District Days: How to Be an Advocate from Home

KidneyCAN is excited to present our plan for at-home advocacy this summer. In August, when our congressional representatives will be at home in their districts, we are making a plan for our community to engage in District Days.

District Days will give the kidney cancer community an opportunity to share their stories and experiences with their representatives. This communication is vital to the process of securing funding for kidney cancer research.

Please plan to join us! We want all our participants to feel safe and will conduct the training sessions virtually via Zoom. Your in-person participation will be limited to one face-to-face meeting with your congressperson, with masks and social distancing for safety.

You don’t need to be a trained advocate, and you won’t need any special tools or skills. You just need a passion for our cause. We’ll help with the rest! Register using the form below.

REGISTER FOR DISTRICT DAYS

Lifting Our Voices: Advocacy Days in D.C.

On March 9-10, 2020, we met with congressional representatives to advocate for increased funding of kidney cancer research. These advocacy days make an enormous impact that benefits kidney cancer patients and their families.

Members of our group learned about current research and the state of kidney cancer funding. They shared their stories as patients and caregivers and explained the need for additional lifesaving research.

You can read all about our advocacy day here. We hope you’ll join us for future advocacy endeavors, as it takes all of us speaking up to be heard. You don’t need previous advocacy experience. We will provide you with all the information and support you need. Just come tell your story!

KidneyCAN advocates in DC

Hear from Our Advocacy Day Delegates

Delegates from our March 2020 advocacy days share their goals, experiences, and reasons for participating.

Why does your advocacy matter? Here are 40 million reasons:

On December 17, 2019, Congress approved $40 million in funding for kidney cancer research. A few years ago, that number was $0.

This kind of progress is only made possible by grassroots contributions from people like you. Led by KidneyCAN, a coalition of patients, caregivers, and other patient advocacy organizations all pitched in to advocate for this much-needed increase in research funding.

This money funds research that will save lives.

From all of us at KidneyCAN, we thank you for your donations, advocacy, and support.

Read more about the CDMRP (Congressionally Directed Medical Research Programs).

Read more about the appropriations.

Raise Your Voice

We are the voice of kidney cancer advocacy in Washington, D.C. and the U.S.

Advocacy means the act or process of supporting a cause or proposal. Advocacy works to influence the introduction, enactment, or modification of legislation, for causes related to kidney cancer. Advocacy can occur at the Federal or State level.  From time to time, KidneyCAN asks you to raise your voice on behalf of kidney cancer patients and their families. This may entail contacting your legislator, sharing your kidney cancer experience and asking him or her to vote a specific way on a bill. 

Are you willing to you help KidneyCAN advocate on behalf of the kidney cancer community? Maybe you could visit your representatives in D.C. with us? Perhaps you could write a letter, or send an e-mail? 

We welcome you and your advocacy. With relentless devotion to our vision and our shared resources, we will achieve lasting legacies.

Click  HERE to sign up for Advocacy alerts and announcements of key federal and state issues important to our kidney cancer community.

WHAT WE’RE DOING

    • Congressional meetings (in district and in D.C.)
    • Advocacy days  – Capitol Hill
    • Congressional briefings
    • Congressional letters
    • Agency meetings (FDA, NIH/NCI, CDC)
    • Consortium involvement and engagement (AUA, OVAC, DHRC, AACR, ASCO, SBUR)
    • Sponsor Stakeholder meetings – “Connect, Network and Advocate” Attendees include patients, caregivers, physicians, hospitals, industry/pharma
    • State leadership activities – Identify, train, activate state ‘grass top’ leaders and advocates
    • Registry – database development of grassroots advocates
    • Public relations/media outreach

HOW WE’RE DOING IT

    • Engaging stakeholders in Washington
    • Mobilizing the community
    • Leveraging resources to achieve the vision of a cure
    • Increased research funding for National Institutes of Health  – NIH/NCI
    • Increased research funding via the CDMRP
    • CDC funding for kidney cancer awareness and future screening funding
    • Congressional information resource

“Kidney cancer is the ideal sandbox for these new approaches, and without a doubt the same approach can, should and will be suitable for other cancers”

JOIN OUR COMMUNITY
Stay in Touch: Join The Kidney Cancer Coalition Email List!

Please enter your information below: