Be an Advocate

You don’t need  special title or role to speak up for the kidney cancer community. In fact, when it comes to advocacy, the heavy lifting is done with small, consistent efforts by people just like you.

Whether you’re a patient, caregiver, family or friend, or a researcher or doctor — we need you. If you want to increase research funding and accelerate cures for kidney cancer, you belong here.

A Place for Everyone

Advocating for kidney cancer research funding doesn’t have to take up a lot of your time. There are simple steps you can take to keep in touch with our community and pitch in with what you can, when you can. Check out the options below!

KEEP IN TOUCH WITH US ONLINE

Spread awareness and stay in the loop with advocacy events by joining our online communities. We’re on social media and on Smart Patients, and we’d love for you to join us! When you share our posts, add your comments, join our online events, and watch our videos, you are amplifying our efforts and increasing our reach. It’s a simple way to make a difference!

JOIN US ON ADVOCACY DAYS

No experience necessary! Advocacy Days are generally two-day events, where you meet with your Congressional reps in person or via Zoom. We train you, so you know what to say to convince Congress to fund kidney cancer research. Virtual advocacy days especially do not take up a lot of time and make an enormous impact on research funding. Your story matters!

WRITE A LETTER TO CONGRESS

A simple but personal letter can be a powerful tool to encourage your representatives to fund kidney cancer research. We work each year to ask for increased funding for the National Institutes of Health and the CDMRP’s Kidney Cancer Research Program. If you can’t join us for Advocacy Day events, consider adding your voice with a letter or email.

Join Our Grassroots Army

You might not realize how important it is for the kidney cancer community to advocate in order to make progress toward cures.

What are we advocating for?

Awareness? Funding? Research? Cures?

The answer is — we are advocating for all of those things. We know that awareness of kidney cancer and its impact on many lives leads to a sense of urgency, a desire for solutions. Awareness leads to advocacy, and advocacy — joining to speak as one voice — leads to funding and research. That’s how we get to cures.

This is wonderful! Congratulations, Debbie, and @KidneyCancer_Ca 🧡💚

Debbie’s #MOVEtobeatcancer started a little earlier doing something just for her. For her 1st year #kidneycancer free anniversary, she got a bee tattoo. Today for her 5th year anniversary, she added the @KidneyCancer_Ca symbol. So cool! View Debbie’s MOVE: https://bit.ly/3qRRRQY

The KidneyCAN team is deeply saddened to share the loss of Gary Poteat. Gary was diagnosed in 2007 with Stage IV #kidneycancer, and in the 15 years since, he and his wife Susan have contributed ...enormously to research progress and advocacy efforts.

Many of you know Susan as our Medical Science Liaison and an active member of our SmartPatients community. Please read about Gary's extraordinary life and join us in offering condolences to the Poteat family.

https://kidneycan.org/gary-poteat-in-memory/

The KidneyCAN team is deeply saddened to share the loss of Gary Poteat, beloved husband of Susan. Many of you know Susan as our Medical Science Liaison.

Please read about Gary's ...extraordinary life and join us in offering condolences to the family.

https://kidneycan.org/gary-poteat-in-memory/

The KidneyCAN team is deeply saddened to share the loss of Gary Poteat. Gary was diagnosed in 2007 with Stage IV #kidneycancer, and in the 15 years since, he and his wife Susan have contributed ...enormously to research progress and advocacy efforts.

Many of you know Susan as our Medical Science Liaison and an active member of our SmartPatients community. Please read about Gary's extraordinary life and join us in offering condolences to the Poteat family.

https://kidneycan.org/gary-poteat-in-memory/

Another #KidneyCANDID video, this one from Rachel Giles with the @IKCCorg

Rachel shares how #ESMO22 provided training and resources for #PatientAdvocacy organizations.

#ESMO22 ...Highlights: Patient Advocacy via @YouTube

Image for twitter card
ESMO22 Highlights: Patient Advocacy

In this episode of #KidneyCANDID video, Rachel Giles from the International Kidney Cancer Coalition shares how ESMO (the European Society of Medical...

youtu.be

Latest News

In Memory of Gary Poteat: A Hard Worker, a Helper, a Teacher

In Memory of Gary Poteat: A Hard Worker, a Helper, a Teacher

Gary Poteat was the husband of Susan Poteat, KidneyCAN's Medical Science Liaison. Gary and Susan were married for 43 years. Since Gary's diagnosis of Stage IV kidney cancer in 2007, both Gary and Susan have been active advocates for research funding and trial...

read more
District Days: Asking Congress to Fund Kidney Cancer Research

District Days: Asking Congress to Fund Kidney Cancer Research

On August 8-9th, KidneyCAN gathered advocates from all over the United States to ask Congress for robust funding for kidney cancer research through the NIH and CDMRP (Congressionally Directed Medical Research Programs). Read on to hear about our goals for this event...

read more

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Latest News

Michael Whitley: A Kidney Cancer Diagnosis “Cracked Me Open”

Michael Whitley: A Kidney Cancer Diagnosis “Cracked Me Open”

Michael Whitley is 45 years old and lives in Huntsville, Alabama, with his boyfriend, Michael Mueller. He's the owner and Chief Operating Officer of EngeniusMicro, a techonology-development company focused on defense contracting. Following his kidney cancer diagnosis in 2019, Michael wanted to...

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Latest News

District Days: Asking Congress to Fund Kidney Cancer Research

District Days: Asking Congress to Fund Kidney Cancer Research

On August 8-9th, KidneyCAN gathered advocates from all over the United States to ask Congress for robust funding for kidney cancer research through the NIH and CDMRP (Congressionally Directed Medical Research Programs). Read on to hear about our goals for this event and how you can help fund...

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Latest News

District Days: Asking Congress to Fund Kidney Cancer Research

District Days: Asking Congress to Fund Kidney Cancer Research

On August 8-9th, KidneyCAN gathered advocates from all over the United States to ask Congress for robust funding for kidney cancer research through the NIH and CDMRP (Congressionally Directed Medical Research Programs). Read on to hear about our goals for this event and how you can help fund...

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Latest News

In Memory of Gary Poteat: A Hard Worker, a Helper, a Teacher

In Memory of Gary Poteat: A Hard Worker, a Helper, a Teacher

Gary Poteat was the husband of Susan Poteat, KidneyCAN's Medical Science Liaison. Gary and Susan were married for 43 years. Since Gary's diagnosis of Stage IV kidney cancer in 2007, both Gary and Susan have been active advocates for research funding and trial participation. The KidneyCAN community...