District Days: Advocating for Kidney Cancer Research Funding from Home
On August 12-13, 2020, KidneyCAN organized our first District Days. 122 advocates from 29 states participated in 115 conference call meetings during this remote Hill Day. The KidneyCAN team designed, marketed, promoted, and operated the 2 day event for stakeholders in the kidney cancer community. Our partnering organizations included Joey’s Wings, Judy Nicholson Kidney Cancer Foundation (JNKCF), National Kidney Foundation (NKF), and VHL Alliance. The purpose of the event was as follows:
- To Draw Attention to & Build Awareness of kidney cancer.
- To Educate Policymakers (and staff) of the impact of kidney cancer on individuals, caregivers, families and other stakeholders.
- To Speak as One Voice for the kidney cancer community.
- To Thank Representatives for supporting issues impacting the community and to have a clearly articulated “ask” of legislators based on the legislative priorities of the kidney cancer community.
- To Represent multiple stakeholder constituencies from multiple states.
Lifting Our Voices: Advocacy Days in D.C.
On March 9-10, 2020, we met with congressional representatives to advocate for increased funding of kidney cancer research. These advocacy days make an enormous impact that benefits kidney cancer patients and their families.
Members of our group learned about current research and the state of kidney cancer funding. They shared their stories as patients and caregivers and explained the need for additional lifesaving research.
You can read all about our advocacy day here. We hope you’ll join us for future advocacy endeavors, as it takes all of us speaking up to be heard. You don’t need previous advocacy experience. We will provide you with all the information and support you need. Just come tell your story!
Hear from Our Advocacy Day Delegates
Delegates from our March 2020 advocacy days share their goals, experiences, and reasons for participating.
Why does your advocacy matter? Here are 40 million reasons:
On December 17, 2019, Congress approved $40 million in funding for kidney cancer research. A few years ago, that number was $0.
This kind of progress is only made possible by grassroots contributions from people like you. Led by KidneyCAN, a coalition of patients, caregivers, and other patient advocacy organizations all pitched in to advocate for this much-needed increase in research funding.
This money funds research that will save lives.
From all of us at KidneyCAN, we thank you for your donations, advocacy, and support.