KidneyCAN Advocates for Research Funding: Here’s Why
You might not realize how important it is for the kidney cancer community to advocate in order to make progress.
What are we advocating for? Awareness? Funding? Research? Cures?
The answer is — we are advocating for all of those things. We know that awareness of kidney cancer and its impact on many lives leads to a sense of urgency, a desire for solutions. Awareness leads to advocacy, and advocacy — joining to speak as one voice — leads to funding and research. That’s how we get to cures.
District Days: Advocating for Kidney Cancer Research Funding from Home
On August 12-13, 2020, KidneyCAN organized our first District Days. 122 advocates from 29 states participated in 115 conference call meetings during this remote Hill Day. The KidneyCAN team designed, marketed, promoted, and operated the 2 day event for stakeholders in the kidney cancer community. Our partnering organizations included Joey’s Wings, Judy Nicholson Kidney Cancer Foundation (JNKCF), National Kidney Foundation (NKF), and VHL Alliance. The purpose of the event was as follows:
- To Draw Attention to & Build Awareness of kidney cancer.
- To Educate Policymakers (and staff) of the impact of kidney cancer on individuals, caregivers, families and other stakeholders.
- To Speak as One Voice for the kidney cancer community.
- To Thank Representatives for supporting issues impacting the community and to have a clearly articulated “ask” of legislators based on the legislative priorities of the kidney cancer community.
- To Represent multiple stakeholder constituencies from multiple states.
Lifting Our Voices: Advocacy Days in D.C.
On March 9-10, 2020, we met with congressional representatives to advocate for increased funding of kidney cancer research. These advocacy days make an enormous impact that benefits kidney cancer patients and their families.
Members of our group learned about current research and the state of kidney cancer funding. They shared their stories as patients and caregivers and explained the need for additional lifesaving research.
You can read all about our advocacy day here. We hope you’ll join us for future advocacy endeavors, as it takes all of us speaking up to be heard. You don’t need previous advocacy experience. We will provide you with all the information and support you need. Just come tell your story!
Hear from Our Advocacy Day Delegates
Delegates from our March 2020 advocacy days share their goals, experiences, and reasons for participating.