Always an Option: Clinical Trials for Kidney Cancer

We held a Town Hall to discuss the basics of the clinical trial process and why trial participation can make sense anywhere along your journey.

Just diagnosed? Learn more.

A kidney cancer diagnosis can be scary and confusing. You’re not alone. KidneyCAN has put together resources to help you navigate a new diagnosis, your treatment options, and living well with cancer.

Immunotherapy for Kidney Cancer

Our last Town Hall event focused on immunotherapy for kidney cancer patients. See leading oncologists discuss options for kidney cancer.

Kidney Cancer Research Summit

KCRS22 will be a hybrid meeting in Philadelphia, Pennsylvania, on October 6-7, 2022. Virtual attendees can register now for free, full access to all sessions.  You can also view video and slides of presentations  from KCRS21.
Making Progress Toward Cures

Our Goals

  • Provide education, resources, and support to kidney cancer patients and caregivers
  • Identify patients’ and researchers’ unmet needs
  • Engage and educate policymakers on the urgency of kidney cancer research funding
  • Urge Congress to fund kidney cancer research
  • Increase CDMRP Kidney Cancer Research Program and NIH funding through advocacy
  • Provide direct funding to promising ideas
  • Propel collaboration and progress in kidney cancer research (Kidney Cancer Research Summit)
  • Grow the community of kidney cancer researchers
  • Support the development of new treatments by educating patients on trial access and enrollment
  • Identify new unmet needs, set new goals, and keep working

Our Mission

Our mission is to accelerate cures for kidney cancer. We engage in patient advocacy and power research by supporting government and industry research funding, facilitating research collaborations, and offering direct financial support for clinical and laboratory researchers with promising ideas. Together, we can find the cure.

NEWLY DIAGNOSED?

You’re not alone. We’ve put together a Patient Resource Center to help you navigate a new diagnosis and beyond. Learn about kidney cancer, various treatment options, patient education events, and how to live well with cancer.  

BUILD A CARE TEAM

One of the best decisions you can make when facing kidney cancer is to choose an experienced medical team. We’ve put together resources including a checklist of questions for your doctor and a list of NCI comprehensive cancer centers.

Understanding Your Kidney Cancer Diagnosis

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Building a Care Team

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Treatment & Trial Options

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Living Well with Kidney Cancer

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Join Our Grassroots Army

You might not realize how important it is for the kidney cancer community to advocate in order to make progress toward cures.

What are we advocating for?

Awareness? Funding? Research? Cures?

The answer is — we are advocating for all of those things. We know that awareness of kidney cancer and its impact on many lives leads to a sense of urgency, a desire for solutions. Awareness leads to advocacy, and advocacy — joining to speak as one voice — leads to funding and research. That’s how we get to cures.

🧡💚💪✨

We met with the offices of @SenWarren and @SenMarkey yesterday and today we are advocating with reps from all over to help #accelerateCURES for #kidneycancer! Thanks to @kidneycan and all of the organizers & advocates — docs and patients alike — for making this happen.

A couple of photos from today's #DistrictDays advocacy event, where we've gathered patients, caregivers, friends, family, doctors, and researchers to tell Congress that we need robust ...#research funding for #kidneycancer through the #NIH and the #CDMRP. A few things to notice:

· Our efforts today spanned the entire US, with folks meeting virtually as far east as New England and as far west as Hawaii!
· The experts gathered to speak up for research funding represent the University of Hawaii, Dana-Farber Cancer Institute, Brigham and Women's Hospital, Beth Israel Deaconess Medical Center.
· Every advocacy meeting is data-packed and backed with numbers ... whether you're a doctor, researcher, patient, or caregiver, we make sure you have the information needed to show Congress the importance of funding kidney cancer research.

Thank you to this all-star team of advocates for their work today! You're #acceleratingcures!

A couple of photos from today's #DistrictDays advocacy event, where we've gathered patients, caregivers, friends, family, doctors, and researchers to tell Congress that we need robust ...#research funding for #kidneycancer through the #NIH and the #CDMRP. A few things to notice:

· Our efforts today spanned the entire US, with folks meeting virtually as far east as New England and as far west as Hawaii!
· The experts gathered to speak up for research funding represent the University of Hawaii, Dana-Farber Cancer Institute, Brigham and Women's Hospital, Beth Israel Deaconess Medical Center.
· Every advocacy meeting is data-packed and backed with numbers ... whether you're a doctor, researcher, patient, or caregiver, we make sure you have the information needed to show Congress the importance of funding kidney cancer research.

Thank you to this all-star team of advocates for their work today! You're #acceleratingcures!

A great conversation with @SenBrianSchatz's office on KidneyCAN's #DistrictDays #advocacy event

Dr. Brenda Hernandez of @UHCancerCenter & @advocatekidneys share data on ...#kidneycancer incidence in Hawaii to demonstrate the need for robust @NIH & @CDMRP funding

#acceleratingcures

This pic from our #DistrictDays advocacy event for #kidneycancer research funding is like a game of I-Spy with our fave patients, advocates, doctors, & researchers!

So powerful to have ...you all there speaking to @SenWarren's office today to ask for robust @NIH & @CDMRPfunding!

You’re a champion, @CJSTRAV3 🤩

Thank you @SenatorHassan and Legislative Correspondent, Madeleine Marr for supporting Kidney Cancer Research. We appreciate your time today and letting our voices be heard. Great discussion. Thank you for listening. @kidneycan @advocatekidneys @DanaFarber_GU @DrChoueiri

Thank you for sharing the patient perspective and advocating with us today!

Thank you Senator @RonWyden and Bre Irish, for supporting kidney cancer research. We appreciate your time today and letting our voices be heard. @kidneycan #kidneycan #FundtheCure #kidneycancerawareness

Doctors and researchers help so much when they speak up with us! Thank you @lsalas_epigenet for your advocacy!

#teamwork

Today I met with NH reps to share the urgent need for research funding for #kidneycancer and #CancerResearch. Thank you to @SenatorShaheen and @Senatorhassan for speaking with us today. Thank you to the #patients #advocates for sharing their stories.
@kidneycan @CDMRP @NIH

When we formed KidneyCAN in 2016, the amount of money Congress allocated specifically for kidney cancer research was $0. Through advocacy, we’ve generated $135 million in research funding in five years.

Latest News

Dr. Brandon Manley: Physician, Scientist, Advocate

Brandon Manley, M.D., is a urologic oncologist who specializes in genitourinary oncology, with a focus on patients with kidney cancer. He currently practices at Moffitt Cancer Center in Tampa, Florida, where he lives with his wife Aimee, and his two daughters Sadie...

Remembering Ralph: Time Well Spent

Ralph Knapp was diagnosed in 2014 with stage IV kidney cancer and used the opportunity to increase research funding and bring hope to patients everywhere. With heavy hearts and profound sadness, we announce the passing of Ralph Knapp, a founder of KidneyCAN and leader...

IKCC Report: Retention in Clinical Trials

The International Kidney Cancer Coalition launched a pilot program to understand the barriers and other considerations that drive the decision to leave a clinical trial and uncover ways to better support patients currently in or considering joining clinical trials....

Let’s Get Loud: Spring 2022 Advocacy Days

On March 7-8, KidneyCAN gathered advocates from all over the United States to ask Congress for robust funding for kidney cancer research through the NIH and CDMRP (Congressionally Directed Medical Research Programs). Read on to hear about our goals for this event and...

KidneyCAN is a registered 501(c)(3) nonprofit and does not receive any funding through the Congressionally Directed Medical Research Program (CDMRP) or KCRP (Kidney Cancer Research Program). Our work is funded by grassroots donors in the kidney cancer community. 

WHO WE ARE →

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Latest News

Dr. Brandon Manley: Physician, Scientist, Advocate

Dr. Brandon Manley: Physician, Scientist, Advocate

Brandon Manley, M.D., is a urologic oncologist who specializes in genitourinary oncology, with a focus on patients with kidney cancer. He currently practices at Moffitt Cancer Center in Tampa, Florida, where he lives with his wife Aimee, and his two daughters Sadie and Brooklyn. The family enjoys...

DISTRICT DAYS 2022 →

SPRING ADVOCACY DAYS 2022 →

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BE AN ADVOCATE →

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Latest News

Dr. Brandon Manley: Physician, Scientist, Advocate

Dr. Brandon Manley: Physician, Scientist, Advocate

Brandon Manley, M.D., is a urologic oncologist who specializes in genitourinary oncology, with a focus on patients with kidney cancer. He currently practices at Moffitt Cancer Center in Tampa, Florida, where he lives with his wife Aimee, and his two daughters Sadie and Brooklyn. The family enjoys...

Patient Resource Center

UNDERSTANDING YOUR KIDNEY CANCER DIAGNOSIS

BUILDING YOUR CARE TEAM

TREATMENT & TRIAL OPTIONS

LIVING WELL WITH KIDNEY CANCER

CLINICAL TRIALS →

IMMUNOTHERAPY →

KCRS: KIDNEY CANCER RESEARCH SUMMIT →

RESEARCH OPPORTUNITIES →

NEWS →

Latest News

Dr. Brandon Manley: Physician, Scientist, Advocate

Dr. Brandon Manley: Physician, Scientist, Advocate

Brandon Manley, M.D., is a urologic oncologist who specializes in genitourinary oncology, with a focus on patients with kidney cancer. He currently practices at Moffitt Cancer Center in Tampa, Florida, where he lives with his wife Aimee, and his two daughters Sadie and Brooklyn. The family enjoys...

SUPPORT OUR WORK →

FUNDRAISE FOR KIDNEYCAN →

DONATE →

CONTACT →

Latest News

Remembering Ralph: Time Well Spent

Remembering Ralph: Time Well Spent

Ralph Knapp was diagnosed in 2014 with stage IV kidney cancer and used the opportunity to increase research funding and bring hope to patients everywhere. With heavy hearts and profound sadness, we announce the passing of Ralph Knapp, a founder of KidneyCAN and leader of our mission to accelerate...