RAISE YOUR VOICE

We are the voice of kidney cancer advocacy in Washington, D.C. and the U.S.

Advocacy means the act or process of supporting a cause or proposal. Advocacy works to influence the introduction, enactment, or modification of legislation, for causes related to kidney cancer. Advocacy can occur at the Federal or State level.  From time to time, KC Coalition asks you to raise your voice on behalf of kidney cancer patients and their families.This may entail contacting your legislator, sharing your kidney cancer experience and asking him or her to vote a specific way on a bill. 

Are you willing to you help KC Coalition advocate on behalf of the kidney cancer community? Maybe you want to visit your representatives in D.C. with us? Perhaps you could write a letter, or send an e-mail? Can you pick up the phone and call your representatives?

We welcome you and your advocacy. With relentless devotion to our vision and our shared resources, we will achieve lasting legacies.

Click here to sign up for Advocacy alerts and announcements of key federal and state issues important to our kidney cancer community. 

WHAT WE’RE DOING

    • Congressional meetings (in district and in D.C.)
    • Advocacy days  – Capitol Hill
    • Congressional briefings
    • Congressional letters
    • Agency meetings (FDA, NIH/NCI, CDC)
    • Consortium involvement and engagement (AUA, OVAC, DHRC, AACR, ASCO, SBUR)
    • Sponsor Stakeholder meetings – “Connect, Network and Advocate” Attendees include patients, caregivers, physicians, hospitals, industry/pharma
    • State leadership activities – Identify, train, activate state ‘grass top’ leaders and advocates
    • Registry – database development of grassroots advocates
    • Public relations/media outreach

HOW WE’RE DOING IT

    • Engaging stakeholders in Washington
    • Mobilizing the community
    • Leveraging resources to achieve the vision of a cure
    • Increased research funding for National Institutes of Health  – NIH/NCI
    • Increased research funding via the CDMRP
    • CDC funding for kidney cancer awareness and future screening funding
    • Congressional information resource

Spring Advocacy Day March 12 2019

We had another successful advocacy day on Capitol Hill.  We could always use more voices.  If interested, contact us HERE

December 2018 Advocacy Day

We had a dynamic group of kidney cancer patient advocates meet in Washington, DC to attend an educational seminar and briefing on policy advocacy issues impacting the kidney cancer community. Hosted by Bryan Lewis, Kidney Cancer Action Network and Kidney Cancer Coalition, we had an ‘inside the beltway’ discussion on the current political landscape including updates on the appropriations process, the NIH/NCI funding, the Congressionally Directed Medical Research Program (CDMRP) and the Kidney Cancer Research Program (KCRP) in particular. Patient advocates were able to craft their stories and prepare for meetings with Hill staffers after hearing what to expect and how to deliver a strong message on behalf of the kidney cancer community.

IT IS OFFICIAL! $20 MILLION FOR KIDNEY CANCER RESEARCH

On September 28th, 2017 the President signed into law the Defense, Labor HHS spending package. Included within this historic bill is the Defense Health Program that has increased the funding for the Kidney Cancer Research Program pursuant to the CDMRP from $15 million to $20 million annually.

The Kidney Cancer Coalition and The Kidney Cancer Action network led the charge for the increase to this important program.

LINK – CDMRP: Congressionally Directed Medical Research Programs

LINK – United States Senate Committee

“Kidney cancer is the ideal sandbox for these new approaches, and without a doubt the same approach can, should and will be suitable for other cancers”

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