Facing a Diagnosis
It’s scary and confusing to be diagnosed with cancer. Members of the KidneyCAN community share their advice for those who have been newly diagnosed.
More than anything, we want you to know that you’re not alone and we are working on your behalf. Check out the resources below, and considering joining us in our Smart Patients community as well.
Educational Video Gallery
We have created a video gallery of presentations for those who want to know the latest medical information available to patients in the kidney cancer community. Our goal is to provide a credible and user-friendly source for you to learn about treatment options and managing your care.
We are grateful to our partners at Novartis who have provided the grant funding that makes this video gallery possible for the kidney cancer community.
Please note: The following information is shared with you by patient advocates for the benefit of kidney cancer patients and their caregivers. The information contained herein is based upon public data and the opinions of the speakers and is not intended to be exhaustive, or act as medical advice. Additionally, the medical landscape changes rapidly and what you see here may not be completely current or relevant to your particular diagnosis or treatment. Patients should speak to their doctor about their own care and treatment.
My Surgery for Kidney Cancer
Thomas J Guzzo, MD, MPH | Penn Medicine | Abramson Cancer Center
Innovative Approaches for Locally Advanced Kidney Cancer
Robert G Uzzo, MD, FACS | Temple Health | Fox Chase Cancer Center
Why Perioperative Therapy Could Cure Kidney Cancer
Naomi B. Haas, MD | Penn Medicine | Abramson Cancer Center
What Do My Genes Tell Me About Kidney Cancer?
Ramaprasad Srinivasan, MD, PhD | Center for Cancer Research, National Cancer Institute
Why (or Why Not) Combination Therapy May Be Best for My Kidney Cancer
Elizabeth Plimack, MD, MS | Temple Health | Fox Chase Cancer Center
What’s New for My Cancer Beyond the First Line of Treatment?
Camillo Porta, MD | University of Pavia, Italy
Treatment Of Non-Clear Cell Cancer? Unique and Deserving of Its Own Focus
Vivek K Narayan, MD, MS | Penn Medicine | Abramson Cancer Center
Nutrition and Kidney Cancer
Roberto Pili, MD | Indiana University School of Medicine
Patient Perspective on Clinical Trials: Why Not?
Deborah Maskens, MA, MSA | International Kidney Cancer Coalition (IKCC)
How Do I Make the Most of My Treatment? Managing the Side Effects of Kidney Cancer and Its Treatment
Emily Feld, MD | Penn Medicine | Abramson Cancer Center
Management of Bone Metastases and Kidney Cancer
Robert J. Wilson, II, MD | Penn Medicine | Abramson Cancer Center
The Role of Metastatectomy and Additional Kidney Cancer Therapy
Leonard J Appleman, MD, PhD | University of Pittsburgh Medical Center | Hillman Cancer Center
Additional Video Resources
KidneyCAN provides a number of additional resources to patients navigating the kidney cancer journey. We have hosted Facebook Live events for patients to ask questions and learn where they can go for help. We also share patient stories to give information and hope to fellow patients and their families.
On Clinical Trials
It can be hard to feel confident with the idea of a clinical trial. It’d be nice if cancer treatment had fewer unknowns and more certainty. However, clinical trials are an important part of cancer treatment and have saved lives.
Here, members of our community share their experiences with clinical trials, from both the doctor and the patients’ perspectives.