report: Retention in Clinical Trials

The International Kidney Cancer Coalition launched a pilot program to understand the barriers and other considerations that drive the decision to leave a clinical trial and uncover ways to better support patients currently in or considering joining clinical trials. Clinical trials are the key to...

SUPPORT OUR WORK →

FUNDRAISE FOR KIDNEYCAN →

DONATE →

CONTACT →

Latest News

Remembering Ralph: Time Well Spent

Remembering Ralph: Time Well Spent

Ralph Knapp was diagnosed in 2014 with stage IV kidney cancer and used the opportunity to increase research funding and bring hope to patients everywhere. With heavy hearts and profound sadness, we announce the passing of Ralph Knapp, a founder of KidneyCAN and leader of our mission to accelerate...